‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness

It’s almost like living with a dead person. Some people say, ‘you’ve still got her’. No I haven’t. (Mother of a daughter in a permanent vegetative state, caring for her at home.) I only thought in terms of life and death ... not this, this in-between. (Father of a son, who had been in a minimal cons...

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Autores:
Tipo de recurso:
Book
Fecha de publicación:
2014
Institución:
Universidad de Bogotá Jorge Tadeo Lozano
Repositorio:
Expeditio: repositorio UTadeo
Idioma:
eng
OAI Identifier:
oai:expeditiorepositorio.utadeo.edu.co:20.500.12010/15876
Acceso en línea:
http://hdl.handle.net/20.500.12010/15876
Palabra clave:
Severe brain injury
Disorders of consciousness
Ciencias sociales
Daño cerebral
Cerebro - Enfermedades
Rights
License
Abierto (Texto Completo)
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dc.title.spa.fl_str_mv ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
title ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
spellingShingle ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
Severe brain injury
Disorders of consciousness
Ciencias sociales
Daño cerebral
Cerebro - Enfermedades
title_short ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
title_full ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
title_fullStr ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
title_full_unstemmed ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
title_sort ‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
dc.subject.spa.fl_str_mv Severe brain injury
Disorders of consciousness
topic Severe brain injury
Disorders of consciousness
Ciencias sociales
Daño cerebral
Cerebro - Enfermedades
dc.subject.lemb.spa.fl_str_mv Ciencias sociales
Daño cerebral
Cerebro - Enfermedades
description It’s almost like living with a dead person. Some people say, ‘you’ve still got her’. No I haven’t. (Mother of a daughter in a permanent vegetative state, caring for her at home.) I only thought in terms of life and death ... not this, this in-between. (Father of a son, who had been in a minimal conscious state.) And I’d thought of every single possibility. But I hadn’t thought of this one. Because I didn’t even know it existed. (Sister of a woman in a permanent vegetative state.)
publishDate 2014
dc.date.created.none.fl_str_mv 2014
dc.date.accessioned.none.fl_str_mv 2020-11-20T20:25:15Z
dc.date.available.none.fl_str_mv 2020-11-20T20:25:15Z
dc.type.coar.spa.fl_str_mv http://purl.org/coar/resource_type/c_2f33
format http://purl.org/coar/resource_type/c_2f33
dc.identifier.isbn.none.fl_str_mv 9781137467973
dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/20.500.12010/15876
dc.identifier.doi.none.fl_str_mv 10.1057/9781137391919
identifier_str_mv 9781137467973
10.1057/9781137391919
url http://hdl.handle.net/20.500.12010/15876
dc.language.iso.spa.fl_str_mv eng
language eng
dc.rights.coar.fl_str_mv http://purl.org/coar/access_right/c_abf2
dc.rights.local.spa.fl_str_mv Abierto (Texto Completo)
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rights_invalid_str_mv Abierto (Texto Completo)
http://creativecommons.org/licenses/by/3.0/
http://purl.org/coar/access_right/c_abf2
dc.format.extent.spa.fl_str_mv 23 páginas
dc.format.mimetype.spa.fl_str_mv application/pdf
dc.publisher.spa.fl_str_mv Palgrave
institution Universidad de Bogotá Jorge Tadeo Lozano
bitstream.url.fl_str_mv https://expeditiorepositorio.utadeo.edu.co/bitstream/20.500.12010/15876/2/license.txt
https://expeditiorepositorio.utadeo.edu.co/bitstream/20.500.12010/15876/1/1000041.pdf
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spelling 2020-11-20T20:25:15Z2020-11-20T20:25:15Z20149781137467973http://hdl.handle.net/20.500.12010/1587610.1057/9781137391919It’s almost like living with a dead person. Some people say, ‘you’ve still got her’. No I haven’t. (Mother of a daughter in a permanent vegetative state, caring for her at home.) I only thought in terms of life and death ... not this, this in-between. (Father of a son, who had been in a minimal conscious state.) And I’d thought of every single possibility. But I hadn’t thought of this one. Because I didn’t even know it existed. (Sister of a woman in a permanent vegetative state.)23 páginasapplication/pdfengPalgraveSevere brain injuryDisorders of consciousnessCiencias socialesDaño cerebralCerebro - Enfermedades‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousnessAbierto (Texto Completo)http://creativecommons.org/licenses/by/3.0/http://purl.org/coar/access_right/c_abf2http://purl.org/coar/resource_type/c_2f33Kitzinger, CeliaKitzinger, JennyLICENSElicense.txtlicense.txttext/plain; charset=utf-82938https://expeditiorepositorio.utadeo.edu.co/bitstream/20.500.12010/15876/2/license.txtabceeb1c943c50d3343516f9dbfc110fMD52open accessORIGINAL1000041.pdf1000041.pdfVer libroapplication/pdf1594141https://expeditiorepositorio.utadeo.edu.co/bitstream/20.500.12010/15876/1/1000041.pdfaaf0dd25cb4374807d334e8fd91c44c5MD51open accessTHUMBNAIL1000041.pdf.jpg1000041.pdf.jpgIM Thumbnailimage/jpeg11465https://expeditiorepositorio.utadeo.edu.co/bitstream/20.500.12010/15876/3/1000041.pdf.jpg8fbf70fd299d2d5116c4ab0bf044965bMD53open access20.500.12010/15876oai:expeditiorepositorio.utadeo.edu.co:20.500.12010/158762020-11-20 15:26:25.527open accessRepositorio Institucional - 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