‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness

It’s almost like living with a dead person. Some people say, ‘you’ve still got her’. No I haven’t. (Mother of a daughter in a permanent vegetative state, caring for her at home.) I only thought in terms of life and death ... not this, this in-between. (Father of a son, who had been in a minimal cons...