‘This in-between’: How families talk about death in relation to severe brain injury and disorders of consciousness
It’s almost like living with a dead person. Some people say, ‘you’ve still got her’. No I haven’t. (Mother of a daughter in a permanent vegetative state, caring for her at home.) I only thought in terms of life and death ... not this, this in-between. (Father of a son, who had been in a minimal cons...
- Autores:
- Tipo de recurso:
- Book
- Fecha de publicación:
- 2014
- Institución:
- Universidad de Bogotá Jorge Tadeo Lozano
- Repositorio:
- Expeditio: repositorio UTadeo
- Idioma:
- eng
- OAI Identifier:
- oai:expeditiorepositorio.utadeo.edu.co:20.500.12010/15876
- Acceso en línea:
- http://hdl.handle.net/20.500.12010/15876
- Palabra clave:
- Severe brain injury
Disorders of consciousness
Ciencias sociales
Daño cerebral
Cerebro - Enfermedades
- Rights
- License
- Abierto (Texto Completo)
| Summary: | It’s almost like living with a dead person. Some people say, ‘you’ve still got her’. No I haven’t. (Mother of a daughter in a permanent vegetative state, caring for her at home.) I only thought in terms of life and death ... not this, this in-between. (Father of a son, who had been in a minimal conscious state.) And I’d thought of every single possibility. But I hadn’t thought of this one. Because I didn’t even know it existed. (Sister of a woman in a permanent vegetative state.) |
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