Quality of life in children with infrequent congenital heart defects: Cohort study with one-year of follow-up

Background: The evidence regarding patient related outcomes in children with infrequent congenital heart defects (I-CHD) is very limited. We sought to measure quality of life (QoL) in children with I-CHD, and secondarily, to describe QoL changes after one-year of follow-up, self-reported by children...

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Autores:
Tipo de recurso:
Fecha de publicación:
2020
Institución:
Universidad del Rosario
Repositorio:
Repositorio EdocUR - U. Rosario
Idioma:
eng
OAI Identifier:
oai:repository.urosario.edu.co:10336/24180
Acceso en línea:
https://doi.org/10.1186/s12955-019-1265-z
https://repository.urosario.edu.co/handle/10336/24180
Palabra clave:
Adolescent
Adult
Aortic arch interruption
Article
Caregiver
Child
Clinical assessment
Clinical evaluation
Cohort analysis
Colombia
Congenital heart malformation
Ebstein anomaly
Female
Follow up
Heterotaxy syndrome
Human
Major clinical study
Male
Pediatric quality of life inventory
Preschool child
Psychologic assessment
Pulmonary valve stenosis
Quality of life
Quality of life assessment
School child
Self report
Sex difference
Williams beuren syndrome
Congenital heart malformation
Psychology
Quality of life
Caregivers
Child
Colombia
Female
Follow-up studies
Humans
Male
Quality of life
Self report
Caregivers
Colombia
Congenital heart defects
Quality of life
congenital
preschool
Child
Heart defects
Rights
License
Abierto (Texto Completo)