What do people need?

The key question addressed in this Chapter is “What do people need?“, with “people” here meaning those who live with a rheumatic or musculoskeletal disease. The word “patient” is avoided at this point as not all of the problems or solutions identified are medical in nature. Many are personal, societal and/or environmental. The lead authors are all people who not only live with a rheumatic or musculoskeletal disease, but who are experienced “patient representatives”. Therefore, their insights here stem from a combination of personal and collective experiences and views. Although from different continents, the authors identify a range of common barriers to social participation and optimum management of these conditions, such as late diagnosis, stigma and access to care. However, several solutions are common across these regions too, such as the need for supported self-management and greater public awareness of the impact of these diseases.

• Tipo de recurso: Article of investigation
• Fecha de publicación: 2020
• Institución: Universidad de Bogotá Jorge Tadeo Lozano
• Repositorio: Expeditio: repositorio UTadeo
• Idioma: eng
• OAI Identifier: oai:expeditiorepositorio.utadeo.edu.co:20.500.12010/12451
• Acceso en línea: https://doi.org/10.1016/j.berh.2020.101567; http://hdl.handle.net/20.500.12010/12451
• Palabra clave: RMDs (rheumatic and musculoskeletal diseases); Self-management; Stigma; Access; Social inclusion; Early diagnosis; Patient empowerment; Patient involvement; Síndrome respiratorio agudo grave; COVID-19; SARS-CoV-2; Coronavirus
• License: Acceso restringido