Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review

Background: The acute nature of COVID-19 and its effects on society in terms of social distancing and quarantine regulations affect the provision of palliative care for people with dementia who live in long-term care facilities. The current COVID-19 pandemic poses a challenge to nursing staff, who a...

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Autores:
Tipo de recurso:
Article of investigation
Fecha de publicación:
2020
Institución:
Universidad de Bogotá Jorge Tadeo Lozano
Repositorio:
Expeditio: repositorio UTadeo
Idioma:
eng
OAI Identifier:
oai:expeditiorepositorio.utadeo.edu.co:20.500.12010/14304
Acceso en línea:
https://doi.org/10.1016/j.ijnurstu.2020.103781
http://hdl.handle.net/20.500.12010/14304
Palabra clave:
COVID-19
Dementia
Long-term care facilities
Nursing
Palliative care
Recommendations
Síndrome respiratorio agudo grave
COVID-19
SARS-CoV-2
Coronavirus
Rights
License
Abierto (Texto Completo)
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dc.title.spa.fl_str_mv Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
title Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
spellingShingle Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
COVID-19
Dementia
Long-term care facilities
Nursing
Palliative care
Recommendations
Síndrome respiratorio agudo grave
COVID-19
SARS-CoV-2
Coronavirus
title_short Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
title_full Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
title_fullStr Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
title_full_unstemmed Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
title_sort Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review
dc.subject.spa.fl_str_mv COVID-19
Dementia
Long-term care facilities
Nursing
Palliative care
Recommendations
topic COVID-19
Dementia
Long-term care facilities
Nursing
Palliative care
Recommendations
Síndrome respiratorio agudo grave
COVID-19
SARS-CoV-2
Coronavirus
dc.subject.lemb.spa.fl_str_mv Síndrome respiratorio agudo grave
COVID-19
SARS-CoV-2
Coronavirus
description Background: The acute nature of COVID-19 and its effects on society in terms of social distancing and quarantine regulations affect the provision of palliative care for people with dementia who live in long-term care facilities. The current COVID-19 pandemic poses a challenge to nursing staff, who are in a key position to provide high-quality palliative care for people with dementia and their families. Objective: To formulate practice recommendations for nursing staff with regard to providing palliative dementia care in times of COVID-19. Design and method: A rapid scoping review following guidelines from the Joanna Briggs Institute. Eligible papers focused on COVID-19 in combination with palliative care for older people or people with dementia and informed practical nursing recommendations for longterm care facilities. After data extraction, we formulated recommendations covering essential domains in palliative care adapted from the National Consensus Project’s Clinical Practice Guidelines for Quality Palliative Care. Data sources: We searched the bibliographic databases of PubMed, CINAHL and PsycINFO for academic publications. We searched for grey literature using the search engine Google. Moreover, we included relevant letters and editorials, guidelines, web articles and policy papers published by knowledge and professional institutes or associations in dementia and palliative care. Results: In total, 23 documents (7 (special) articles in peer-reviewed journals, 6 guides, 4 letters to editors, 2 web articles (blogs), 2 reports, a correspondence paper and a position paper) were included. The highest number of papers informed recommendations under the domains ‘advance care planning’ and ‘psychological aspects of care’. The lowest number of papers informed the domains ‘ethical care’, ‘care of the dying’, ‘spiritual care’ and ‘bereavement care’. We found no papers that informed the ‘cultural aspects of care’ domain. Conclusion: Literature that focuses specifically on palliative care for people with dementia in long-term care facilities during the COVID-19 pandemic is still largely lacking. Particular challenges that need addressing involve care of the dying and the bereaved, and ethical, cultural and spiritual aspects of care. Moreover, we must acknowledge grief and moral distress among nursing staff. Nursing leadership is needed to safeguard the quality of care and nursing staff should work together within an interprofessional care team to initiate advance care planning conversations in a timely manner, to review and document advance care plans, and to adapt goals of care as they may change due to the COVID-19 situation.
publishDate 2020
dc.date.accessioned.none.fl_str_mv 2020-10-08T15:15:07Z
dc.date.available.none.fl_str_mv 2020-10-08T15:15:07Z
dc.date.created.none.fl_str_mv 2020
dc.type.local.spa.fl_str_mv Artículo
dc.type.coar.spa.fl_str_mv http://purl.org/coar/resource_type/c_2df8fbb1
format http://purl.org/coar/resource_type/c_2df8fbb1
dc.identifier.issn.spa.fl_str_mv 0020-7489
dc.identifier.other.spa.fl_str_mv https://doi.org/10.1016/j.ijnurstu.2020.103781
dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/20.500.12010/14304
dc.identifier.doi.spa.fl_str_mv https://doi.org/10.1016/j.ijnurstu.2020.103781
identifier_str_mv 0020-7489
url https://doi.org/10.1016/j.ijnurstu.2020.103781
http://hdl.handle.net/20.500.12010/14304
dc.language.iso.spa.fl_str_mv eng
language eng
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dc.rights.local.spa.fl_str_mv Abierto (Texto Completo)
rights_invalid_str_mv Abierto (Texto Completo)
http://purl.org/coar/access_right/c_abf2
dc.format.mimetype.spa.fl_str_mv application/pdf
dc.publisher.spa.fl_str_mv International Journal of Nursing Studies
dc.source.spa.fl_str_mv reponame:Expeditio Repositorio Institucional UJTL
instname:Universidad de Bogotá Jorge Tadeo Lozano
instname_str Universidad de Bogotá Jorge Tadeo Lozano
institution Universidad de Bogotá Jorge Tadeo Lozano
reponame_str Expeditio Repositorio Institucional UJTL
collection Expeditio Repositorio Institucional UJTL
bitstream.url.fl_str_mv https://expeditiorepositorio.utadeo.edu.co/bitstream/20.500.12010/14304/3/Practical-nursing-recommendations-for-palliative-care-for_2020_International.pdf.jpg
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spelling 2020-10-08T15:15:07Z2020-10-08T15:15:07Z20200020-7489https://doi.org/10.1016/j.ijnurstu.2020.103781http://hdl.handle.net/20.500.12010/14304https://doi.org/10.1016/j.ijnurstu.2020.103781Background: The acute nature of COVID-19 and its effects on society in terms of social distancing and quarantine regulations affect the provision of palliative care for people with dementia who live in long-term care facilities. The current COVID-19 pandemic poses a challenge to nursing staff, who are in a key position to provide high-quality palliative care for people with dementia and their families. Objective: To formulate practice recommendations for nursing staff with regard to providing palliative dementia care in times of COVID-19. Design and method: A rapid scoping review following guidelines from the Joanna Briggs Institute. Eligible papers focused on COVID-19 in combination with palliative care for older people or people with dementia and informed practical nursing recommendations for longterm care facilities. After data extraction, we formulated recommendations covering essential domains in palliative care adapted from the National Consensus Project’s Clinical Practice Guidelines for Quality Palliative Care. Data sources: We searched the bibliographic databases of PubMed, CINAHL and PsycINFO for academic publications. We searched for grey literature using the search engine Google. Moreover, we included relevant letters and editorials, guidelines, web articles and policy papers published by knowledge and professional institutes or associations in dementia and palliative care. Results: In total, 23 documents (7 (special) articles in peer-reviewed journals, 6 guides, 4 letters to editors, 2 web articles (blogs), 2 reports, a correspondence paper and a position paper) were included. The highest number of papers informed recommendations under the domains ‘advance care planning’ and ‘psychological aspects of care’. The lowest number of papers informed the domains ‘ethical care’, ‘care of the dying’, ‘spiritual care’ and ‘bereavement care’. We found no papers that informed the ‘cultural aspects of care’ domain. Conclusion: Literature that focuses specifically on palliative care for people with dementia in long-term care facilities during the COVID-19 pandemic is still largely lacking. Particular challenges that need addressing involve care of the dying and the bereaved, and ethical, cultural and spiritual aspects of care. Moreover, we must acknowledge grief and moral distress among nursing staff. Nursing leadership is needed to safeguard the quality of care and nursing staff should work together within an interprofessional care team to initiate advance care planning conversations in a timely manner, to review and document advance care plans, and to adapt goals of care as they may change due to the COVID-19 situation.application/pdfengInternational Journal of Nursing Studiesreponame:Expeditio Repositorio Institucional UJTLinstname:Universidad de Bogotá Jorge Tadeo LozanoCOVID-19DementiaLong-term care facilitiesNursingPalliative careRecommendationsSíndrome respiratorio agudo graveCOVID-19SARS-CoV-2CoronavirusPractical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping reviewArtículohttp://purl.org/coar/resource_type/c_2df8fbb1Abierto (Texto Completo)http://purl.org/coar/access_right/c_abf2Bolt, SRSteen, JT van derMujezinovic, IJanssen, DJASchols, JMGAZwakhalen, SMGKhemai, CKnapen, PAGMDijkstra, LMeijers, JMMTHUMBNAILPractical-nursing-recommendations-for-palliative-care-for_2020_International.pdf.jpgPractical-nursing-recommendations-for-palliative-care-for_2020_International.pdf.jpgIM Thumbnailimage/jpeg10834https://expeditiorepositorio.utadeo.edu.co/bitstream/20.500.12010/14304/3/Practical-nursing-recommendations-for-palliative-care-for_2020_International.pdf.jpgcfc43260b315f1d409513a090e51a7b9MD53open accessLICENSElicense.txtlicense.txttext/plain; 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