Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children

Objective: The Paediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) is intended to measure the impact of children's asthma on their parents/caregiver's QoL. However, there are no formal validation studies of the Spanish version of PACQLQ.Methods: In a prospective cohor...

Full description

Autores:
Rodríguez-Martínez, Carlos E.
Sossa-Briceño, Monica P.
Nino, Gustavo
Tipo de recurso:
Article of journal
Fecha de publicación:
2015
Institución:
Universidad El Bosque
Repositorio:
Repositorio U. El Bosque
Idioma:
spa
OAI Identifier:
oai:repositorio.unbosque.edu.co:20.500.12495/3756
Acceso en línea:
http://hdl.handle.net/20.500.12495/3756
https://doi.org/10.3109/02770903.2014.1002565
https://repositorio.unbosque.edu.co
Palabra clave:
Asthma
Pediatrics
Health-related quality of life
Reliability
Validation studies
Validity
Rights
closedAccess
License
Acceso cerrado
id UNBOSQUE2_0d96dfff995b5daced48e9c113a3053a
oai_identifier_str oai:repositorio.unbosque.edu.co:20.500.12495/3756
network_acronym_str UNBOSQUE2
network_name_str Repositorio U. El Bosque
repository_id_str
dc.title.spa.fl_str_mv Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
dc.title.translated.spa.fl_str_mv Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
title Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
spellingShingle Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
Asthma
Pediatrics
Health-related quality of life
Reliability
Validation studies
Validity
title_short Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
title_full Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
title_fullStr Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
title_full_unstemmed Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
title_sort Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic children
dc.creator.fl_str_mv Rodríguez-Martínez, Carlos E.
Sossa-Briceño, Monica P.
Nino, Gustavo
dc.contributor.author.none.fl_str_mv Rodríguez-Martínez, Carlos E.
Sossa-Briceño, Monica P.
Nino, Gustavo
dc.subject.keywords.spa.fl_str_mv Asthma
Pediatrics
Health-related quality of life
Reliability
Validation studies
Validity
topic Asthma
Pediatrics
Health-related quality of life
Reliability
Validation studies
Validity
description Objective: The Paediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) is intended to measure the impact of children's asthma on their parents/caregiver's QoL. However, there are no formal validation studies of the Spanish version of PACQLQ.Methods: In a prospective cohort validation study, asthmatic children aged between 7 and 17 years and their parents, attended both a baseline and a follow-up visit 2–6 weeks later. In these two visits, we gathered the necessary data for assessing the criterion validity, construct validity, test–retest reliability, sensitivity to change, internal consistency and usability of the PACQLQ.Results: At baseline, PACQLQ scores were significantly different between patients with controlled, partly controlled and uncontrolled asthma (median [IQR] 78.0 [61.0–85.0], 71.0 [37.0–76.0] and 48.0 [40.7–55.0], respectively,p < 0.001), and also between patients for whom this visit resulted in a step-up versus no change or a step-down in therapy (50.0 [40.0–60.0] versus 78.0 [61.0–85.0];p < 0.001). PACQLQ scores at baseline were significantly lower than those obtained in the follow-up visit in patients with change for the better in the global rating of change questionnaire (median [IQR] 50.0 [42.5–56.0] versus 80.0 [78.5–85.0];p < 0.001). The intraclass correlation coefficient of the measurements was 0.839 (95%CI: 0.735–0.902). The Cronbach α was 0.914 for the questionnaire as a whole.Conclusions: The Spanish version of the PACQLQ has adequate construct validity, adequate sensitivity to change, good internal consistency, excellent test–retest reliability and good usability when employed in children aged between 7 and 17 years with physician-diagnosed asthma
publishDate 2015
dc.date.issued.none.fl_str_mv 2015
dc.date.accessioned.none.fl_str_mv 2020-08-10T21:38:43Z
dc.date.available.none.fl_str_mv 2020-08-10T21:38:43Z
dc.type.coar.fl_str_mv http://purl.org/coar/resource_type/c_2df8fbb1
dc.type.coarversion.fl_str_mv http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.local.none.fl_str_mv Artículo de revista
dc.type.coar.none.fl_str_mv http://purl.org/coar/resource_type/c_6501
dc.type.driver.none.fl_str_mv info:eu-repo/semantics/article
format http://purl.org/coar/resource_type/c_6501
dc.identifier.issn.none.fl_str_mv 0277-0903
dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/20.500.12495/3756
dc.identifier.doi.none.fl_str_mv https://doi.org/10.3109/02770903.2014.1002565
dc.identifier.instname.spa.fl_str_mv instname:Universidad El Bosque
dc.identifier.reponame.spa.fl_str_mv reponame:Repositorio Institucional Universidad El Bosque
dc.identifier.repourl.none.fl_str_mv https://repositorio.unbosque.edu.co
identifier_str_mv 0277-0903
instname:Universidad El Bosque
reponame:Repositorio Institucional Universidad El Bosque
url http://hdl.handle.net/20.500.12495/3756
https://doi.org/10.3109/02770903.2014.1002565
https://repositorio.unbosque.edu.co
dc.language.iso.none.fl_str_mv spa
language spa
dc.relation.ispartofseries.spa.fl_str_mv Journal of Asthma, 0277-0903, Vol. 52, Nro. 7, 2015, p. 749-754
dc.relation.uri.none.fl_str_mv https://www.tandfonline.com/doi/full/10.3109/02770903.2014.1002565
dc.rights.local.spa.fl_str_mv Acceso cerrado
dc.rights.accessrights.none.fl_str_mv info:eu-repo/semantics/closedAccess
http://purl.org/coar/access_right/c_14cb
rights_invalid_str_mv Acceso cerrado
http://purl.org/coar/access_right/c_14cb
eu_rights_str_mv closedAccess
dc.format.mimetype.none.fl_str_mv application/pdf
dc.publisher.spa.fl_str_mv Taylor and Francis
dc.publisher.journal.spa.fl_str_mv Journal of Asthma.
institution Universidad El Bosque
bitstream.url.fl_str_mv https://repositorio.unbosque.edu.co/bitstreams/a40a9f6b-6602-4761-a451-c2022b5f3df8/download
https://repositorio.unbosque.edu.co/bitstreams/1760708f-0716-4c1f-8bd5-78c42640d118/download
https://repositorio.unbosque.edu.co/bitstreams/20828992-9b13-4bff-98ae-25c04b5775d8/download
https://repositorio.unbosque.edu.co/bitstreams/50ec044d-1c20-48a4-8eb2-7be29201cde2/download
bitstream.checksum.fl_str_mv ed33d5f3ebfc4df0158fcff11414b84c
8a4605be74aa9ea9d79846c1fba20a33
7210a811635d1799e7c05fee5d259be7
ac83f82731de91c8a0ba03e6f2d4d274
bitstream.checksumAlgorithm.fl_str_mv MD5
MD5
MD5
MD5
repository.name.fl_str_mv Repositorio Institucional Universidad El Bosque
repository.mail.fl_str_mv bibliotecas@biteca.com
_version_ 1814100729392005120
spelling Rodríguez-Martínez, Carlos E.Sossa-Briceño, Monica P.Nino, Gustavo2020-08-10T21:38:43Z2020-08-10T21:38:43Z20150277-0903http://hdl.handle.net/20.500.12495/3756https://doi.org/10.3109/02770903.2014.1002565instname:Universidad El Bosquereponame:Repositorio Institucional Universidad El Bosquehttps://repositorio.unbosque.edu.coapplication/pdfspaTaylor and FrancisJournal of Asthma.Journal of Asthma, 0277-0903, Vol. 52, Nro. 7, 2015, p. 749-754https://www.tandfonline.com/doi/full/10.3109/02770903.2014.1002565Validation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic childrenValidation of the spanish version of the pediatric asthma caregiver quality of life questionnaire (PACQLQ) in a population of Hispanic childrenArtículo de revistahttp://purl.org/coar/resource_type/c_6501http://purl.org/coar/resource_type/c_2df8fbb1info:eu-repo/semantics/articlehttp://purl.org/coar/version/c_970fb48d4fbd8a85AsthmaPediatricsHealth-related quality of lifeReliabilityValidation studiesValidityObjective: The Paediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) is intended to measure the impact of children's asthma on their parents/caregiver's QoL. However, there are no formal validation studies of the Spanish version of PACQLQ.Methods: In a prospective cohort validation study, asthmatic children aged between 7 and 17 years and their parents, attended both a baseline and a follow-up visit 2–6 weeks later. In these two visits, we gathered the necessary data for assessing the criterion validity, construct validity, test–retest reliability, sensitivity to change, internal consistency and usability of the PACQLQ.Results: At baseline, PACQLQ scores were significantly different between patients with controlled, partly controlled and uncontrolled asthma (median [IQR] 78.0 [61.0–85.0], 71.0 [37.0–76.0] and 48.0 [40.7–55.0], respectively,p < 0.001), and also between patients for whom this visit resulted in a step-up versus no change or a step-down in therapy (50.0 [40.0–60.0] versus 78.0 [61.0–85.0];p < 0.001). PACQLQ scores at baseline were significantly lower than those obtained in the follow-up visit in patients with change for the better in the global rating of change questionnaire (median [IQR] 50.0 [42.5–56.0] versus 80.0 [78.5–85.0];p < 0.001). The intraclass correlation coefficient of the measurements was 0.839 (95%CI: 0.735–0.902). The Cronbach α was 0.914 for the questionnaire as a whole.Conclusions: The Spanish version of the PACQLQ has adequate construct validity, adequate sensitivity to change, good internal consistency, excellent test–retest reliability and good usability when employed in children aged between 7 and 17 years with physician-diagnosed asthmaAcceso cerradoinfo:eu-repo/semantics/closedAccesshttp://purl.org/coar/access_right/c_14cbORIGINALRodríguez-Martínez, Carlos E..pdfRodríguez-Martínez, Carlos E..pdfapplication/pdf518345https://repositorio.unbosque.edu.co/bitstreams/a40a9f6b-6602-4761-a451-c2022b5f3df8/downloaded33d5f3ebfc4df0158fcff11414b84cMD51LICENSElicense.txtlicense.txttext/plain; charset=utf-81748https://repositorio.unbosque.edu.co/bitstreams/1760708f-0716-4c1f-8bd5-78c42640d118/download8a4605be74aa9ea9d79846c1fba20a33MD52THUMBNAILRodríguez-Martínez, Carlos E..pdf.jpgRodríguez-Martínez, Carlos E..pdf.jpgimage/jpeg5775https://repositorio.unbosque.edu.co/bitstreams/20828992-9b13-4bff-98ae-25c04b5775d8/download7210a811635d1799e7c05fee5d259be7MD53TEXTRodríguez-Martínez, Carlos E..pdf.txtRodríguez-Martínez, Carlos E..pdf.txtExtracted texttext/plain34920https://repositorio.unbosque.edu.co/bitstreams/50ec044d-1c20-48a4-8eb2-7be29201cde2/downloadac83f82731de91c8a0ba03e6f2d4d274MD5420.500.12495/3756oai:repositorio.unbosque.edu.co:20.500.12495/37562024-02-07 01:10:45.154restrictedhttps://repositorio.unbosque.edu.coRepositorio Institucional Universidad El Bosquebibliotecas@biteca.comTk9URTogUExBQ0UgWU9VUiBPV04gTElDRU5TRSBIRVJFClRoaXMgc2FtcGxlIGxpY2Vuc2UgaXMgcHJvdmlkZWQgZm9yIGluZm9ybWF0aW9uYWwgcHVycG9zZXMgb25seS4KCk5PTi1FWENMVVNJVkUgRElTVFJJQlVUSU9OIExJQ0VOU0UKCkJ5IHNpZ25pbmcgYW5kIHN1Ym1pdHRpbmcgdGhpcyBsaWNlbnNlLCB5b3UgKHRoZSBhdXRob3Iocykgb3IgY29weXJpZ2h0Cm93bmVyKSBncmFudHMgdG8gRFNwYWNlIFVuaXZlcnNpdHkgKERTVSkgdGhlIG5vbi1leGNsdXNpdmUgcmlnaHQgdG8gcmVwcm9kdWNlLAp0cmFuc2xhdGUgKGFzIGRlZmluZWQgYmVsb3cpLCBhbmQvb3IgZGlzdHJpYnV0ZSB5b3VyIHN1Ym1pc3Npb24gKGluY2x1ZGluZwp0aGUgYWJzdHJhY3QpIHdvcmxkd2lkZSBpbiBwcmludCBhbmQgZWxlY3Ryb25pYyBmb3JtYXQgYW5kIGluIGFueSBtZWRpdW0sCmluY2x1ZGluZyBidXQgbm90IGxpbWl0ZWQgdG8gYXVkaW8gb3IgdmlkZW8uCgpZb3UgYWdyZWUgdGhhdCBEU1UgbWF5LCB3aXRob3V0IGNoYW5naW5nIHRoZSBjb250ZW50LCB0cmFuc2xhdGUgdGhlCnN1Ym1pc3Npb24gdG8gYW55IG1lZGl1bSBvciBmb3JtYXQgZm9yIHRoZSBwdXJwb3NlIG9mIHByZXNlcnZhdGlvbi4KCllvdSBhbHNvIGFncmVlIHRoYXQgRFNVIG1heSBrZWVwIG1vcmUgdGhhbiBvbmUgY29weSBvZiB0aGlzIHN1Ym1pc3Npb24gZm9yCnB1cnBvc2VzIG9mIHNlY3VyaXR5LCBiYWNrLXVwIGFuZCBwcmVzZXJ2YXRpb24uCgpZb3UgcmVwcmVzZW50IHRoYXQgdGhlIHN1Ym1pc3Npb24gaXMgeW91ciBvcmlnaW5hbCB3b3JrLCBhbmQgdGhhdCB5b3UgaGF2ZQp0aGUgcmlnaHQgdG8gZ3JhbnQgdGhlIHJpZ2h0cyBjb250YWluZWQgaW4gdGhpcyBsaWNlbnNlLiBZb3UgYWxzbyByZXByZXNlbnQKdGhhdCB5b3VyIHN1Ym1pc3Npb24gZG9lcyBub3QsIHRvIHRoZSBiZXN0IG9mIHlvdXIga25vd2xlZGdlLCBpbmZyaW5nZSB1cG9uCmFueW9uZSdzIGNvcHlyaWdodC4KCklmIHRoZSBzdWJtaXNzaW9uIGNvbnRhaW5zIG1hdGVyaWFsIGZvciB3aGljaCB5b3UgZG8gbm90IGhvbGQgY29weXJpZ2h0LAp5b3UgcmVwcmVzZW50IHRoYXQgeW91IGhhdmUgb2J0YWluZWQgdGhlIHVucmVzdHJpY3RlZCBwZXJtaXNzaW9uIG9mIHRoZQpjb3B5cmlnaHQgb3duZXIgdG8gZ3JhbnQgRFNVIHRoZSByaWdodHMgcmVxdWlyZWQgYnkgdGhpcyBsaWNlbnNlLCBhbmQgdGhhdApzdWNoIHRoaXJkLXBhcnR5IG93bmVkIG1hdGVyaWFsIGlzIGNsZWFybHkgaWRlbnRpZmllZCBhbmQgYWNrbm93bGVkZ2VkCndpdGhpbiB0aGUgdGV4dCBvciBjb250ZW50IG9mIHRoZSBzdWJtaXNzaW9uLgoKSUYgVEhFIFNVQk1JU1NJT04gSVMgQkFTRUQgVVBPTiBXT1JLIFRIQVQgSEFTIEJFRU4gU1BPTlNPUkVEIE9SIFNVUFBPUlRFRApCWSBBTiBBR0VOQ1kgT1IgT1JHQU5JWkFUSU9OIE9USEVSIFRIQU4gRFNVLCBZT1UgUkVQUkVTRU5UIFRIQVQgWU9VIEhBVkUKRlVMRklMTEVEIEFOWSBSSUdIVCBPRiBSRVZJRVcgT1IgT1RIRVIgT0JMSUdBVElPTlMgUkVRVUlSRUQgQlkgU1VDSApDT05UUkFDVCBPUiBBR1JFRU1FTlQuCgpEU1Ugd2lsbCBjbGVhcmx5IGlkZW50aWZ5IHlvdXIgbmFtZShzKSBhcyB0aGUgYXV0aG9yKHMpIG9yIG93bmVyKHMpIG9mIHRoZQpzdWJtaXNzaW9uLCBhbmQgd2lsbCBub3QgbWFrZSBhbnkgYWx0ZXJhdGlvbiwgb3RoZXIgdGhhbiBhcyBhbGxvd2VkIGJ5IHRoaXMKbGljZW5zZSwgdG8geW91ciBzdWJtaXNzaW9uLgo=