Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
ABSTRACT: Aims: The death of a child with cancer can be devastating for his or her parents. This study sought to understand the way in which the process of parental grief develops after the death of a child with cancer. Methods: The research used a grounded theory approach, in which 18 participants...
- Autores:
-
Carreño Moreno, Sonia Patricia
Arias Rojas, Edier Mauricio
Chaparro Díaz, Olivia Lorena
- Tipo de recurso:
- Article of investigation
- Fecha de publicación:
- 2021
- Institución:
- Universidad de Antioquia
- Repositorio:
- Repositorio UdeA
- Idioma:
- eng
- OAI Identifier:
- oai:bibliotecadigital.udea.edu.co:10495/24490
- Acceso en línea:
- http://hdl.handle.net/10495/24490
- Palabra clave:
- Neoplasias
Neoplasms
Cuidadores
Caregivers
Dolor
Pain
Teoría Fundamentada
Grounded Theory
Niños
Children
- Rights
- openAccess
- License
- http://creativecommons.org/licenses/by-nc-sa/2.5/co/
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|
dc.title.spa.fl_str_mv |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia |
title |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia |
spellingShingle |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia Neoplasias Neoplasms Cuidadores Caregivers Dolor Pain Teoría Fundamentada Grounded Theory Niños Children |
title_short |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia |
title_full |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia |
title_fullStr |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia |
title_full_unstemmed |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia |
title_sort |
Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia |
dc.creator.fl_str_mv |
Carreño Moreno, Sonia Patricia Arias Rojas, Edier Mauricio Chaparro Díaz, Olivia Lorena |
dc.contributor.author.none.fl_str_mv |
Carreño Moreno, Sonia Patricia Arias Rojas, Edier Mauricio Chaparro Díaz, Olivia Lorena |
dc.subject.decs.none.fl_str_mv |
Neoplasias Neoplasms Cuidadores Caregivers Dolor Pain Teoría Fundamentada Grounded Theory |
topic |
Neoplasias Neoplasms Cuidadores Caregivers Dolor Pain Teoría Fundamentada Grounded Theory Niños Children |
dc.subject.lemb.none.fl_str_mv |
Niños Children |
description |
ABSTRACT: Aims: The death of a child with cancer can be devastating for his or her parents. This study sought to understand the way in which the process of parental grief develops after the death of a child with cancer. Methods: The research used a grounded theory approach, in which 18 participants were enrolled including parents whose child died from cancer 5 months to 5 years before. In‑depth interviews were conducted, which were analyzed using constant comparisons until theoretical saturation was reached. Results: Fifteen subcategories were identified and grouped into three categories that explain what the grieving process represents to the parents over time (a) crossing a desert, (b) dying while alive, and (c) coming back to life. From the emerging relationships among the categories, the core category “seeking adjustment from the unnatural to the supernatural” arises. The results show that grief begins from the moment of diagnosis until long after the child’s death. For parents, it entails understanding the disruption in the natural course of life, going through indescribable pain, and being spiritually reconnected with their child. Conclusions: These results enable nurses to design comprehensive interventions that meet the described needs of these parents. |
publishDate |
2021 |
dc.date.accessioned.none.fl_str_mv |
2021-12-01T19:53:15Z |
dc.date.available.none.fl_str_mv |
2021-12-01T19:53:15Z |
dc.date.issued.none.fl_str_mv |
2021 |
dc.type.spa.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.coarversion.fl_str_mv |
http://purl.org/coar/version/c_970fb48d4fbd8a85 |
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info:eu-repo/semantics/publishedVersion |
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http://purl.org/coar/resource_type/c_2df8fbb1 |
dc.type.redcol.spa.fl_str_mv |
https://purl.org/redcol/resource_type/ART |
dc.type.local.spa.fl_str_mv |
Artículo de investigación |
format |
http://purl.org/coar/resource_type/c_2df8fbb1 |
status_str |
publishedVersion |
dc.identifier.citation.spa.fl_str_mv |
Sonia Carreño-Moreno, Mauricio Arias-Rojas, Lorena Chaparro-Díaz. Seeking an adjustment from the unnatural to the supernatural: the experience of losing a child from cancer in Colombia . Indian J Palliat Care. [Internet]. 2021; 27(1);23-30. |
dc.identifier.issn.none.fl_str_mv |
0973-1075 |
dc.identifier.uri.none.fl_str_mv |
http://hdl.handle.net/10495/24490 |
dc.identifier.doi.none.fl_str_mv |
10.4103 / IJPC.IJPC_72_20 |
dc.identifier.eissn.none.fl_str_mv |
1998-3735 |
identifier_str_mv |
Sonia Carreño-Moreno, Mauricio Arias-Rojas, Lorena Chaparro-Díaz. Seeking an adjustment from the unnatural to the supernatural: the experience of losing a child from cancer in Colombia . Indian J Palliat Care. [Internet]. 2021; 27(1);23-30. 0973-1075 10.4103 / IJPC.IJPC_72_20 1998-3735 |
url |
http://hdl.handle.net/10495/24490 |
dc.language.iso.spa.fl_str_mv |
eng |
language |
eng |
dc.relation.ispartofjournalabbrev.spa.fl_str_mv |
Indian. J. Palliat. Care. |
dc.rights.spa.fl_str_mv |
info:eu-repo/semantics/openAccess |
dc.rights.uri.*.fl_str_mv |
http://creativecommons.org/licenses/by-nc-sa/2.5/co/ |
dc.rights.accessrights.spa.fl_str_mv |
http://purl.org/coar/access_right/c_abf2 |
dc.rights.creativecommons.spa.fl_str_mv |
https://creativecommons.org/licenses/by-nc-sa/4.0/ |
eu_rights_str_mv |
openAccess |
rights_invalid_str_mv |
http://creativecommons.org/licenses/by-nc-sa/2.5/co/ http://purl.org/coar/access_right/c_abf2 https://creativecommons.org/licenses/by-nc-sa/4.0/ |
dc.format.extent.spa.fl_str_mv |
8 |
dc.format.mimetype.spa.fl_str_mv |
application/pdf |
dc.publisher.spa.fl_str_mv |
Indian Association of Palliative Care Medknow Publications |
dc.publisher.group.spa.fl_str_mv |
Grupo de Investigación la Práctica de Enfermería en el Contexto Social |
dc.publisher.place.spa.fl_str_mv |
Bombay, India Pittsford, Estados Unidos |
institution |
Universidad de Antioquia |
bitstream.url.fl_str_mv |
http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/1/AriasEdier_2021_LosingChildCancer.pdf http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/2/license_rdf http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/3/license.txt |
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MD5 MD5 MD5 |
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Repositorio Institucional Universidad de Antioquia |
repository.mail.fl_str_mv |
andres.perez@udea.edu.co |
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1812173223792476160 |
spelling |
Carreño Moreno, Sonia PatriciaArias Rojas, Edier MauricioChaparro Díaz, Olivia Lorena2021-12-01T19:53:15Z2021-12-01T19:53:15Z2021Sonia Carreño-Moreno, Mauricio Arias-Rojas, Lorena Chaparro-Díaz. Seeking an adjustment from the unnatural to the supernatural: the experience of losing a child from cancer in Colombia . Indian J Palliat Care. [Internet]. 2021; 27(1);23-30.0973-1075http://hdl.handle.net/10495/2449010.4103 / IJPC.IJPC_72_201998-3735ABSTRACT: Aims: The death of a child with cancer can be devastating for his or her parents. This study sought to understand the way in which the process of parental grief develops after the death of a child with cancer. Methods: The research used a grounded theory approach, in which 18 participants were enrolled including parents whose child died from cancer 5 months to 5 years before. In‑depth interviews were conducted, which were analyzed using constant comparisons until theoretical saturation was reached. Results: Fifteen subcategories were identified and grouped into three categories that explain what the grieving process represents to the parents over time (a) crossing a desert, (b) dying while alive, and (c) coming back to life. From the emerging relationships among the categories, the core category “seeking adjustment from the unnatural to the supernatural” arises. The results show that grief begins from the moment of diagnosis until long after the child’s death. For parents, it entails understanding the disruption in the natural course of life, going through indescribable pain, and being spiritually reconnected with their child. Conclusions: These results enable nurses to design comprehensive interventions that meet the described needs of these parents.COL01468228application/pdfengIndian Association of Palliative CareMedknow PublicationsGrupo de Investigación la Práctica de Enfermería en el Contexto SocialBombay, IndiaPittsford, Estados Unidosinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://purl.org/coar/resource_type/c_2df8fbb1https://purl.org/redcol/resource_type/ARTArtículo de investigaciónhttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/openAccesshttp://creativecommons.org/licenses/by-nc-sa/2.5/co/http://purl.org/coar/access_right/c_abf2https://creativecommons.org/licenses/by-nc-sa/4.0/Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in ColombiaNeoplasiasNeoplasmsCuidadoresCaregiversDolorPainTeoría FundamentadaGrounded TheoryNiñosChildrenIndian. J. Palliat. Care.Indian Journal of Palliative Care2330271ORIGINALAriasEdier_2021_LosingChildCancer.pdfAriasEdier_2021_LosingChildCancer.pdfArtículo de investigaciónapplication/pdf530083http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/1/AriasEdier_2021_LosingChildCancer.pdf6a57555e95bda9cae90a2bb4bfedcfc2MD51CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-81051http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/2/license_rdfe2060682c9c70d4d30c83c51448f4eedMD52LICENSElicense.txtlicense.txttext/plain; charset=utf-81748http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/3/license.txt8a4605be74aa9ea9d79846c1fba20a33MD5310495/24490oai:bibliotecadigital.udea.edu.co:10495/244902021-12-01 14:53:16.442Repositorio Institucional Universidad de Antioquiaandres.perez@udea.edu.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 |