Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia

ABSTRACT: Aims: The death of a child with cancer can be devastating for his or her parents. This study sought to understand the way in which the process of parental grief develops after the death of a child with cancer. Methods: The research used a grounded theory approach, in which 18 participants...

Full description

Autores:
Carreño Moreno, Sonia Patricia
Arias Rojas, Edier Mauricio
Chaparro Díaz, Olivia Lorena
Tipo de recurso:
Article of investigation
Fecha de publicación:
2021
Institución:
Universidad de Antioquia
Repositorio:
Repositorio UdeA
Idioma:
eng
OAI Identifier:
oai:bibliotecadigital.udea.edu.co:10495/24490
Acceso en línea:
http://hdl.handle.net/10495/24490
Palabra clave:
Neoplasias
Neoplasms
Cuidadores
Caregivers
Dolor
Pain
Teoría Fundamentada
Grounded Theory
Niños
Children
Rights
openAccess
License
http://creativecommons.org/licenses/by-nc-sa/2.5/co/
id UDEA2_c4816cf9cbc82588e8177893c26eaa94
oai_identifier_str oai:bibliotecadigital.udea.edu.co:10495/24490
network_acronym_str UDEA2
network_name_str Repositorio UdeA
repository_id_str
dc.title.spa.fl_str_mv Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
title Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
spellingShingle Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
Neoplasias
Neoplasms
Cuidadores
Caregivers
Dolor
Pain
Teoría Fundamentada
Grounded Theory
Niños
Children
title_short Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
title_full Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
title_fullStr Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
title_full_unstemmed Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
title_sort Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in Colombia
dc.creator.fl_str_mv Carreño Moreno, Sonia Patricia
Arias Rojas, Edier Mauricio
Chaparro Díaz, Olivia Lorena
dc.contributor.author.none.fl_str_mv Carreño Moreno, Sonia Patricia
Arias Rojas, Edier Mauricio
Chaparro Díaz, Olivia Lorena
dc.subject.decs.none.fl_str_mv Neoplasias
Neoplasms
Cuidadores
Caregivers
Dolor
Pain
Teoría Fundamentada
Grounded Theory
topic Neoplasias
Neoplasms
Cuidadores
Caregivers
Dolor
Pain
Teoría Fundamentada
Grounded Theory
Niños
Children
dc.subject.lemb.none.fl_str_mv Niños
Children
description ABSTRACT: Aims: The death of a child with cancer can be devastating for his or her parents. This study sought to understand the way in which the process of parental grief develops after the death of a child with cancer. Methods: The research used a grounded theory approach, in which 18 participants were enrolled including parents whose child died from cancer 5 months to 5 years before. In‑depth interviews were conducted, which were analyzed using constant comparisons until theoretical saturation was reached. Results: Fifteen subcategories were identified and grouped into three categories that explain what the grieving process represents to the parents over time (a) crossing a desert, (b) dying while alive, and (c) coming back to life. From the emerging relationships among the categories, the core category “seeking adjustment from the unnatural to the supernatural” arises. The results show that grief begins from the moment of diagnosis until long after the child’s death. For parents, it entails understanding the disruption in the natural course of life, going through indescribable pain, and being spiritually reconnected with their child. Conclusions: These results enable nurses to design comprehensive interventions that meet the described needs of these parents.
publishDate 2021
dc.date.accessioned.none.fl_str_mv 2021-12-01T19:53:15Z
dc.date.available.none.fl_str_mv 2021-12-01T19:53:15Z
dc.date.issued.none.fl_str_mv 2021
dc.type.spa.fl_str_mv info:eu-repo/semantics/article
dc.type.coarversion.fl_str_mv http://purl.org/coar/version/c_970fb48d4fbd8a85
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dc.type.local.spa.fl_str_mv Artículo de investigación
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dc.identifier.citation.spa.fl_str_mv Sonia Carreño-Moreno, Mauricio Arias-Rojas, Lorena Chaparro-Díaz. Seeking an adjustment from the unnatural to the supernatural: the experience of losing a child from cancer in Colombia . Indian J Palliat Care. [Internet]. 2021; 27(1);23-30.
dc.identifier.issn.none.fl_str_mv 0973-1075
dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/10495/24490
dc.identifier.doi.none.fl_str_mv 10.4103 / IJPC.IJPC_72_20
dc.identifier.eissn.none.fl_str_mv 1998-3735
identifier_str_mv Sonia Carreño-Moreno, Mauricio Arias-Rojas, Lorena Chaparro-Díaz. Seeking an adjustment from the unnatural to the supernatural: the experience of losing a child from cancer in Colombia . Indian J Palliat Care. [Internet]. 2021; 27(1);23-30.
0973-1075
10.4103 / IJPC.IJPC_72_20
1998-3735
url http://hdl.handle.net/10495/24490
dc.language.iso.spa.fl_str_mv eng
language eng
dc.relation.ispartofjournalabbrev.spa.fl_str_mv Indian. J. Palliat. Care.
dc.rights.spa.fl_str_mv info:eu-repo/semantics/openAccess
dc.rights.uri.*.fl_str_mv http://creativecommons.org/licenses/by-nc-sa/2.5/co/
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dc.rights.creativecommons.spa.fl_str_mv https://creativecommons.org/licenses/by-nc-sa/4.0/
eu_rights_str_mv openAccess
rights_invalid_str_mv http://creativecommons.org/licenses/by-nc-sa/2.5/co/
http://purl.org/coar/access_right/c_abf2
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dc.format.extent.spa.fl_str_mv 8
dc.format.mimetype.spa.fl_str_mv application/pdf
dc.publisher.spa.fl_str_mv Indian Association of Palliative Care
Medknow Publications
dc.publisher.group.spa.fl_str_mv Grupo de Investigación la Práctica de Enfermería en el Contexto Social
dc.publisher.place.spa.fl_str_mv Bombay, India
Pittsford, Estados Unidos
institution Universidad de Antioquia
bitstream.url.fl_str_mv http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/1/AriasEdier_2021_LosingChildCancer.pdf
http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/2/license_rdf
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repository.name.fl_str_mv Repositorio Institucional Universidad de Antioquia
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spelling Carreño Moreno, Sonia PatriciaArias Rojas, Edier MauricioChaparro Díaz, Olivia Lorena2021-12-01T19:53:15Z2021-12-01T19:53:15Z2021Sonia Carreño-Moreno, Mauricio Arias-Rojas, Lorena Chaparro-Díaz. Seeking an adjustment from the unnatural to the supernatural: the experience of losing a child from cancer in Colombia . Indian J Palliat Care. [Internet]. 2021; 27(1);23-30.0973-1075http://hdl.handle.net/10495/2449010.4103 / IJPC.IJPC_72_201998-3735ABSTRACT: Aims: The death of a child with cancer can be devastating for his or her parents. This study sought to understand the way in which the process of parental grief develops after the death of a child with cancer. Methods: The research used a grounded theory approach, in which 18 participants were enrolled including parents whose child died from cancer 5 months to 5 years before. In‑depth interviews were conducted, which were analyzed using constant comparisons until theoretical saturation was reached. Results: Fifteen subcategories were identified and grouped into three categories that explain what the grieving process represents to the parents over time (a) crossing a desert, (b) dying while alive, and (c) coming back to life. From the emerging relationships among the categories, the core category “seeking adjustment from the unnatural to the supernatural” arises. The results show that grief begins from the moment of diagnosis until long after the child’s death. For parents, it entails understanding the disruption in the natural course of life, going through indescribable pain, and being spiritually reconnected with their child. Conclusions: These results enable nurses to design comprehensive interventions that meet the described needs of these parents.COL01468228application/pdfengIndian Association of Palliative CareMedknow PublicationsGrupo de Investigación la Práctica de Enfermería en el Contexto SocialBombay, IndiaPittsford, Estados Unidosinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://purl.org/coar/resource_type/c_2df8fbb1https://purl.org/redcol/resource_type/ARTArtículo de investigaciónhttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/openAccesshttp://creativecommons.org/licenses/by-nc-sa/2.5/co/http://purl.org/coar/access_right/c_abf2https://creativecommons.org/licenses/by-nc-sa/4.0/Seeking an adjustment from the unnatural to the supernatural : the experience of losing a child from cancer in ColombiaNeoplasiasNeoplasmsCuidadoresCaregiversDolorPainTeoría FundamentadaGrounded TheoryNiñosChildrenIndian. J. Palliat. Care.Indian Journal of Palliative Care2330271ORIGINALAriasEdier_2021_LosingChildCancer.pdfAriasEdier_2021_LosingChildCancer.pdfArtículo de investigaciónapplication/pdf530083http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/1/AriasEdier_2021_LosingChildCancer.pdf6a57555e95bda9cae90a2bb4bfedcfc2MD51CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-81051http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/2/license_rdfe2060682c9c70d4d30c83c51448f4eedMD52LICENSElicense.txtlicense.txttext/plain; charset=utf-81748http://bibliotecadigital.udea.edu.co/bitstream/10495/24490/3/license.txt8a4605be74aa9ea9d79846c1fba20a33MD5310495/24490oai:bibliotecadigital.udea.edu.co:10495/244902021-12-01 14:53:16.442Repositorio Institucional Universidad de Antioquiaandres.perez@udea.edu.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