Critical issues and needs in management of primary immunodeficiency diseases in Latin America

ABSTRACT: Experts from six Latin American countries met to discuss critical issues and needs in the diagnosis and management of primary immunodeficiency diseases (PIDD). The diagnosis of PIDD is generally made following referral to an immunology centre located in a major city, but many paediatrician...

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Autores:
Condino Neto, Antonio
Franco Restrepo, José Luis
Trujillo Vargas, Claudia Milena
Espinosa Rosales, F. J.
Leiva, L. E.
Rodríguez Quiroz, F.
King, A.
Lagos, M.
Oleastro, M.
Bezrodnik, L.
Grumach, A. S.
Costa Carvalho, B. T.
Sorensen, R. U.
Tipo de recurso:
Article of investigation
Fecha de publicación:
2011
Institución:
Universidad de Antioquia
Repositorio:
Repositorio UdeA
Idioma:
eng
OAI Identifier:
oai:bibliotecadigital.udea.edu.co:10495/21287
Acceso en línea:
http://hdl.handle.net/10495/21287
Palabra clave:
Diagnóstico
Diagnosis
Educación
Education
Enfermedades de Inmunodeficiencia Primaria
Primary Immunodeficiency Diseases
América Latina
Latin America
Sistema de Registros
Registries
Terapéutica
Therapeutics
Rights
openAccess
License
http://creativecommons.org/licenses/by-nc-nd/2.5/co/
Description
Summary:ABSTRACT: Experts from six Latin American countries met to discuss critical issues and needs in the diagnosis and management of primary immunodeficiency diseases (PIDD). The diagnosis of PIDD is generally made following referral to an immunology centre located in a major city, but many paediatricians and general practitioners are not sufficiently trained to suspect PIDD in the first place. Access to laboratory testing is generally limited, and only some screening tests are typically covered by government health programmes. Specialised diagnostic tests are generally not reimbursed. Access to treatment varies by country reflecting differences in healthcare systems and reimbursement policies. An online PIDD Registry Programme for Latin America has been available since 2009, which will provide information about PIDD epidemiology in the region. Additional collaboration across countries appears feasible in at least two areas: a laboratory network to facilitate the diagnosis of PIDD, and educational programmes to improve PIDD awareness. In total, these collaborations should make it possible to advance the diagnosis and management of PIDD in Latin America.