Reconocimiento del niño con síndrome de Down como un sujeto de crianza

ABSTRACT: o describe how the children with Down`s syndrome are recognized by mothers as subjects of parenting and accompaniment. Methodology: an ethnographic study whose participants were 20 mothers of children with Down’s syndrome. Data were collected using semi-structured interviews and field obse...

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Autores:
Bastidas Acevedo, Miriam
Ariza Marriaga, Gustavo Alfredo
Zuliani Arango, Liliana Adela
Tipo de recurso:
Article of investigation
Fecha de publicación:
2013
Institución:
Universidad de Antioquia
Repositorio:
Repositorio UdeA
Idioma:
spa
OAI Identifier:
oai:bibliotecadigital.udea.edu.co:10495/5086
Acceso en línea:
http://hdl.handle.net/10495/5086
Palabra clave:
Sindrome de Down
Crianza de niños
Discapacidad
Rights
openAccess
License
Atribución-NoComercial-CompartirIgual 2.5 Colombia (CC BY-NC-SA 2.5 CO)
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dc.title.spa.fl_str_mv Reconocimiento del niño con síndrome de Down como un sujeto de crianza
dc.title.alternative.spa.fl_str_mv Recognizing a child with Down’s syndrome as a subject of parenting
title Reconocimiento del niño con síndrome de Down como un sujeto de crianza
spellingShingle Reconocimiento del niño con síndrome de Down como un sujeto de crianza
Sindrome de Down
Crianza de niños
Discapacidad
title_short Reconocimiento del niño con síndrome de Down como un sujeto de crianza
title_full Reconocimiento del niño con síndrome de Down como un sujeto de crianza
title_fullStr Reconocimiento del niño con síndrome de Down como un sujeto de crianza
title_full_unstemmed Reconocimiento del niño con síndrome de Down como un sujeto de crianza
title_sort Reconocimiento del niño con síndrome de Down como un sujeto de crianza
dc.creator.fl_str_mv Bastidas Acevedo, Miriam
Ariza Marriaga, Gustavo Alfredo
Zuliani Arango, Liliana Adela
dc.contributor.author.none.fl_str_mv Bastidas Acevedo, Miriam
Ariza Marriaga, Gustavo Alfredo
Zuliani Arango, Liliana Adela
dc.subject.none.fl_str_mv Sindrome de Down
Crianza de niños
Discapacidad
topic Sindrome de Down
Crianza de niños
Discapacidad
description ABSTRACT: o describe how the children with Down`s syndrome are recognized by mothers as subjects of parenting and accompaniment. Methodology: an ethnographic study whose participants were 20 mothers of children with Down’s syndrome. Data were collected using semi-structured interviews and field observations. Similarly, this study included a categorical analysis and a literature review. Results: given the cultural and social conceptions regarding this condition, mothers experience sadness and anxiety upon giving birth to a child with Down’s syndrome. Despite this, and thanks to coexistence and to the mother-child bond, the child is later perceived as a subject of parenting who is equal to another person without the syndrome. Discussion: children become social subjects when they achieve their goals in growth and development, and mothers can perceive this. Conclusion: by living with their sons, the mothers participating in this study discovered that their sons emerge as social persons with Down’s syndrome. The mothers also discovered that these individuals have their own potential and that it is possible to accompany them through parenting and therefore to realize themselves as mothers.
publishDate 2013
dc.date.issued.none.fl_str_mv 2013
dc.date.accessioned.none.fl_str_mv 2016-10-27T15:12:55Z
dc.date.available.none.fl_str_mv 2016-10-27T15:12:55Z
dc.type.spa.fl_str_mv info:eu-repo/semantics/article
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dc.identifier.citation.spa.fl_str_mv Bastidas M, Ariza G, Zuliani L. Reconocimiento del niño con síndrome de Down como un sujeto de crianza. Rev. Fac. Nac. Salud Pública 2013; 31(1): 102-109.
dc.identifier.issn.none.fl_str_mv 0120-386X
dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/10495/5086
dc.identifier.eissn.none.fl_str_mv 2256-3334
identifier_str_mv Bastidas M, Ariza G, Zuliani L. Reconocimiento del niño con síndrome de Down como un sujeto de crianza. Rev. Fac. Nac. Salud Pública 2013; 31(1): 102-109.
0120-386X
2256-3334
url http://hdl.handle.net/10495/5086
dc.language.iso.spa.fl_str_mv spa
language spa
dc.relation.ispartofjournalabbrev.spa.fl_str_mv Rev. Fac. Nac. Salud Pública
dc.rights.*.fl_str_mv Atribución-NoComercial-CompartirIgual 2.5 Colombia (CC BY-NC-SA 2.5 CO)
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dc.publisher.spa.fl_str_mv Universidad de Antioquia, Facultad Nacional de Salud Pública
dc.publisher.group.spa.fl_str_mv Salud y Sociedad
dc.publisher.place.spa.fl_str_mv Medellín, Colombia
institution Universidad de Antioquia
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spelling Bastidas Acevedo, MiriamAriza Marriaga, Gustavo AlfredoZuliani Arango, Liliana Adela2016-10-27T15:12:55Z2016-10-27T15:12:55Z2013Bastidas M, Ariza G, Zuliani L. Reconocimiento del niño con síndrome de Down como un sujeto de crianza. Rev. Fac. Nac. Salud Pública 2013; 31(1): 102-109.0120-386Xhttp://hdl.handle.net/10495/50862256-3334ABSTRACT: o describe how the children with Down`s syndrome are recognized by mothers as subjects of parenting and accompaniment. Methodology: an ethnographic study whose participants were 20 mothers of children with Down’s syndrome. Data were collected using semi-structured interviews and field observations. Similarly, this study included a categorical analysis and a literature review. Results: given the cultural and social conceptions regarding this condition, mothers experience sadness and anxiety upon giving birth to a child with Down’s syndrome. Despite this, and thanks to coexistence and to the mother-child bond, the child is later perceived as a subject of parenting who is equal to another person without the syndrome. Discussion: children become social subjects when they achieve their goals in growth and development, and mothers can perceive this. Conclusion: by living with their sons, the mothers participating in this study discovered that their sons emerge as social persons with Down’s syndrome. The mothers also discovered that these individuals have their own potential and that it is possible to accompany them through parenting and therefore to realize themselves as mothers.RESUMEN: Describir el reconocimiento del niño con síndrome de Down como sujeto de crianza y de acompañamiento por parte de la madre. Metodología: investigación etnográfica con participación de 20 madres de niños con síndrome de Down, mediante entrevistas semiestructuradas y observaciones de campo, con análisis categorial y revisión documental. Resultados: las madres experimentan tristeza y ansiedad frente al encuentro de un niño con síndrome de Down, dadas las concepciones culturales y sociales, pero en la convivencia y en el vínculo madre-hijo surge un sujeto posible de crianza igual a otro sin síndrome. Discusión: el niño se transforma en sujeto social para su madre cuando logra metas en su crecimiento y desarrollo y así ella lo percibe. Conclusión: las madres de este estudio descubren en la convivencia con su hijo que emerge un sujeto social con la condición de síndrome de Down, con potencialidades de acompañarlo en su crianza y, por tanto, realizarse como madre.COL00274569application/pdfspaUniversidad de Antioquia, Facultad Nacional de Salud PúblicaSalud y SociedadMedellín, Colombiainfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://purl.org/coar/resource_type/c_2df8fbb1https://purl.org/redcol/resource_type/ARTArtículo de investigaciónhttp://purl.org/coar/version/c_970fb48d4fbd8a85Atribución-NoComercial-CompartirIgual 2.5 Colombia (CC BY-NC-SA 2.5 CO)info:eu-repo/semantics/openAccesshttps://creativecommons.org/licenses/by-nc-sa/2.5/co/http://purl.org/coar/access_right/c_abf2https://creativecommons.org/licenses/by-nc-sa/4.0/Sindrome de DownCrianza de niñosDiscapacidadReconocimiento del niño con síndrome de Down como un sujeto de crianzaRecognizing a child with Down’s syndrome as a subject of parentingRev. Fac. Nac. Salud PúblicaRevista Facultad Nacional de Salud Pública211217311ORIGINALBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdfBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdfArtículo de investigaciónapplication/pdf275927http://bibliotecadigital.udea.edu.co/bitstream/10495/5086/1/BastidasMiriam_2013_ReconocimientoNi%c3%b1oSindrome.pdfdd66785e1eb7c4e161450104ec58be78MD51CC-LICENSElicense_urllicense_urltext/plain; charset=utf-849http://bibliotecadigital.udea.edu.co/bitstream/10495/5086/2/license_url4afdbb8c545fd630ea7db775da747b2fMD52license_textlicense_texttext/html; charset=utf-80http://bibliotecadigital.udea.edu.co/bitstream/10495/5086/3/license_textd41d8cd98f00b204e9800998ecf8427eMD53license_rdflicense_rdfapplication/rdf+xml; charset=utf-80http://bibliotecadigital.udea.edu.co/bitstream/10495/5086/4/license_rdfd41d8cd98f00b204e9800998ecf8427eMD54LICENSElicense.txtlicense.txttext/plain; charset=utf-81748http://bibliotecadigital.udea.edu.co/bitstream/10495/5086/5/license.txt8a4605be74aa9ea9d79846c1fba20a33MD5510495/5086oai:bibliotecadigital.udea.edu.co:10495/50862021-09-01 12:27:43.674Repositorio Institucional Universidad de Antioquiaandres.perez@udea.edu.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