Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)

To describe the palliative care provided by nursing professionals in adults with amyotrophic lateral sclerosis (ALS). Methodology: In this study, a narrative review of the literature was used, which was based on the five phases proposed by Whittemore and Knafl. During the evaluation and analysis pha...

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Autores:: Borda Salazar, Laura Fernanda

Tipo de recurso:: Trabajo de grado de pregrado

Fecha de publicación:: 2023

Institución:: Universidad Antonio Nariño

Repositorio:: Repositorio UAN

Idioma:: spa

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dc.title.es_ES.fl_str_mv	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)
title	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)
spellingShingle	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA) Cuidados paliativos adulto atención de enfermería esclerosis lateral amiotrófica 610 146.23 B727c Palliative care adult nursing care Amyotrophic lateral sclerosis
title_short	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)
title_full	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)
title_fullStr	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)
title_full_unstemmed	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)
title_sort	Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)
dc.creator.fl_str_mv	Borda Salazar, Laura Fernanda
dc.contributor.advisor.spa.fl_str_mv	Hernández Pinzón, Carolina
dc.contributor.author.spa.fl_str_mv	Borda Salazar, Laura Fernanda
dc.subject.es_ES.fl_str_mv	Cuidados paliativos adulto atención de enfermería esclerosis lateral amiotrófica
topic	Cuidados paliativos adulto atención de enfermería esclerosis lateral amiotrófica 610 146.23 B727c Palliative care adult nursing care Amyotrophic lateral sclerosis
dc.subject.ddc.es_ES.fl_str_mv	610 146.23 B727c
dc.subject.keyword.es_ES.fl_str_mv	Palliative care adult nursing care Amyotrophic lateral sclerosis
description	To describe the palliative care provided by nursing professionals in adults with amyotrophic lateral sclerosis (ALS). Methodology: In this study, a narrative review of the literature was used, which was based on the five phases proposed by Whittemore and Knafl. During the evaluation and analysis phase of the data collected in the review, it was decided to create a matrix in Excel in order to facilitate the organization and processing of information.
publishDate	2023
dc.date.accessioned.none.fl_str_mv	2023-06-22T16:11:19Z
dc.date.available.none.fl_str_mv	2023-06-22T16:11:19Z
dc.date.issued.spa.fl_str_mv	2023-05-26
dc.type.spa.fl_str_mv	Trabajo de grado (Pregrado y/o Especialización)
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dc.identifier.bibliographicCitation.spa.fl_str_mv	Sukockiene E, Iancu FR, Truffert A, Héritier BAC, Genton L, Viatte V, et al. Multidisciplinary care in amyotrophic lateral sclerosis: a 4-year longitudinal observational study. Swiss Med Wkly [Internet]. 2020 Jun 9 [cited 2023 Apr 16];150(23–24). Available from: https://pubmed.ncbi.nlm.nih.gov/32579697/ Hogden A, Foley G, Henderson RD, James N, Aoun SM. Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. J Multidiscip Healthc [Internet]. 2018 May 19 [cited 2023 Apr 16];10:205–15. Available from: https://pubmed.ncbi.nlm.nih.gov/28579792/ Hospital Universitario la Paz. Guía Clínica Esclerosis Lateral Amiotrófica. [cited 2023 Mar 15]; Available from: https://adelaweb.org/wpcontent/uploads/2022/11/Guia-Cinica-Tratamiento-ELA-2022.11.pdf Organización Mundial de la Salud. Trastornos neurológicos: Desafios para la salud pública. [cited 2023 Mar 14]; Available from: https://www.paho.org/hq/dmdocuments/2008/Trastornos_Neurologicos.pdf García P, María L, Gabriel JR, Cruz González J, Emilia P, Moreno P. Apoyo emocional y psicológico en la ELA Pacientes, familiares y profesionales. [cited 2023 Mar 19]; Available from: http://www.elaandalucia.es/WP/wpcontent/uploads/Apoyo-emocional-y-psicologico-en-la-ELA.pdf Marin BB, Boumé F, Logroscino G, Couratier P, Babron MC, Leutenegger AL, et al. Variation in worldwide incidence of amyotrophic lateral sclerosis: a metaanalysis. [cited 2023 Mar 14]; Available from: https://academic.oup.com/ije/article/46/1/57/2617177 Universidad Complutense. Estudio sobre las enfermedades neurodegenerativas en españa y su impacto económico y social. 2019 [cited 2023 Mar 14]; Available from: https://neuroalianza.org/wp-content/uploads/Informe-NeuroAlianza-Completo-v-5-optimizado.pdf Gianferrari G, Martinelli I, Zucchi E, Simonini C, Fini N, Vinceti M, et al. Epidemiological, Clinical and Genetic Features of ALS in the Last Decade: A Prospective Population-Based Study in the Emilia Romagna Region of Italy. Biomedicines [Internet]. 2022 Apr 1 [cited 2023 Feb 23];10(4):819. Available from: https://www.mdpi.com/2227-9059/10/4/819/htm Rodríguez F, Oreja C, Sanz I, San José B, Santiago A, Gómez MA, et al. Outcome of patients with amyotrophic lateral sclerosis attending in a multidisciplinary care unit. Neurología (English Edition). 2011 Oct 1;26(8):455–60. Bettini M, Vicens J, Giunta DH, Rugiero M, Cristiano E. Incidence and prevalence of amyotrophic lateral sclerosis in an HMO of Buenos Aires, Argentina. http://dx.doi.org/103109/216784212013808225 [Internet]. 2017 Dec [cited 2023 Mar 14];14(7–8):598–603. Available from: https://www.tandfonline.com/doi/abs/10.3109/21678421.2013.808225
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identifier_str_mv	Sukockiene E, Iancu FR, Truffert A, Héritier BAC, Genton L, Viatte V, et al. Multidisciplinary care in amyotrophic lateral sclerosis: a 4-year longitudinal observational study. Swiss Med Wkly [Internet]. 2020 Jun 9 [cited 2023 Apr 16];150(23–24). Available from: https://pubmed.ncbi.nlm.nih.gov/32579697/ Hogden A, Foley G, Henderson RD, James N, Aoun SM. Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. J Multidiscip Healthc [Internet]. 2018 May 19 [cited 2023 Apr 16];10:205–15. Available from: https://pubmed.ncbi.nlm.nih.gov/28579792/ Hospital Universitario la Paz. Guía Clínica Esclerosis Lateral Amiotrófica. [cited 2023 Mar 15]; Available from: https://adelaweb.org/wpcontent/uploads/2022/11/Guia-Cinica-Tratamiento-ELA-2022.11.pdf Organización Mundial de la Salud. Trastornos neurológicos: Desafios para la salud pública. [cited 2023 Mar 14]; Available from: https://www.paho.org/hq/dmdocuments/2008/Trastornos_Neurologicos.pdf García P, María L, Gabriel JR, Cruz González J, Emilia P, Moreno P. Apoyo emocional y psicológico en la ELA Pacientes, familiares y profesionales. [cited 2023 Mar 19]; Available from: http://www.elaandalucia.es/WP/wpcontent/uploads/Apoyo-emocional-y-psicologico-en-la-ELA.pdf Marin BB, Boumé F, Logroscino G, Couratier P, Babron MC, Leutenegger AL, et al. Variation in worldwide incidence of amyotrophic lateral sclerosis: a metaanalysis. [cited 2023 Mar 14]; Available from: https://academic.oup.com/ije/article/46/1/57/2617177 Universidad Complutense. Estudio sobre las enfermedades neurodegenerativas en españa y su impacto económico y social. 2019 [cited 2023 Mar 14]; Available from: https://neuroalianza.org/wp-content/uploads/Informe-NeuroAlianza-Completo-v-5-optimizado.pdf Gianferrari G, Martinelli I, Zucchi E, Simonini C, Fini N, Vinceti M, et al. Epidemiological, Clinical and Genetic Features of ALS in the Last Decade: A Prospective Population-Based Study in the Emilia Romagna Region of Italy. Biomedicines [Internet]. 2022 Apr 1 [cited 2023 Feb 23];10(4):819. Available from: https://www.mdpi.com/2227-9059/10/4/819/htm Rodríguez F, Oreja C, Sanz I, San José B, Santiago A, Gómez MA, et al. Outcome of patients with amyotrophic lateral sclerosis attending in a multidisciplinary care unit. Neurología (English Edition). 2011 Oct 1;26(8):455–60. Bettini M, Vicens J, Giunta DH, Rugiero M, Cristiano E. Incidence and prevalence of amyotrophic lateral sclerosis in an HMO of Buenos Aires, Argentina. http://dx.doi.org/103109/216784212013808225 [Internet]. 2017 Dec [cited 2023 Mar 14];14(7–8):598–603. Available from: https://www.tandfonline.com/doi/abs/10.3109/21678421.2013.808225 instname:Universidad Antonio Nariño reponame:Repositorio Institucional UAN repourl:https://repositorio.uan.edu.co/
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dc.publisher.spa.fl_str_mv	Universidad Antonio Nariño
dc.publisher.program.spa.fl_str_mv	Enfermería
dc.publisher.faculty.spa.fl_str_mv	Facultad de Enfermería
dc.publisher.campus.spa.fl_str_mv	Bogotá - Circunvalar
institution	Universidad Antonio Nariño
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spelling	Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)Acceso abiertohttps://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2Hernández Pinzón, CarolinaBorda Salazar, Laura Fernanda114618279612023-06-22T16:11:19Z2023-06-22T16:11:19Z2023-05-26http://repositorio.uan.edu.co/handle/123456789/8078Sukockiene E, Iancu FR, Truffert A, Héritier BAC, Genton L, Viatte V, et al. Multidisciplinary care in amyotrophic lateral sclerosis: a 4-year longitudinal observational study. Swiss Med Wkly [Internet]. 2020 Jun 9 [cited 2023 Apr 16];150(23–24). Available from: https://pubmed.ncbi.nlm.nih.gov/32579697/Hogden A, Foley G, Henderson RD, James N, Aoun SM. Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. J Multidiscip Healthc [Internet]. 2018 May 19 [cited 2023 Apr 16];10:205–15. Available from: https://pubmed.ncbi.nlm.nih.gov/28579792/Hospital Universitario la Paz. Guía Clínica Esclerosis Lateral Amiotrófica. [cited 2023 Mar 15]; Available from: https://adelaweb.org/wpcontent/uploads/2022/11/Guia-Cinica-Tratamiento-ELA-2022.11.pdfOrganización Mundial de la Salud. Trastornos neurológicos: Desafios para la salud pública. [cited 2023 Mar 14]; Available from: https://www.paho.org/hq/dmdocuments/2008/Trastornos_Neurologicos.pdfGarcía P, María L, Gabriel JR, Cruz González J, Emilia P, Moreno P. Apoyo emocional y psicológico en la ELA Pacientes, familiares y profesionales. [cited 2023 Mar 19]; Available from: http://www.elaandalucia.es/WP/wpcontent/uploads/Apoyo-emocional-y-psicologico-en-la-ELA.pdfMarin BB, Boumé F, Logroscino G, Couratier P, Babron MC, Leutenegger AL, et al. Variation in worldwide incidence of amyotrophic lateral sclerosis: a metaanalysis. [cited 2023 Mar 14]; Available from: https://academic.oup.com/ije/article/46/1/57/2617177Universidad Complutense. Estudio sobre las enfermedades neurodegenerativas en españa y su impacto económico y social. 2019 [cited 2023 Mar 14]; Available from: https://neuroalianza.org/wp-content/uploads/Informe-NeuroAlianza-Completo-v-5-optimizado.pdfGianferrari G, Martinelli I, Zucchi E, Simonini C, Fini N, Vinceti M, et al. Epidemiological, Clinical and Genetic Features of ALS in the Last Decade: A Prospective Population-Based Study in the Emilia Romagna Region of Italy. Biomedicines [Internet]. 2022 Apr 1 [cited 2023 Feb 23];10(4):819. Available from: https://www.mdpi.com/2227-9059/10/4/819/htmRodríguez F, Oreja C, Sanz I, San José B, Santiago A, Gómez MA, et al. Outcome of patients with amyotrophic lateral sclerosis attending in a multidisciplinary care unit. Neurología (English Edition). 2011 Oct 1;26(8):455–60.Bettini M, Vicens J, Giunta DH, Rugiero M, Cristiano E. Incidence and prevalence of amyotrophic lateral sclerosis in an HMO of Buenos Aires, Argentina. http://dx.doi.org/103109/216784212013808225 [Internet]. 2017 Dec [cited 2023 Mar 14];14(7–8):598–603. Available from: https://www.tandfonline.com/doi/abs/10.3109/21678421.2013.808225instname:Universidad Antonio Nariñoreponame:Repositorio Institucional UANrepourl:https://repositorio.uan.edu.co/To describe the palliative care provided by nursing professionals in adults with amyotrophic lateral sclerosis (ALS). Methodology: In this study, a narrative review of the literature was used, which was based on the five phases proposed by Whittemore and Knafl. During the evaluation and analysis phase of the data collected in the review, it was decided to create a matrix in Excel in order to facilitate the organization and processing of information.Describir los cuidados paliativos realizados por profesionales de enfermería en el adulto con esclerosis lateral amiotrófica (ELA). Metodología: En este estudio, se empleó una revisión narrativa de la literatura, la cual se fundamentó en las cinco fases propuestas por Whittemore y Knafl. Durante la fase de evaluación y análisis de los datos recopilados en la revisión, se optó por crear una matriz en Excel con el fin de facilitar la organización y el procesamiento de la información.Enfermera(o)PregradoPresencialMonografíaspaUniversidad Antonio NariñoEnfermeríaFacultad de EnfermeríaBogotá - CircunvalarCuidados paliativosadultoatención de enfermeríaesclerosis lateral amiotrófica610146.23 B727cPalliative careadultnursing careAmyotrophic lateral sclerosisCuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)Trabajo de grado (Pregrado y/o Especialización)http://purl.org/coar/resource_type/c_7a1fhttp://purl.org/coar/version/c_970fb48d4fbd8a85GeneralCC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8811https://repositorio.uan.edu.co/bitstreams/cafd6c0e-f863-4b26-997c-cd39c274ea0d/download9868ccc48a14c8d591352b6eaf7f6239MD54ORIGINAL2023_LauraFernandaBordasalazar.pdf2023_LauraFernandaBordasalazar.pdfMONOGRAFIAapplication/pdf682298https://repositorio.uan.edu.co/bitstreams/f6ffb39e-2e41-484d-a35b-3ec304fa6fcb/downloaddf4f4753640c22300c2f552fc3175144MD512023_LauraFernandaBordasalazar_Autorizacion. pdf2023_LauraFernandaBordasalazar_Autorizacion. pdfAUTORIZACIONapplication/pdf231839https://repositorio.uan.edu.co/bitstreams/387eb06a-a007-4c97-a46b-7c232937348c/downloaddcd618c1ba8b9c36e48db7f64c7fbfa2MD522023_LauraFernandaBordasalazar_Acta. pdf2023_LauraFernandaBordasalazar_Acta. pdfACTAapplication/pdf188867https://repositorio.uan.edu.co/bitstreams/2a859984-29f8-4277-9007-b24249bb56ee/download9b80f9638e3ab6701f198e74b99e2b7bMD53123456789/8078oai:repositorio.uan.edu.co:123456789/80782024-10-09 23:31:57.631https://creativecommons.org/licenses/by-nc-nd/4.0/Acceso abiertoopen.accesshttps://repositorio.uan.edu.coRepositorio Institucional UANalertas.repositorio@uan.edu.co

Cuidados paliativos realizados por profesionales de enfermería en adultos con Esclerosis Lateral Amiotrófica (ELA)

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