Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review

18 páginas

Autores:: Weissheimer, Gisele
Mazul Santana, Julia
Trevisan Nóbrega Martins Ruthes, Victória Beatriz
Azevedo Mazza, Verônica De

Tipo de recurso:

Fecha de publicación:: 2020

Institución:: Universidad de la Sabana

Repositorio:: Repositorio Universidad de la Sabana

Idioma:: eng

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dc.title.es_CO.fl_str_mv	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
dc.title.alternative.es_CO.fl_str_mv	Información necesaria para las familias de niños con desorden del espectro autista: una revisión integradora Informações necessárias às famílias de crianças com transtorno do espectro autista: uma revisão integrativa
title	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
spellingShingle	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review Desorden del espectro autista Acceso a la información Apoyo social Familia
title_short	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
title_full	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
title_fullStr	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
title_full_unstemmed	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
title_sort	Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
dc.creator.fl_str_mv	Weissheimer, Gisele Mazul Santana, Julia Trevisan Nóbrega Martins Ruthes, Victória Beatriz Azevedo Mazza, Verônica De
dc.contributor.author.none.fl_str_mv	Weissheimer, Gisele Mazul Santana, Julia Trevisan Nóbrega Martins Ruthes, Victória Beatriz Azevedo Mazza, Verônica De
dc.subject.other.spa.fl_str_mv	Desorden del espectro autista Acceso a la información Apoyo social
topic	Desorden del espectro autista Acceso a la información Apoyo social Familia
dc.subject.other.none.fl_str_mv	Familia
description	18 páginas
publishDate	2020
dc.date.accessioned.none.fl_str_mv	2020-11-12T15:57:50Z
dc.date.available.none.fl_str_mv	2020-11-12T15:57:50Z
dc.date.issued.none.fl_str_mv	2020-07-13
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dc.identifier.citation.es_CO.fl_str_mv	Weissheimer G, Santana JM, Ruthes VBTNM, Mazza VA. Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review. Aquichan. 2020;20(2):e2028. DOI: https://doi.org/10.5294/aqui.2020.20.2.8
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identifier_str_mv	Weissheimer G, Santana JM, Ruthes VBTNM, Mazza VA. Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review. Aquichan. 2020;20(2):e2028. DOI: https://doi.org/10.5294/aqui.2020.20.2.8 1657-5997 2027-5374
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spelling	Weissheimer, GiseleMazul Santana, JuliaTrevisan Nóbrega Martins Ruthes, Victória BeatrizAzevedo Mazza, Verônica De2020-11-12T15:57:50Z2020-11-12T15:57:50Z2020-07-13Weissheimer G, Santana JM, Ruthes VBTNM, Mazza VA. Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review. Aquichan. 2020;20(2):e2028. DOI: https://doi.org/10.5294/aqui.2020.20.2.81657-5997https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13377https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13377/6045http://hdl.handle.net/10818/44219https://doi.org/10.5294/aqui.2020.20.2.82027-537418 páginasObjetivo: identificar las evidencias disponibles acerca de las informaciones necesarias para las familias de niños con desorden del espectro autista (DEA). Método: revisión integradora de la literatura, desde seis bases de datos con descriptores específicos para cada una. Se seleccionaron estudios publicados sobre el tema entre enero de 2014 y febrero de 2020, disponibles de forma integral y gratuita. Para síntesis y análisis de los datos, se llevó a cabo una categorización temática. Se incluyeron 41 artículos. Resultados: se obtuvieron dos categorías temáticas. En la primera, “necesidad de información”, se identificaron la falta de conocimiento de las familias acerca del DEA (tratamiento, cómo manejar la conducta de los niños en esta condición y perspectivas futuras), los derechos del niño con DEA y los recursos para el acceso a las informaciones. En la segunda categoría, “fuentes de soporte informacional accedidas por las familias”, se encontraron las fuentes informales (familiares, amigos, vecinos y padres de niños con DEA), formales (profesionales e instituciones), internet y otros recursos (libros, workshops, podcasts). Se evidenciaron aspectos positivos y negativos en el empleo de tales fuentes. Conclusiones: se encontró un patrón de informaciones requeridas por los familiares, así como de fuentes utilizadas para obtenerlas. Los hallazgos son relevantes para subsidiar la organización de fuentes de soporte informacional a las familias y a la comunidad.Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disor-der(ASD). Method: An integrative literature review carried out in sixdatabases with specific descriptors for each one. Studies published on the theme between January2014 and February2020 available in full and free of charge were selected. For synthesis and analysis of data, thematic categorization was performed. 41articles were included. Results: Twothematic categories were obtained. In the first category(“need for information”), the families’ lack of knowledge about ASD(treatment, how to deal with the child’s behavior, and fu-ture perspectives), rights of the child with ASD, and resources to obtain information were identified. The second category(“information support sources accessed by the families”) comprised informal sources(family members, friends, neighbors, and parents of children with ASD), formal sources(professionals and institutions), the Internet, and other resources(books, workshops, podcasts). Positive and negative aspects were found in the use of these sources. Conclusions: A pattern of information requested by the family was verified, as well as sources used to obtain it. These data are relevant to support the organization of sources of informational support for the families and the community.application/pdfengUniversidad de La SabanaDirección de PublicacionesAquichan. 2020;20(2):e2028Attribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/http://purl.org/coar/access_right/c_abf2instname:Universidad de La Sabanareponame:Intellectum Repositorio Universidad de La SabanaDesorden del espectro autistaAcceso a la informaciónApoyo socialFamiliaNecessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative ReviewInformación necesaria para las familias de niños con desorden del espectro autista: una revisión integradoraInformações necessárias às famílias de crianças com transtorno do espectro autista: uma revisão integrativaarticlepublishedVersionhttp://purl.org/coar/version/c_970fb48d4fbd8a85http://purl.org/coar/resource_type/c_6501Eds JB. 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DOI: https://doi.org/10.14201/scero2015464724CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8805https://intellectum.unisabana.edu.co/bitstream/10818/44219/2/license_rdf4460e5956bc1d1639be9ae6146a50347MD52LICENSElicense.txtlicense.txttext/plain; charset=utf-8498https://intellectum.unisabana.edu.co/bitstream/10818/44219/3/license.txtf52a2cfd4df262e08e9b300d62c85cabMD5310818/44219oai:intellectum.unisabana.edu.co:10818/442192021-06-05 18:17:57.979Intellectum Universidad de la Sabanacontactointellectum@unisabana.edu.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

Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review

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