Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain

11 páginas

Autores:: Riquelme Galindo, Jorge
García Sanjuán, Sofía
Lillo Crespo, Manuel
Martorell Poveda, Maria Antonia

Tipo de recurso:

Fecha de publicación:: 2020

Institución:: Universidad de la Sabana

Repositorio:: Repositorio Universidad de la Sabana

Idioma:: eng

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dc.title.es_CO.fl_str_mv	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
dc.title.alternative.es_CO.fl_str_mv	Experiencia de personas con Alzheimer en fases leves y moderadas en España A experiência de pessoas com Alzheimer na Espanha nas fases leve e moderada
title	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
spellingShingle	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain Demencia Enfermedad de alzheimer Investigación cualitativa Acontecimientos que cambian la vida Entrevistas
title_short	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_full	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_fullStr	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_full_unstemmed	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_sort	Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
dc.creator.fl_str_mv	Riquelme Galindo, Jorge García Sanjuán, Sofía Lillo Crespo, Manuel Martorell Poveda, Maria Antonia
dc.contributor.author.none.fl_str_mv	Riquelme Galindo, Jorge García Sanjuán, Sofía Lillo Crespo, Manuel Martorell Poveda, Maria Antonia
dc.subject.other.spa.fl_str_mv	Demencia Enfermedad de alzheimer Investigación cualitativa Acontecimientos que cambian la vida Entrevistas
topic	Demencia Enfermedad de alzheimer Investigación cualitativa Acontecimientos que cambian la vida Entrevistas
description	11 páginas
publishDate	2020
dc.date.issued.none.fl_str_mv	2020-12-04
dc.date.accessioned.none.fl_str_mv	2021-02-02T13:28:18Z
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dc.identifier.citation.es_CO.fl_str_mv	Riquelme-Galindo, J., García-Sanjuán, S., Lillo-Crespo, M., & Martorell-Poveda, M. A. (2020). Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain. Aquichan, 20(4), e2044. https://doi.org/10.5294/aqui.2020.20.4.4
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identifier_str_mv	Riquelme-Galindo, J., García-Sanjuán, S., Lillo-Crespo, M., & Martorell-Poveda, M. A. (2020). Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain. Aquichan, 20(4), e2044. https://doi.org/10.5294/aqui.2020.20.4.4 1657-5997
url	https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13477 http://hdl.handle.net/10818/46620 https://doi.org/10.5294/aqui.2020.20.4.4
dc.language.iso.es_CO.fl_str_mv	eng
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spelling	Riquelme Galindo, JorgeGarcía Sanjuán, SofíaLillo Crespo, ManuelMartorell Poveda, Maria Antonia2021-02-02T13:28:18Z2021-02-02T13:28:18Z2020-12-04Riquelme-Galindo, J., García-Sanjuán, S., Lillo-Crespo, M., & Martorell-Poveda, M. A. (2020). Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain. Aquichan, 20(4), e2044. https://doi.org/10.5294/aqui.2020.20.4.41657-5997https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13477http://hdl.handle.net/10818/46620https://doi.org/10.5294/aqui.2020.20.4.411 páginasObjetivo: analizar el significado que adquiere la enfermedad para las personas afectadas por Demencia, proporcionándoles voz. Material y métodos: aproximación a la fenomenología descriptiva a través de entrevistas a personas de ambos sexos y mayores de 50 años residentes en Tarragona (España) con un diagnóstico de Demencia leve o moderada, principalmente enfermedad tipo Alzheimer. Resultados: surgieron tres grandes temáticas: 1) normalización de la pérdida de memoria en fases incipientes en relación al proceso natural de envejecimiento; 2) autopercepción de que existe un problema de memoria instaurándose que se disimula frente a su entorno y 3) procesos de adaptación y aprendizaje de estrategias para convivir con su condición tras el diagnóstico. Conclusiones: la falta de infraestructuras especializadas dentro del sistema sanitario en materia de cuidados, programas de prevención y detección precoz son los aspectos más evidentes remarcados.Objective: To analyze the meaning of dementia by those affected by it, and to give them a voice. Material and methods: Descriptive phenomenology through interviews with people of both genders who are over 50 years old and living in Tarragona (Spain), with a diag-nosis of mild or moderate dementia, mainly related to Alzheimer’s disease. Results: Three main themes emerged: 1) normalization of memory loss in early stages as part of the natural aging process; 2) self-awareness of progressive memory decline, which is concealed from others, and 3) adaptation processes and strategies to coexist with their condition after diagnosis. Conclusions: The most evident features were the lack of specialized infrastructures within the health system in terms of care, prevention programs, and early detection.application/pdfengUniversidad de La SabanaDirección de PublicacionesAquichan, 20(4), e2044Attribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/http://purl.org/coar/access_right/c_abf2instname:Universidad de La Sabanareponame:Intellectum Repositorio Universidad de La SabanaDemenciaEnfermedad de alzheimerInvestigación cualitativaAcontecimientos que cambian la vidaEntrevistasExperience of People in Mild and Moderate Stages of Alzheimer’s Disease in SpainExperiencia de personas con Alzheimer en fases leves y moderadas en EspañaA experiência de pessoas com Alzheimer na Espanha nas fases leve e moderadaarticlepublishedVersionhttp://purl.org/coar/version/c_970fb48d4fbd8a85http://purl.org/coar/resource_type/c_6501Organización Mundial de la Salud. Demencia. Notas Descriptivas [Internet]. 2019 sept. 19. Disponible en: http://www.who.int/es/news-room/fact-sheets/detail/dementiaSadana R, Soucat A, Beard J. Boletín de la Organización Mundial de la Salud. Disponible en: http://www.who.int/bulletin/volumes/96/1/17-204214/es/Niu H, Álvarez-Álvarez I, Guillén-Grima F, Aguinaga-Ontoso I. Prevalencia e incidencia de la enfermedad de Alzheimer en Europa: metaanálisis. Neurología. 2017;32(8):523-532. DOI: https://doi.org/10.1016/j.nrl.2016.02.016Escalante E, Páramo M. Aproximación al análisis de datos cualitativos [Internet]. Mendoza: Universidad del Aconcagua; 2011. Disponible en: http://bibliotecadigital.uda.edu.ar/objetos_digitales/177/aproximacion-al-analisis-de-datos-cualitativos-t1-y-2.pdfLeón-Salas B, Martínez-Martín P. Revisión de instrumentos de calidad de vida utilizados en personas con demencia: II. Instrumentos específicos. Psicogeriatría. 2010;2(1):15-24. 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DOI: https://doi.org/10.1136/bmj.c4184CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8805https://intellectum.unisabana.edu.co/bitstream/10818/46620/2/license_rdf4460e5956bc1d1639be9ae6146a50347MD52LICENSElicense.txtlicense.txttext/plain; charset=utf-8498https://intellectum.unisabana.edu.co/bitstream/10818/46620/3/license.txtf52a2cfd4df262e08e9b300d62c85cabMD5310818/46620oai:intellectum.unisabana.edu.co:10818/466202021-06-21 19:26:40.897Intellectum Universidad de la Sabanacontactointellectum@unisabana.edu.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

Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain

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