Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain

11 páginas

Autores:
Riquelme Galindo, Jorge
García Sanjuán, Sofía
Lillo Crespo, Manuel
Martorell Poveda, Maria Antonia
Tipo de recurso:
Fecha de publicación:
2020
Institución:
Universidad de la Sabana
Repositorio:
Repositorio Universidad de la Sabana
Idioma:
eng
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oai:intellectum.unisabana.edu.co:10818/46620
Acceso en línea:
https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13477
http://hdl.handle.net/10818/46620
https://doi.org/10.5294/aqui.2020.20.4.4
Palabra clave:
Demencia
Enfermedad de alzheimer
Investigación cualitativa
Acontecimientos que cambian la vida
Entrevistas
Rights
License
Attribution-NonCommercial-NoDerivatives 4.0 International
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dc.title.es_CO.fl_str_mv Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
dc.title.alternative.es_CO.fl_str_mv Experiencia de personas con Alzheimer en fases leves y moderadas en España
A experiência de pessoas com Alzheimer na Espanha nas fases leve e moderada
title Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
spellingShingle Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
Demencia
Enfermedad de alzheimer
Investigación cualitativa
Acontecimientos que cambian la vida
Entrevistas
title_short Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_full Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_fullStr Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_full_unstemmed Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
title_sort Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain
dc.creator.fl_str_mv Riquelme Galindo, Jorge
García Sanjuán, Sofía
Lillo Crespo, Manuel
Martorell Poveda, Maria Antonia
dc.contributor.author.none.fl_str_mv Riquelme Galindo, Jorge
García Sanjuán, Sofía
Lillo Crespo, Manuel
Martorell Poveda, Maria Antonia
dc.subject.other.spa.fl_str_mv Demencia
Enfermedad de alzheimer
Investigación cualitativa
Acontecimientos que cambian la vida
Entrevistas
topic Demencia
Enfermedad de alzheimer
Investigación cualitativa
Acontecimientos que cambian la vida
Entrevistas
description 11 páginas
publishDate 2020
dc.date.issued.none.fl_str_mv 2020-12-04
dc.date.accessioned.none.fl_str_mv 2021-02-02T13:28:18Z
dc.date.available.none.fl_str_mv 2021-02-02T13:28:18Z
dc.type.es_CO.fl_str_mv article
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dc.identifier.citation.es_CO.fl_str_mv Riquelme-Galindo, J., García-Sanjuán, S., Lillo-Crespo, M., & Martorell-Poveda, M. A. (2020). Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain. Aquichan, 20(4), e2044. https://doi.org/10.5294/aqui.2020.20.4.4
dc.identifier.issn.none.fl_str_mv 1657-5997
dc.identifier.other.none.fl_str_mv https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13477
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dc.identifier.doi.none.fl_str_mv https://doi.org/10.5294/aqui.2020.20.4.4
identifier_str_mv Riquelme-Galindo, J., García-Sanjuán, S., Lillo-Crespo, M., & Martorell-Poveda, M. A. (2020). Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain. Aquichan, 20(4), e2044. https://doi.org/10.5294/aqui.2020.20.4.4
1657-5997
url https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13477
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https://doi.org/10.5294/aqui.2020.20.4.4
dc.language.iso.es_CO.fl_str_mv eng
language eng
dc.relation.ispartofseries.none.fl_str_mv Aquichan, 20(4), e2044
dc.rights.*.fl_str_mv Attribution-NonCommercial-NoDerivatives 4.0 International
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dc.publisher.es_CO.fl_str_mv Universidad de La Sabana
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spelling Riquelme Galindo, JorgeGarcía Sanjuán, SofíaLillo Crespo, ManuelMartorell Poveda, Maria Antonia2021-02-02T13:28:18Z2021-02-02T13:28:18Z2020-12-04Riquelme-Galindo, J., García-Sanjuán, S., Lillo-Crespo, M., & Martorell-Poveda, M. A. (2020). Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain. Aquichan, 20(4), e2044. https://doi.org/10.5294/aqui.2020.20.4.41657-5997https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13477http://hdl.handle.net/10818/46620https://doi.org/10.5294/aqui.2020.20.4.411 páginasObjetivo: analizar el significado que adquiere la enfermedad para las personas afectadas por Demencia, proporcionándoles voz. Material y métodos: aproximación a la fenomenología descriptiva a través de entrevistas a personas de ambos sexos y mayores de 50 años residentes en Tarragona (España) con un diagnóstico de Demencia leve o moderada, principalmente enfermedad tipo Alzheimer. Resultados: surgieron tres grandes temáticas: 1) normalización de la pérdida de memoria en fases incipientes en relación al proceso natural de envejecimiento; 2) autopercepción de que existe un problema de memoria instaurándose que se disimula frente a su entorno y 3) procesos de adaptación y aprendizaje de estrategias para convivir con su condición tras el diagnóstico. Conclusiones: la falta de infraestructuras especializadas dentro del sistema sanitario en materia de cuidados, programas de prevención y detección precoz son los aspectos más evidentes remarcados.Objective: To analyze the meaning of dementia by those affected by it, and to give them a voice. Material and methods: Descriptive phenomenology through interviews with people of both genders who are over 50 years old and living in Tarragona (Spain), with a diag-nosis of mild or moderate dementia, mainly related to Alzheimer’s disease. Results: Three main themes emerged: 1) normalization of memory loss in early stages as part of the natural aging process; 2) self-awareness of progressive memory decline, which is concealed from others, and 3) adaptation processes and strategies to coexist with their condition after diagnosis. Conclusions: The most evident features were the lack of specialized infrastructures within the health system in terms of care, prevention programs, and early detection.application/pdfengUniversidad de La SabanaDirección de PublicacionesAquichan, 20(4), e2044Attribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/http://purl.org/coar/access_right/c_abf2instname:Universidad de La Sabanareponame:Intellectum Repositorio Universidad de La SabanaDemenciaEnfermedad de alzheimerInvestigación cualitativaAcontecimientos que cambian la vidaEntrevistasExperience of People in Mild and Moderate Stages of Alzheimer’s Disease in SpainExperiencia de personas con Alzheimer en fases leves y moderadas en EspañaA experiência de pessoas com Alzheimer na Espanha nas fases leve e moderadaarticlepublishedVersionhttp://purl.org/coar/version/c_970fb48d4fbd8a85http://purl.org/coar/resource_type/c_6501Organización Mundial de la Salud. Demencia. 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DOI: https://doi.org/10.1136/bmj.c4184CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8805https://intellectum.unisabana.edu.co/bitstream/10818/46620/2/license_rdf4460e5956bc1d1639be9ae6146a50347MD52LICENSElicense.txtlicense.txttext/plain; charset=utf-8498https://intellectum.unisabana.edu.co/bitstream/10818/46620/3/license.txtf52a2cfd4df262e08e9b300d62c85cabMD5310818/46620oai:intellectum.unisabana.edu.co:10818/466202021-06-21 19:26:40.897Intellectum Universidad de la Sabanacontactointellectum@unisabana.edu.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