Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación

93 Páginas.

Autores:
Gamboa Niño, Zareth del Pilar
Tipo de recurso:
Fecha de publicación:
2012
Institución:
Universidad de la Sabana
Repositorio:
Repositorio Universidad de la Sabana
Idioma:
spa
OAI Identifier:
oai:intellectum.unisabana.edu.co:10818/7472
Acceso en línea:
http://hdl.handle.net/10818/7472
Palabra clave:
Cuidadores-Investigaciones
Parálisis cerebral en niños-Cuidados a largo plazo-Investigaciones
Atención al enfermo-Investigaciones
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License
http://purl.org/coar/access_right/c_abf2
id REPOUSABA2_84b021cc305add0258028065f94d1d00
oai_identifier_str oai:intellectum.unisabana.edu.co:10818/7472
network_acronym_str REPOUSABA2
network_name_str Repositorio Universidad de la Sabana
repository_id_str
dc.title.es_CO.fl_str_mv Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
title Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
spellingShingle Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
Cuidadores-Investigaciones
Parálisis cerebral en niños-Cuidados a largo plazo-Investigaciones
Atención al enfermo-Investigaciones
title_short Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
title_full Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
title_fullStr Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
title_full_unstemmed Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
title_sort Percepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestación
dc.creator.fl_str_mv Gamboa Niño, Zareth del Pilar
dc.contributor.advisor.none.fl_str_mv Ortiz Corredor, Fernando
Gutiérrez Ramírez, Miguel Angel
Gómez Guevara, María Catalina
Torres, Ana Marcela
Aristizabal, Claudia
dc.contributor.author.none.fl_str_mv Gamboa Niño, Zareth del Pilar
dc.subject.es_CO.fl_str_mv Cuidadores-Investigaciones
Parálisis cerebral en niños-Cuidados a largo plazo-Investigaciones
Atención al enfermo-Investigaciones
topic Cuidadores-Investigaciones
Parálisis cerebral en niños-Cuidados a largo plazo-Investigaciones
Atención al enfermo-Investigaciones
description 93 Páginas.
publishDate 2012
dc.date.created.none.fl_str_mv 2012
dc.date.accessioned.none.fl_str_mv 2013-05-23T16:14:38Z
dc.date.available.none.fl_str_mv 2013-05-23T16:14:38Z
dc.date.issued.none.fl_str_mv 2013-05-23
dc.type.none.fl_str_mv bachelorThesis
dc.type.coarversion.fl_str_mv http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.coar.fl_str_mv http://purl.org/coar/resource_type/c_7a1f
dc.type.local.none.fl_str_mv Tesis de especialización
dc.type.hasVersion.none.fl_str_mv publishedVersion
dc.identifier.citation.none.fl_str_mv Salud. OMdl. Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud. In: OMS, editor. Ginebra; 2001
Sanchez P. Discapacidad, familia y logro escolar Revista Iberoamericana de Educación. 2006;40(2):2-10.
Demers L, Fuhrer MJ, Jutai J, Lenker J, Depa M, De Ruyter F. A conceptual framework of outcomes for caregivers of assistive technology users. Am J Phys Med Rehabil. 2009 Aug;88(8):645-55; quiz 56-8, 91
Koman LA, Smith BP, Shilt JS. Cerebral palsy. Lancet. 2004 May 15;363(9421):1619-31
Himpens E, Van den Broeck C, Oostra A, Calders P, Vanhaesebrouck P. Prevalence, type, distribution, and severity of cerebral palsy in relation to gestational age: a meta-analytic review. Dev Med Child Neurol. 2008 May;50(5):334-40
Robaina G, Riesgo S, M R. Definición y clasificación de la parálisis cerebral: ¿un problema ya resuelto? . Revista de Neurología. 2007;45(2):110-7
Reddihough DS, Collins KJ. The epidemiology and causes of cerebral palsy. Aust J Physiother. 2003;49(1):7-12
Clark SL, Hankins GD. Temporal and demographic trends in cerebral palsy--fact and fiction. Am J Obstet Gynecol. 2003 Mar;188(3):628-33
Himmelmann K, Hagberg G, Beckung E, Hagberg B, Uvebrant P. The changing panorama of cerebral palsy in Sweden. IX. Prevalence and origin in the birth-year period 1995-1998. Acta Paediatr. 2005 Mar;94(3):287-94
Odding E, Roebroeck ME, Stam HJ. The epidemiology of cerebral palsy: incidence, impairments and risk factors. Disabil Rehabil. 2006 Feb 28;28(4):183-91.
Bhushan V, Paneth N, Kiely JL. Impact of improved survival of very low birth weight infants on recent secular trends in the prevalence of cerebral palsy. Pediatrics. 1993 Jun;91(6):1094-100
Robaina G, Riesgo S. Prevalencia y tendencias de la parálisis cerebral en Matanzas: años de nacimiento 1996-2002. Panorama Cuba y salud. 2009;4(3):22-8
Rosen MG, Dickinson JC. The incidence of cerebral palsy. Am J Obstet Gynecol. 1992 Aug;167(2):417-23.
Suzuki J, Ito M. Incidence patterns of cerebral palsy in Shiga Prefecture, Japan, 1977-1991. Brain Dev. 2002 Jan;24(1):39-48
Colver AF, Gibson M, Hey EN, Jarvis SN, Mackie PC, Richmond S. Increasing rates of cerebral palsy across the severity spectrum in north-east England 1964-1993. The North of England Collaborative Cerebral Palsy Survey. Arch Dis Child Fetal Neonatal Ed. 2000 Jul;83(1):F7-F12.
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dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/10818/7472
dc.identifier.local.none.fl_str_mv 159454
TE05852
identifier_str_mv Salud. OMdl. Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud. In: OMS, editor. Ginebra; 2001
Sanchez P. Discapacidad, familia y logro escolar Revista Iberoamericana de Educación. 2006;40(2):2-10.
Demers L, Fuhrer MJ, Jutai J, Lenker J, Depa M, De Ruyter F. A conceptual framework of outcomes for caregivers of assistive technology users. Am J Phys Med Rehabil. 2009 Aug;88(8):645-55; quiz 56-8, 91
Koman LA, Smith BP, Shilt JS. Cerebral palsy. Lancet. 2004 May 15;363(9421):1619-31
Himpens E, Van den Broeck C, Oostra A, Calders P, Vanhaesebrouck P. Prevalence, type, distribution, and severity of cerebral palsy in relation to gestational age: a meta-analytic review. Dev Med Child Neurol. 2008 May;50(5):334-40
Robaina G, Riesgo S, M R. Definición y clasificación de la parálisis cerebral: ¿un problema ya resuelto? . Revista de Neurología. 2007;45(2):110-7
Reddihough DS, Collins KJ. The epidemiology and causes of cerebral palsy. Aust J Physiother. 2003;49(1):7-12
Clark SL, Hankins GD. Temporal and demographic trends in cerebral palsy--fact and fiction. Am J Obstet Gynecol. 2003 Mar;188(3):628-33
Himmelmann K, Hagberg G, Beckung E, Hagberg B, Uvebrant P. The changing panorama of cerebral palsy in Sweden. IX. Prevalence and origin in the birth-year period 1995-1998. Acta Paediatr. 2005 Mar;94(3):287-94
Odding E, Roebroeck ME, Stam HJ. The epidemiology of cerebral palsy: incidence, impairments and risk factors. Disabil Rehabil. 2006 Feb 28;28(4):183-91.
Bhushan V, Paneth N, Kiely JL. Impact of improved survival of very low birth weight infants on recent secular trends in the prevalence of cerebral palsy. Pediatrics. 1993 Jun;91(6):1094-100
Robaina G, Riesgo S. Prevalencia y tendencias de la parálisis cerebral en Matanzas: años de nacimiento 1996-2002. Panorama Cuba y salud. 2009;4(3):22-8
Rosen MG, Dickinson JC. The incidence of cerebral palsy. Am J Obstet Gynecol. 1992 Aug;167(2):417-23.
Suzuki J, Ito M. Incidence patterns of cerebral palsy in Shiga Prefecture, Japan, 1977-1991. Brain Dev. 2002 Jan;24(1):39-48
Colver AF, Gibson M, Hey EN, Jarvis SN, Mackie PC, Richmond S. Increasing rates of cerebral palsy across the severity spectrum in north-east England 1964-1993. The North of England Collaborative Cerebral Palsy Survey. Arch Dis Child Fetal Neonatal Ed. 2000 Jul;83(1):F7-F12.
paho.org. Perfil en Salud. Salud en las Américas. Colombia; 2007 [updated 2007; cited 25 octubre 2010]; Available from: www.paho.org/hia/archivosvol2/paisesesp/Colombia%20Spanish.pdf.
cdc.gov. Economic costs associated with mental retardation, cerebral palsy, hearing loss, and vision impairment United States; 2003 [updated 2003; cited 12 septiembre de 2010]; Available from: http://www.cdc.gov/ncbddd/dd/cp3.htm#common
dane.gov.co. Información del DANE, Demográficas, . Bogotá- Colombia; 2010 [updated 2010 21 octubre 2010; cited 23 de octubre de 2010]; Available from: http://www.dane.gov.co/daneweb_V09/index.php?option=com_content&view=article&id=808Itemid% 3D120&Itemid=120.
Blair E. 'Life expectancy among people with cerebral palsy in Western Australia'. Dev Med Child Neurol. 2001 Nov;43(11):792
Hutton JL, Cooke T, Pharoah PO. Life expectancy in children with cerebral palsy. BMJ. 1994 Aug 13;309(6952):431-5.
Hutton JL, Pharoah PO. Life expectancy in severe cerebral palsy. Arch Dis Child. 2006 Mar;91(3):254-8.
Martinez L, Robles T, Ramos B. Carga percibida del cuidador primario del paciente con parálisis cerebral infantil severa del centro de rehabilitación infantil Teletón. Revista Mexicana de medicina física y rehabilitación. 2008;20:23-9
Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005 Jun;115(6):e626-36.
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spelling Ortiz Corredor, FernandoGutiérrez Ramírez, Miguel AngelGómez Guevara, María CatalinaTorres, Ana MarcelaAristizabal, ClaudiaGamboa Niño, Zareth del PilarEspecialista en Medicina Física y Rehabilitación2013-05-23T16:14:38Z2013-05-23T16:14:38Z20122013-05-23Salud. OMdl. Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud. In: OMS, editor. Ginebra; 2001Sanchez P. Discapacidad, familia y logro escolar Revista Iberoamericana de Educación. 2006;40(2):2-10.Demers L, Fuhrer MJ, Jutai J, Lenker J, Depa M, De Ruyter F. A conceptual framework of outcomes for caregivers of assistive technology users. Am J Phys Med Rehabil. 2009 Aug;88(8):645-55; quiz 56-8, 91Koman LA, Smith BP, Shilt JS. Cerebral palsy. Lancet. 2004 May 15;363(9421):1619-31Himpens E, Van den Broeck C, Oostra A, Calders P, Vanhaesebrouck P. Prevalence, type, distribution, and severity of cerebral palsy in relation to gestational age: a meta-analytic review. 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Revista Mexicana de medicina física y rehabilitación. 2008;20:23-9Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005 Jun;115(6):e626-36.Ostensjo S, Carlberg EB, Vollestad NK. The use and impact of assistive devices and other environmental modifications on everyday activities and care in young children with cerebral palsy. Disabil Rehabil. 2005 Jul 22;27(14):849-61.Lepage C, Noreau L, Bernard PM, Fougeyrollas P. Profile of handicap situations in children with cerebral palsy. Scand J Rehabil Med. 1998 Dec;30(4):263-72.Lach LM, Kohen DE, Garner RE, Brehaut JC, Miller AR, Klassen AF, et al. The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders. Disabil Rehabil. 2009;31(9):741-52.Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M, et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004 Aug;114(2):e182-91.Feldman M, McDonald L, Serbin L, Stack D, Secco ML, Yu CT. Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. J Intellect Disabil Res. 2007 Aug;51(Pt 8):606-19.Breslau N, Staruch KS, Mortimer EA, Jr. Psychological distress in mothers of disabled children. Am J Dis Child. 1982 Aug;136(8):682-6Cadman D, Rosenbaum P, Boyle M, Offord DR. Children with chronic illness: family and parent demographic characteristics and psychosocial adjustment. Pediatrics. 1991 Jun;87(6):884-9.Gowen JW, Johnson-Martin N, Goldman BD, Appelbaum M. Feelings of depression and parenting competence of mothers of handicapped and nonhandicapped infants: a longitudinal study. Am J Ment Retard. 1989 Nov;94(3):259-71.Holmbeck GN, Gorey-Ferguson L, Hudson T, Seefeldt T, Shapera W, Turner T, et al. 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Mar;89(3):225-34.Huhn K, Guarrera-Bowlby P, Deutsch JE. The clinical decision-making process of prescribing power mobility for a child with cerebral palsy. Pediatr Phys Ther. 2007 Fall;19(3):254-60Organization WH. Disability, including prevention, management and rehabilitation. 58th World Health Assembly Resolution. Geneva, Switzerland: World Health Organization; 2005.Organization WH. Disability and Rehabilitation WHO Action Plan 2006–2011. Geneva, Switzerland: World Health Organization; 2006.Organization WH. Guidelines on the Provision of Manual Wheelchairs in Less Resourced Settings. WHO Press. Geneva, Switzerland; 2008Armstrong P. Thinking it through: Women, work and caring in the new millennium. Canadian Women Studies/les cahiers de la femme. 2002.Ballesteros B, Novoa M, Muñoz L, Suárez, I. G. Calidad de vida en familias con niños menores de dos años afectados por malformaciones congénitas. Perspectiva del cuidador principal. 2006;5(3):457-73Gonzalez F. 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MMWR Morb Mortal Wkly Rep. 2004 Jan 30;53(3):57-9Fitch K, Bernstein S, Aguilar M, Burnand B, LaCalle J, Lazaro P. The RAND/UCLA Appropriateness Method User's Manual. [cited 11 de octubre de 2010]; Available from: http://www.rand.org/pubs/monograph_reports/MR1269/index.html.http://hdl.handle.net/10818/7472159454TE0585293 Páginas.Este estudio describe la percepción del cuidador principal (CP) de niños con Parálisis Cerebral severa que usan ayudas para la movilización y la sedestación, aplicando un cuestionario a 94 cuidadores de dos centros de habilitación infantil. Los resultados muestran el 45.7% de los CP consideran que nunca necesitan ayuda para mantener el niño sentado, un 50-47% ocasionalmente requieren más descansos o de mayor duración después de cuidar al niño, el 79% percibe que el niño debe usarlas diariamente y un 43% requieren un esfuerzo leve para desplazar el niño dentro de su domicilio. Este estudio sugiere que los cuidadores de niños perciben un alivio del cuidado y esfuerzo con el uso de las ayudas de movilización y sedestación.spaUniversidad de La SabanaEspecialización en Medicina Física y RehabilitaciónFacultad de MedicinaUniversidad de La SabanaIntellectum Repositorio Universidad de La SabanaCuidadores-InvestigacionesParálisis cerebral en niños-Cuidados a largo plazo-InvestigacionesAtención al enfermo-InvestigacionesPercepción del cuidador de niños con parálisis cerebral (PC) severa que utilizan ayudas para la movilización y sedestaciónbachelorThesisTesis de especializaciónpublishedVersionhttp://purl.org/coar/version/c_970fb48d4fbd8a85http://purl.org/coar/resource_type/c_7a1fhttp://purl.org/coar/access_right/c_abf2ORIGINALZareth del Pilar Gamboa Niño (Tesis).pdfZareth del Pilar Gamboa Niño (Tesis).pdfVer documento en PDFapplication/pdf1429790https://intellectum.unisabana.edu.co/bitstream/10818/7472/4/Zareth%20del%20Pilar%20Gamboa%20Ni%c3%b1o%20%28Tesis%29.pdfef6b89c5bb16fe30bdc35782f9d1da55MD54Zareth del Pilar Gamboa Niño (R.A.I.).pdfZareth del Pilar Gamboa Niño (R.A.I.).pdfVer Resumenapplication/pdf28709https://intellectum.unisabana.edu.co/bitstream/10818/7472/5/Zareth%20del%20Pilar%20Gamboa%20Ni%c3%b1o%20%28R.A.I.%29.pdf36372c575bf3c3fc3ae9f275510f4f02MD55LICENSElicense.txtlicense.txttext/plain; charset=utf-8498https://intellectum.unisabana.edu.co/bitstream/10818/7472/2/license.txtf52a2cfd4df262e08e9b300d62c85cabMD52Zareth del Pilar Gamboa Niño (Carta).pdfZareth del Pilar Gamboa Niño (Carta).pdfapplication/pdf634219https://intellectum.unisabana.edu.co/bitstream/10818/7472/6/Zareth%20del%20Pilar%20Gamboa%20Ni%c3%b1o%20%28Carta%29.pdf3fc919d547fde29f73bac3a38e688ff9MD56TEXTZARETH DEL PILAR GAMBOA (T).pdf.txtZARETH DEL PILAR GAMBOA (T).pdf.txtExtracted Texttext/plain173506https://intellectum.unisabana.edu.co/bitstream/10818/7472/3/ZARETH%20DEL%20PILAR%20GAMBOA%20%28T%29.pdf.txt0b3ded1f0b0855fafd41990b6567d7e2MD53Zareth del Pilar Gamboa Niño (Tesis).pdf.txtZareth del Pilar Gamboa Niño (Tesis).pdf.txtExtracted Texttext/plain172541https://intellectum.unisabana.edu.co/bitstream/10818/7472/7/Zareth%20del%20Pilar%20Gamboa%20Ni%c3%b1o%20%28Tesis%29.pdf.txtfdc2d99b8981eddb27bce5b90e4d7222MD57Zareth del Pilar Gamboa Niño (R.A.I.).pdf.txtZareth del Pilar Gamboa Niño (R.A.I.).pdf.txtExtracted Texttext/plain2096https://intellectum.unisabana.edu.co/bitstream/10818/7472/8/Zareth%20del%20Pilar%20Gamboa%20Ni%c3%b1o%20%28R.A.I.%29.pdf.txtfae6bce184c654fa9938044a395c1cceMD5810818/7472oai:intellectum.unisabana.edu.co:10818/74722019-07-26 09:26:19.61Intellectum Universidad de la Sabanacontactointellectum@unisabana.edu.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