Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review

13 páginas

Autores:: Arias Rojas, Mauricio
Carreño Moreno, Sonia
Rojas Reyes, Jennifer

Tipo de recurso:

Fecha de publicación:: 2020

Institución:: Universidad de la Sabana

Repositorio:: Repositorio Universidad de la Sabana

Idioma:: eng

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dc.title.es_CO.fl_str_mv	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review
dc.title.alternative.es_CO.fl_str_mv	Incertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos: scoping review Incerteza dos familiares e cuidadores perante a doença de pacientes em cuidados paliativos: scoping review
title	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review
spellingShingle	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review Incertidumbre Enfermería Cuidadores Cuidados paliativos Cuidados paliativos al final de la vida
title_short	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review
title_full	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review
title_fullStr	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review
title_full_unstemmed	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review
title_sort	Uncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping Review
dc.creator.fl_str_mv	Arias Rojas, Mauricio Carreño Moreno, Sonia Rojas Reyes, Jennifer
dc.contributor.author.none.fl_str_mv	Arias Rojas, Mauricio Carreño Moreno, Sonia Rojas Reyes, Jennifer
dc.subject.other.spa.fl_str_mv	Incertidumbre Enfermería Cuidadores Cuidados paliativos Cuidados paliativos al final de la vida
topic	Incertidumbre Enfermería Cuidadores Cuidados paliativos Cuidados paliativos al final de la vida
description	13 páginas
publishDate	2020
dc.date.accessioned.none.fl_str_mv	2020-11-12T18:43:25Z
dc.date.available.none.fl_str_mv	2020-11-12T18:43:25Z
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identifier_str_mv	Arias-Rojas M, Carreño-Moreno S, Rojas-Reyes J. Uncertainty towards the disease of family caregivers of patients in palliative care: A scoping review. Aquichan. 2020;20(3):e2034. DOI: https://doi.org/10.5294/aqui.2020.20.3.4 1657-5997 2027-5374
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spelling	Arias Rojas, MauricioCarreño Moreno, SoniaRojas Reyes, Jennifer2020-11-12T18:43:25Z2020-11-12T18:43:25Z2020-09-07Arias-Rojas M, Carreño-Moreno S, Rojas-Reyes J. Uncertainty towards the disease of family caregivers of patients in palliative care: A scoping review. Aquichan. 2020;20(3):e2034. DOI: https://doi.org/10.5294/aqui.2020.20.3.41657-5997https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13277https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13277/5999http://hdl.handle.net/10818/44262https://doi.org/10.5294/aqui.2020.20.3.42027-537413 páginasObjetivo: conocer el desarrollo de la evidencia científica sobre la incertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos. Materiales y métodos: revisión descriptiva tipo scoping review. Se realizó una búsqueda en las bases de datos Embase, ScienceDirect, Medline, Academic Search Complete y Scopus, en el periodo 2000-2019. Se usaron los términos MeSH uncertainty, paliative care, end of life, nursing y caregiver. Luego del proceso de crítica, se seleccionaron cincuenta artículos. Resultados: emergieron cinco núcleos temáticos: caracterización de la incertidumbre en el cuidador, factores influyentes en la incertidumbre, recursos para el manejo de la incertidumbre, evaluación de la incertidumbre y terapéuticas e intervenciones para abordar la incertidumbre. La mayor escala de evidencia se encuentra en la caracterización de la incertidumbre en el cuidador, y los vacíos orientan el desarrollo de intervenciones de enfermería sobre la incertidumbre de los cuidadores de personas en cuidado paliativo. Conclusiones: si bien existe una amplia exploración de los factores que influyen en la incertidumbre ante la enfermedad del cuidador, la evidencia sobre las intervenciones que ayuden a disminuir la incertidumbre ante la enfermedad es aún escasa.Objective: To know the development of the scientific evidence on the uncertainty towards the disease of family caregivers of pa-tients in palliative care. Materials and methods: A descriptive scoping review. A search was conducted in the Embase, ScienceDirect, Medline, AcademicSearchComplete, Scopus databases, during the 2000-2019period. The following MeSH terms were used: uncertainty, palliativecare, endoflife, nursing and caregiver. Fiftyarticles were selected after the criticism process. Results: Fivethematic nuclei emerged: characterization of uncertainty in the caregiver, factors influencing uncertainty, resources to manage uncertainty, uncertainty assessment, and therapies and interventions to approach uncertainty. The higher scale of evidence is found in the characterization of un-certainty in the caregiver, and the voids direct the development of Nursing interventions on the uncertainty of the caregivers of individuals in palliative care. Conclusions: Although the factors influencing uncertainty towards the disease of the caregiver are widely explored, the evidence on the interventions that may help to reduce uncertainty towards the disease is still limited.application/pdfengUniversidad de La SabanaDirección de PublicacionesAquichan. 2020;20(3):e2034Attribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/http://purl.org/coar/access_right/c_abf2instname:Universidad de La Sabanareponame:Intellectum Repositorio Universidad de La SabanaIncertidumbreEnfermeríaCuidadoresCuidados paliativosCuidados paliativos al final de la vidaUncertainty Towards the Disease of Family Caregivers of Patients in Palliative Care: A Scoping ReviewIncertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos: scoping reviewIncerteza dos familiares e cuidadores perante a doença de pacientes em cuidados paliativos: scoping reviewarticlepublishedVersionhttp://purl.org/coar/version/c_970fb48d4fbd8a85http://purl.org/coar/resource_type/c_6501World Health Organization. Noncommunicable diseases country profiles, 2018. Ginebra: World Health Organization; 2018. [Citado 2019 dic. 20]. Disponible en: https://apps.who.int/iris/handle/10665/274512World Health Organization. Definition of palliative care. Ginebra: World Health Organization; 2015. [Citado 2019 dic. 20]. Disponible en: http://www.who.int/cancer/palliative/definition/en/#Garcia-Rueda N, Carvajal VA, Saracibar-Razquin M, Arantzamendi SM. The experience of living with advanced-stage cancer: A thematic synthesis of the literature. Eur J Cancer Care. 2016;25(3):551-69. DOI: https://doi.org/10.1111/ecc.12523Meleis AI, Sawyer LM, Im EO, Hilfinger Messias DK, Schumacher K. Experiencing transitions: An emerging middle-range theory. Adv Nurs Sci. 2000;23(5):12-28. DOI: https://doi.org/10.1097/00012272-200009000-00006Holm M, Årestedt K, Öhlen J, Alvariza A. Variations in grief, anxiety, depression, and health among family caregivers before and after the death of a close person in the context of palliative home care. Death Stud. 2019(8);23:1-9. DOI: https://doi.org/10.1080/07481187.2019.1586797Gotze H, Brahler E, Gansera L, Schnabel A, Gottschalk-Fleischer A, Kohler N. Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient’s death. Eur J Cancer Care. 2018;27(9)(2):e12606. DOI: https://doi.org/10.1111/ecc.12606Clayton M, Dean M, Mishel M. Theories of uncertainty in illness. En: Smith MJ, Liehr P, editoras. Middle range theory for nursing. 4.ª ed. Nueva York: Springer Publishing Company; 2018. p. 49-82.Peters MD, Godfrey CM, Khalil H, McInerney P, Parker D, Soares CB. Guidance for conducting systematic scoping reviews. Int J Evid Based Healthc. 2015;13(12)(3):1416. DOI: https://doi.org/10.1097/XEB.0000000000000050Joanna Briggs Institute. Levels of evidence. 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Disponible en: http://www.revactamedicacentro.sld.cu/index.php/amc/article/view/980/1243LICENSElicense.txtlicense.txttext/plain; charset=utf-8498https://intellectum.unisabana.edu.co/bitstream/10818/44262/3/license.txtf52a2cfd4df262e08e9b300d62c85cabMD53CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8805https://intellectum.unisabana.edu.co/bitstream/10818/44262/2/license_rdf4460e5956bc1d1639be9ae6146a50347MD5210818/44262oai:intellectum.unisabana.edu.co:10818/442622021-06-07 23:17:30.133Intellectum Universidad de la Sabanacontactointellectum@unisabana.edu.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