A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy

The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different...

Full description

Autores:

Tipo de recurso:: article

Fecha de publicación:: 2014

Institución:: Pontificia Universidad Javeriana

Repositorio:: Repositorio Universidad Javeriana

Idioma:: spa

id	JAVERIANA_bea13d4188bb960419bc6ad2da1ef7f9
oai_identifier_str	oai:repository.javeriana.edu.co:10554/33082
network_acronym_str	JAVERIANA
network_name_str	Repositorio Universidad Javeriana
repository_id_str
spelling	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsyEstudio piloto de diseño de un sitio web para el bienestar de cuidadores de niños con parálisis cerebralBoixadós, Mercè; Universitat Oberta de CatalunyaGómez-Zúñiga, Benigna; Universitat Oberta de CatalunyaHernández-Encuentra, Eulàlia; Universitat Oberta de CatalunyaGuillamón, Noemí; Universitat Oberta de CatalunyaRedolar-Ripoll, Diego; Universitat Oberta de CatalunyaPousada, Modesta; Universitat Oberta de CatalunyaMuñoz-Marrón, Elena; Universitat Oberta de CatalunyaArmayones, Manuel; Universitat Oberta de Catalunyaintervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebralonline intervention; well-being; caregiver burden; quality of life; cerebral palsyThe objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers’ needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the “peer-to-peer” and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.El objetivo del artículo es presentar un sitio web diseñado para mejorar la calidad de vida de cuidadores de niños con parálisis cerebral y mostrar los datos correspondientes a su utilidad. Este sitio fue desarrollado acorde con la literatura científica sobre el tema de carga de los cuidadores y se organizó en torno a diferentes secciones (comunicación familiar, aprender a relajarse, entre otros) y foros de apoyo social. Las características interactivas del sitio fueron diseñadas para satisfacer las necesidades de los cuidadores, eligiendo diferentes caminos en función de las propias. En el estudio piloto participó una muestra de 10 cuidadores que completaron un cuestionario para analizar la utilidad del sitio web después de cinco meses de usarlo. Los resultados preliminares sugieren que este fue útil para los participantes que las secciones de mayor utilidad fueron la denominada “de par a par” y los foros profesionales. El presente trabajo muestra el potencial de una intervención en línea, para padres de niños con parálisis cerebral.Pontificia Universidad JaverianaPlan Nacional of I+D of Ministerio de Economia y Competitividad form Spnish Government and Catalan Governmentnull2018-02-24T16:04:42Z2020-04-15T18:28:02Z2018-02-24T16:04:42Z2020-04-15T18:28:02Z2014-04-15http://purl.org/coar/version/c_970fb48d4fbd8a85Artículo de revistahttp://purl.org/coar/resource_type/c_6501info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionPDFapplication/pdfhttp://revistas.javeriana.edu.co/index.php/revPsycho/article/view/513210.11144/Javeriana.UPSY13-4.psdw2011-27771657-9267http://hdl.handle.net/10554/33082spahttp://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132/10028http://revistas.javeriana.edu.co/index.php/revPsycho/article/downloadSuppFile/5132/1288Universitas Psychologica; Vol. 13, Núm. 4 (2014)Atribución-NoComercial-SinDerivadas 4.0 Internacionalinfo:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2reponame:Repositorio Universidad Javerianainstname:Pontificia Universidad Javerianainstacron:Pontificia Universidad Javeriana2023-03-29T19:26:24Z
dc.title.none.fl_str_mv	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy Estudio piloto de diseño de un sitio web para el bienestar de cuidadores de niños con parálisis cerebral
title	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
spellingShingle	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy Boixadós, Mercè; Universitat Oberta de Catalunya intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral online intervention; well-being; caregiver burden; quality of life; cerebral palsy
title_short	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_full	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_fullStr	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_full_unstemmed	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_sort	A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
dc.creator.none.fl_str_mv	Boixadós, Mercè; Universitat Oberta de Catalunya Gómez-Zúñiga, Benigna; Universitat Oberta de Catalunya Hernández-Encuentra, Eulàlia; Universitat Oberta de Catalunya Guillamón, Noemí; Universitat Oberta de Catalunya Redolar-Ripoll, Diego; Universitat Oberta de Catalunya Pousada, Modesta; Universitat Oberta de Catalunya Muñoz-Marrón, Elena; Universitat Oberta de Catalunya Armayones, Manuel; Universitat Oberta de Catalunya
author	Boixadós, Mercè; Universitat Oberta de Catalunya
author_facet	Boixadós, Mercè; Universitat Oberta de Catalunya Gómez-Zúñiga, Benigna; Universitat Oberta de Catalunya Hernández-Encuentra, Eulàlia; Universitat Oberta de Catalunya Guillamón, Noemí; Universitat Oberta de Catalunya Redolar-Ripoll, Diego; Universitat Oberta de Catalunya Pousada, Modesta; Universitat Oberta de Catalunya Muñoz-Marrón, Elena; Universitat Oberta de Catalunya Armayones, Manuel; Universitat Oberta de Catalunya
author_role	author
author2	Gómez-Zúñiga, Benigna; Universitat Oberta de Catalunya Hernández-Encuentra, Eulàlia; Universitat Oberta de Catalunya Guillamón, Noemí; Universitat Oberta de Catalunya Redolar-Ripoll, Diego; Universitat Oberta de Catalunya Pousada, Modesta; Universitat Oberta de Catalunya Muñoz-Marrón, Elena; Universitat Oberta de Catalunya Armayones, Manuel; Universitat Oberta de Catalunya
author2_role	author author author author author author author
dc.contributor.none.fl_str_mv	Plan Nacional of I+D of Ministerio de Economia y Competitividad form Spnish Government and Catalan Government null
dc.subject.none.fl_str_mv	intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral online intervention; well-being; caregiver burden; quality of life; cerebral palsy
topic	intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral online intervention; well-being; caregiver burden; quality of life; cerebral palsy
description	The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers’ needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the “peer-to-peer” and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.
publishDate	2014
dc.date.none.fl_str_mv	2014-04-15 2018-02-24T16:04:42Z 2018-02-24T16:04:42Z 2020-04-15T18:28:02Z 2020-04-15T18:28:02Z
dc.type.none.fl_str_mv	http://purl.org/coar/version/c_970fb48d4fbd8a85 Artículo de revista http://purl.org/coar/resource_type/c_6501 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion
format	article
status_str	publishedVersion
dc.identifier.none.fl_str_mv	http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132 10.11144/Javeriana.UPSY13-4.psdw 2011-2777 1657-9267 http://hdl.handle.net/10554/33082
url	http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132 http://hdl.handle.net/10554/33082
identifier_str_mv	10.11144/Javeriana.UPSY13-4.psdw 2011-2777 1657-9267
dc.language.none.fl_str_mv	spa
language	spa
dc.relation.none.fl_str_mv	http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132/10028 http://revistas.javeriana.edu.co/index.php/revPsycho/article/downloadSuppFile/5132/1288 Universitas Psychologica; Vol. 13, Núm. 4 (2014)
dc.rights.none.fl_str_mv	Atribución-NoComercial-SinDerivadas 4.0 Internacional info:eu-repo/semantics/openAccess http://purl.org/coar/access_right/c_abf2
rights_invalid_str_mv	Atribución-NoComercial-SinDerivadas 4.0 Internacional http://purl.org/coar/access_right/c_abf2
eu_rights_str_mv	openAccess
dc.format.none.fl_str_mv	PDF application/pdf
dc.publisher.none.fl_str_mv	Pontificia Universidad Javeriana
publisher.none.fl_str_mv	Pontificia Universidad Javeriana
dc.source.none.fl_str_mv	reponame:Repositorio Universidad Javeriana instname:Pontificia Universidad Javeriana instacron:Pontificia Universidad Javeriana
instname_str	Pontificia Universidad Javeriana
instacron_str	Pontificia Universidad Javeriana
institution	Pontificia Universidad Javeriana
reponame_str	Repositorio Universidad Javeriana
collection	Repositorio Universidad Javeriana
_version_	1803712828536782848

A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy

Publicaciones similares