A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy

The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different...

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Autores:
Boixadós, Mercè; Universitat Oberta de Catalunya
Gómez-Zúñiga, Benigna; Universitat Oberta de Catalunya
Hernández-Encuentra, Eulàlia; Universitat Oberta de Catalunya
Guillamón, Noemí; Universitat Oberta de Catalunya
Redolar-Ripoll, Diego; Universitat Oberta de Catalunya
Pousada, Modesta; Universitat Oberta de Catalunya
Muñoz-Marrón, Elena; Universitat Oberta de Catalunya
Armayones, Manuel; Universitat Oberta de Catalunya
Tipo de recurso:
Article of journal
Fecha de publicación:
2014
Institución:
Pontificia Universidad Javeriana
Repositorio:
Repositorio Universidad Javeriana
Idioma:
spa
OAI Identifier:
oai:repository.javeriana.edu.co:10554/33082
Acceso en línea:
http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132
http://hdl.handle.net/10554/33082
Palabra clave:
intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral
online intervention; well-being; caregiver burden; quality of life; cerebral palsy
Rights
openAccess
License
Atribución-NoComercial-SinDerivadas 4.0 Internacional
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oai_identifier_str oai:repository.javeriana.edu.co:10554/33082
network_acronym_str JAVERIANA2
network_name_str Repositorio Universidad Javeriana
repository_id_str
spelling Atribución-NoComercial-SinDerivadas 4.0 Internacionalinfo:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2Plan Nacional of I+D of Ministerio de Economia y Competitividad form Spnish Government and Catalan GovernmentnullBoixadós, Mercè; Universitat Oberta de CatalunyaGómez-Zúñiga, Benigna; Universitat Oberta de CatalunyaHernández-Encuentra, Eulàlia; Universitat Oberta de CatalunyaGuillamón, Noemí; Universitat Oberta de CatalunyaRedolar-Ripoll, Diego; Universitat Oberta de CatalunyaPousada, Modesta; Universitat Oberta de CatalunyaMuñoz-Marrón, Elena; Universitat Oberta de CatalunyaArmayones, Manuel; Universitat Oberta de Catalunya2018-02-24T16:04:42Z2020-04-15T18:28:02Z2018-02-24T16:04:42Z2020-04-15T18:28:02Z2014-04-15http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/513210.11144/Javeriana.UPSY13-4.psdw2011-27771657-9267http://hdl.handle.net/10554/33082The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers’ needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the “peer-to-peer” and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.El objetivo del artículo es presentar un sitio web diseñado para mejorar la calidad de vida de cuidadores de niños con parálisis cerebral y mostrar los datos correspondientes a su utilidad. Este sitio fue desarrollado acorde con la literatura científica sobre el tema de carga de los cuidadores y se organizó en torno a diferentes secciones (comunicación familiar, aprender a relajarse, entre otros) y foros de apoyo social. Las características interactivas del sitio fueron diseñadas para satisfacer las necesidades de los cuidadores, eligiendo diferentes caminos en función de las propias. En el estudio piloto participó una muestra de 10 cuidadores que completaron un cuestionario para analizar la utilidad del sitio web después de cinco meses de usarlo. Los resultados preliminares sugieren que este fue útil para los participantes que las secciones de mayor utilidad fueron la denominada “de par a par” y los foros profesionales. El presente trabajo muestra el potencial de una intervención en línea, para padres de niños con parálisis cerebral.PDFapplication/pdfspaPontificia Universidad Javerianahttp://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132/10028http://revistas.javeriana.edu.co/index.php/revPsycho/article/downloadSuppFile/5132/1288Universitas Psychologica; Vol. 13, Núm. 4 (2014)intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebralonline intervention; well-being; caregiver burden; quality of life; cerebral palsyA pilot study designing a website to enhance the well being of caregivers of children with cerebral palsyEstudio piloto de diseño de un sitio web para el bienestar de cuidadores de niños con parálisis cerebralhttp://purl.org/coar/version/c_970fb48d4fbd8a85Artículo de revistahttp://purl.org/coar/resource_type/c_6501http://purl.org/coar/resource_type/c_2df8fbb1info:eu-repo/semantics/article10554/33082oai:repository.javeriana.edu.co:10554/330822023-03-29 14:26:24.88Repositorio Institucional - Pontificia Universidad Javerianarepositorio@javeriana.edu.co
dc.title.spa.fl_str_mv A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
dc.title.english.eng.fl_str_mv Estudio piloto de diseño de un sitio web para el bienestar de cuidadores de niños con parálisis cerebral
title A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
spellingShingle A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral
online intervention; well-being; caregiver burden; quality of life; cerebral palsy
title_short A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_full A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_fullStr A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_full_unstemmed A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
title_sort A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
dc.creator.fl_str_mv Boixadós, Mercè; Universitat Oberta de Catalunya
Gómez-Zúñiga, Benigna; Universitat Oberta de Catalunya
Hernández-Encuentra, Eulàlia; Universitat Oberta de Catalunya
Guillamón, Noemí; Universitat Oberta de Catalunya
Redolar-Ripoll, Diego; Universitat Oberta de Catalunya
Pousada, Modesta; Universitat Oberta de Catalunya
Muñoz-Marrón, Elena; Universitat Oberta de Catalunya
Armayones, Manuel; Universitat Oberta de Catalunya
dc.contributor.author.none.fl_str_mv Boixadós, Mercè; Universitat Oberta de Catalunya
Gómez-Zúñiga, Benigna; Universitat Oberta de Catalunya
Hernández-Encuentra, Eulàlia; Universitat Oberta de Catalunya
Guillamón, Noemí; Universitat Oberta de Catalunya
Redolar-Ripoll, Diego; Universitat Oberta de Catalunya
Pousada, Modesta; Universitat Oberta de Catalunya
Muñoz-Marrón, Elena; Universitat Oberta de Catalunya
Armayones, Manuel; Universitat Oberta de Catalunya
dc.contributor.eng.fl_str_mv Plan Nacional of I+D of Ministerio de Economia y Competitividad form Spnish Government and Catalan Government
dc.contributor.none.fl_str_mv null
dc.subject.eng.fl_str_mv intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral
topic intervención en línea; bienestar; carga del cuidador; calidad de vida; parálisis cerebral
online intervention; well-being; caregiver burden; quality of life; cerebral palsy
dc.subject.spa.fl_str_mv online intervention; well-being; caregiver burden; quality of life; cerebral palsy
description The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers’ needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the “peer-to-peer” and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.
publishDate 2014
dc.date.created.none.fl_str_mv 2014-04-15
dc.date.accessioned.none.fl_str_mv 2018-02-24T16:04:42Z
2020-04-15T18:28:02Z
dc.date.available.none.fl_str_mv 2018-02-24T16:04:42Z
2020-04-15T18:28:02Z
dc.type.coar.fl_str_mv http://purl.org/coar/resource_type/c_2df8fbb1
dc.type.hasversion.none.fl_str_mv http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.local.spa.fl_str_mv Artículo de revista
dc.type.coar.none.fl_str_mv http://purl.org/coar/resource_type/c_6501
dc.type.driver.none.fl_str_mv info:eu-repo/semantics/article
format http://purl.org/coar/resource_type/c_6501
dc.identifier.none.fl_str_mv http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132
10.11144/Javeriana.UPSY13-4.psdw
dc.identifier.issn.none.fl_str_mv 2011-2777
1657-9267
dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/10554/33082
url http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132
http://hdl.handle.net/10554/33082
identifier_str_mv 10.11144/Javeriana.UPSY13-4.psdw
2011-2777
1657-9267
dc.language.iso.none.fl_str_mv spa
language spa
dc.relation.uri.none.fl_str_mv http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132/10028
http://revistas.javeriana.edu.co/index.php/revPsycho/article/downloadSuppFile/5132/1288
dc.relation.citationissue.spa.fl_str_mv Universitas Psychologica; Vol. 13, Núm. 4 (2014)
dc.rights.licence.*.fl_str_mv Atribución-NoComercial-SinDerivadas 4.0 Internacional
dc.rights.accessrights.none.fl_str_mv info:eu-repo/semantics/openAccess
dc.rights.coar.spa.fl_str_mv http://purl.org/coar/access_right/c_abf2
rights_invalid_str_mv Atribución-NoComercial-SinDerivadas 4.0 Internacional
http://purl.org/coar/access_right/c_abf2
eu_rights_str_mv openAccess
dc.format.spa.fl_str_mv PDF
dc.format.mimetype.spa.fl_str_mv application/pdf
dc.publisher.spa.fl_str_mv Pontificia Universidad Javeriana
institution Pontificia Universidad Javeriana
repository.name.fl_str_mv Repositorio Institucional - Pontificia Universidad Javeriana
repository.mail.fl_str_mv repositorio@javeriana.edu.co
_version_ 1808388476942417920

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