A multi-country study of prevalence and early childhood mortality among children with omphalocele
Q3
- Autores:
-
Nembhard, Wendy N.
Bergman, Jorieke E. H.
Politis, Maria D.
Arteaga-Vázquez, Jazmín
Bermejo-Sánchez, Eva
Canfield, Mark A.
Cragan, Janet D.
Dastgiri, Saeed
de Walle, Hermien E. K.
Feldkamp, Marcia L.
Nance, Amy
Gatt, Miriam
Groisman, Boris
Hurtado-Villa, Paula
Kallén, Kärin
Landau, Danielle
Lelong, Nathalie
Lopez-Camelo, Jorge
Martinez, Laura
Morgan, Margery
Pierini, Anna
Rissmann, Anke
Šípek, Antonin
Szabova, Elena
Tagliabue, Giovanna
Wertelecki, Wladimir
Zarante, Ignacio
Bakker, Marian K.
Kancherla, Vijaya
Mastroiacovo, Pierpaolo
- Tipo de recurso:
- Article of investigation
- Fecha de publicación:
- 2020
- Institución:
- Pontificia Universidad Javeriana
- Repositorio:
- Repositorio Universidad Javeriana
- Idioma:
- eng
- OAI Identifier:
- oai:repository.javeriana.edu.co:10554/52065
- Acceso en línea:
- https://onlinelibrary.wiley.com/doi/abs/10.1002/bdr2.1822
http://hdl.handle.net/10554/52065
https://doi.org/10.1002/bdr2.1822
- Palabra clave:
- Mortality
Omphalocele
Prevalence
Registry
Surveillance
- Rights
- License
- Atribución-NoComercial 4.0 Internacional
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| dc.title.spa.fl_str_mv |
A multi-country study of prevalence and early childhood mortality among children with omphalocele |
| title |
A multi-country study of prevalence and early childhood mortality among children with omphalocele |
| spellingShingle |
A multi-country study of prevalence and early childhood mortality among children with omphalocele Mortality Omphalocele Prevalence Registry Surveillance |
| title_short |
A multi-country study of prevalence and early childhood mortality among children with omphalocele |
| title_full |
A multi-country study of prevalence and early childhood mortality among children with omphalocele |
| title_fullStr |
A multi-country study of prevalence and early childhood mortality among children with omphalocele |
| title_full_unstemmed |
A multi-country study of prevalence and early childhood mortality among children with omphalocele |
| title_sort |
A multi-country study of prevalence and early childhood mortality among children with omphalocele |
| dc.creator.fl_str_mv |
Nembhard, Wendy N. Bergman, Jorieke E. H. Politis, Maria D. Arteaga-Vázquez, Jazmín Bermejo-Sánchez, Eva Canfield, Mark A. Cragan, Janet D. Dastgiri, Saeed de Walle, Hermien E. K. Feldkamp, Marcia L. Nance, Amy Gatt, Miriam Groisman, Boris Hurtado-Villa, Paula Kallén, Kärin Landau, Danielle Lelong, Nathalie Lopez-Camelo, Jorge Martinez, Laura Morgan, Margery Pierini, Anna Rissmann, Anke Šípek, Antonin Szabova, Elena Tagliabue, Giovanna Wertelecki, Wladimir Zarante, Ignacio Bakker, Marian K. Kancherla, Vijaya Mastroiacovo, Pierpaolo |
| dc.contributor.author.none.fl_str_mv |
Nembhard, Wendy N. Bergman, Jorieke E. H. Politis, Maria D. Arteaga-Vázquez, Jazmín Bermejo-Sánchez, Eva Canfield, Mark A. Cragan, Janet D. Dastgiri, Saeed de Walle, Hermien E. K. Feldkamp, Marcia L. Nance, Amy Gatt, Miriam Groisman, Boris Hurtado-Villa, Paula Kallén, Kärin Landau, Danielle Lelong, Nathalie Lopez-Camelo, Jorge Martinez, Laura Morgan, Margery Pierini, Anna Rissmann, Anke Šípek, Antonin Szabova, Elena Tagliabue, Giovanna Wertelecki, Wladimir Zarante, Ignacio Bakker, Marian K. Kancherla, Vijaya Mastroiacovo, Pierpaolo |
| dc.contributor.corporatename.none.fl_str_mv |
Pontificia Universidad Javeriana. Facultad de Medicina. Instituto de Genética Humana. Grupo de investigación Instituto de Genética Humana |
| dc.contributor.javerianateacher.none.fl_str_mv |
Zarante, Ignacio |
| dc.subject.keyword.spa.fl_str_mv |
Mortality Omphalocele Prevalence Registry Surveillance |
| topic |
Mortality Omphalocele Prevalence Registry Surveillance |
| description |
Q3 |
| publishDate |
2020 |
| dc.date.accessioned.none.fl_str_mv |
2020-12-15T20:38:11Z |
| dc.date.available.none.fl_str_mv |
2020-12-15T20:38:11Z |
| dc.date.created.none.fl_str_mv |
2020-10-17 |
| dc.type.local.spa.fl_str_mv |
Artículo de revista |
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http://purl.org/coar/resource_type/c_2df8fbb1 |
| format |
http://purl.org/coar/resource_type/c_2df8fbb1 |
| dc.identifier.spa.fl_str_mv |
https://onlinelibrary.wiley.com/doi/abs/10.1002/bdr2.1822 |
| dc.identifier.issn.spa.fl_str_mv |
2472-1727 |
| dc.identifier.uri.none.fl_str_mv |
http://hdl.handle.net/10554/52065 |
| dc.identifier.doi.spa.fl_str_mv |
https://doi.org/10.1002/bdr2.1822 |
| dc.identifier.instname.spa.fl_str_mv |
instname:Pontificia Universidad Javeriana |
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reponame:Repositorio Institucional - Pontificia Universidad Javeriana |
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repourl:https://repository.javeriana.edu.co |
| url |
https://onlinelibrary.wiley.com/doi/abs/10.1002/bdr2.1822 http://hdl.handle.net/10554/52065 https://doi.org/10.1002/bdr2.1822 |
| identifier_str_mv |
2472-1727 instname:Pontificia Universidad Javeriana reponame:Repositorio Institucional - Pontificia Universidad Javeriana repourl:https://repository.javeriana.edu.co |
| dc.language.iso.spa.fl_str_mv |
eng |
| language |
eng |
| dc.relation.citationstartpage.spa.fl_str_mv |
1787 |
| dc.relation.citationendpage.spa.fl_str_mv |
1801 |
| dc.relation.ispartofjournal.spa.fl_str_mv |
Birth Defects Research |
| dc.relation.citationvolume.spa.fl_str_mv |
112 |
| dc.relation.citationissue.spa.fl_str_mv |
20 |
| dc.rights.licence.*.fl_str_mv |
Atribución-NoComercial 4.0 Internacional |
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http://creativecommons.org/licenses/by-nc/4.0/ |
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http://purl.org/coar/access_right/c_abf2 |
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Atribución-NoComercial 4.0 Internacional http://creativecommons.org/licenses/by-nc/4.0/ http://purl.org/coar/access_right/c_abf2 |
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PDF |
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application/pdf |
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América del Sur América del Norte Europa Medio Oriente |
| institution |
Pontificia Universidad Javeriana |
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repositorio@javeriana.edu.co |
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1811671328873250816 |
| spelling |
Atribución-NoComercial 4.0 Internacionalhttp://creativecommons.org/licenses/by-nc/4.0/http://purl.org/coar/access_right/c_abf2Nembhard, Wendy N.Bergman, Jorieke E. H.Politis, Maria D.Arteaga-Vázquez, JazmínBermejo-Sánchez, EvaCanfield, Mark A.Cragan, Janet D.Dastgiri, Saeedde Walle, Hermien E. K.Feldkamp, Marcia L.Nance, AmyGatt, MiriamGroisman, BorisHurtado-Villa, PaulaKallén, KärinLandau, DanielleLelong, NathalieLopez-Camelo, JorgeMartinez, LauraMorgan, MargeryPierini, AnnaRissmann, AnkeŠípek, AntoninSzabova, ElenaTagliabue, GiovannaWertelecki, WladimirZarante, IgnacioBakker, Marian K.Kancherla, VijayaMastroiacovo, PierpaoloPontificia Universidad Javeriana. Facultad de Medicina. Instituto de Genética Humana. Grupo de investigación Instituto de Genética HumanaZarante, IgnacioAmérica del SurAmérica del NorteEuropaMedio Oriente2020-12-15T20:38:11Z2020-12-15T20:38:11Z2020-10-17https://onlinelibrary.wiley.com/doi/abs/10.1002/bdr2.18222472-1727http://hdl.handle.net/10554/52065https://doi.org/10.1002/bdr2.1822instname:Pontificia Universidad Javerianareponame:Repositorio Institucional - Pontificia Universidad Javerianarepourl:https://repository.javeriana.edu.coPDFapplication/pdfengA multi-country study of prevalence and early childhood mortality among children with omphaloceleArtículo de revistahttp://purl.org/coar/resource_type/c_2df8fbb1Q3Q2Infantes con OnfaloceleBackground: Omphalocele is the second most common abdominal birth defect and often occurs with other structural and genetic defects. The objective of this study was to determine omphalocele prevalence, time trends, and mortality during early childhood, by geographical region, and the presence of associated anomalies. Methods: We conducted a retrospective study with 23 birth defect surveillance systems in 18 countries who are members of the International Clearinghouse for Birth Defects Surveillance and Research that submitted data on cases ascertained from 2000 through 2012, approximately 16 million pregnancies were surveyed that resulted in live births, stillbirths, or elective terminations of pregnancy for fetal anomalies (ETOPFA) and cases with omphalocele were included. Overall prevalence and mortality rates for specific ages were calculated (day of birth, neonatal, infant, and early childhood). We used Kaplan– Meier estimates with 95% confidence intervals (CI) to calculate cumulative mortality and joinpoint regression for time trend analyses. Results: The prevalence of omphalocele was 2.6 per 10,000 births (95% CI: 2.5, 2.7) and showed no temporal change from 2000–2012 (average annual percent change = −0.19%, p = .52). The overall mortality rate was 32.1% (95% CI: 30.2, 34.0). Most deaths occurred during the neonatal period and among children with multiple anomalies or syndromic omphalocele. Prevalence and mortality varied by registry type (e.g., hospital- vs. population-based) and inclusion or exclusion of ETOPFA. Conclusions: The prevalence of omphalocele showed no temporal change from 2000–2012. Approximately one-third of children with omphalocele did not survive early childhood with most deaths occurring in the neonatal period.https://orcid.org/0000-0003-3822-7780https://orcid.org/0000-0002-0729-6866Revista Internacional - IndexadaA2MortalityOmphalocelePrevalenceRegistrySurveillance17871801Birth Defects Research11220ORIGINALMortality onphalocele 2020.pdfMortality onphalocele 2020.pdfArtículoapplication/pdf2570451http://repository.javeriana.edu.co/bitstream/10554/52065/1/Mortality%20onphalocele%202020.pdf703895f605609e4804ce69aab8a0a486MD51open accessLICENSElicense.txtlicense.txttext/plain; charset=utf-82603http://repository.javeriana.edu.co/bitstream/10554/52065/2/license.txt2070d280cc89439d983d9eee1b17df53MD52open accessTHUMBNAILMortality onphalocele 2020.pdf.jpgMortality onphalocele 2020.pdf.jpgIM Thumbnailimage/jpeg14537http://repository.javeriana.edu.co/bitstream/10554/52065/3/Mortality%20onphalocele%202020.pdf.jpg6cd0a91463df2ac3615c242af72334a9MD53open access10554/52065oai:repository.javeriana.edu.co:10554/520652023-03-16 18:45:20.677Repositorio Institucional - Pontificia Universidad Javerianarepositorio@javeriana.edu.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 |