Problemas de salud mental en niños con fisura labiopalatina

Autores:
Tipo de recurso:
article
Fecha de publicación:
2020
Institución:
Corporación Universitaria Iberoamericana
Repositorio:
Repositorio Ibero
Idioma:
spa
OAI Identifier:
oai:repositorio.ibero.edu.co:001/3837
Acceso en línea:
https://repositorio.ibero.edu.co/handle/001/3837
https://doi.org/10.33881/2027-1786.rip.13112
Palabra clave:
Mental health
Cleft palate
Psychological assessment
Child behavior checklist
Salud mental
Paladar hendido
Evaluación psicológica
Child behavior checklist
Psicología
Discapacidad
Niñez
Saúde mental
Fenda palatina
Avaliacao psicologica
Lista de verificación de comportamiento infantil
Rights
openAccess
License
Corporación Universitaria Iberoamericana - 2020
id IBERO_fc6984321b707197f4d62efb3ea021c7
oai_identifier_str oai:repositorio.ibero.edu.co:001/3837
network_acronym_str IBERO
network_name_str Repositorio Ibero
repository_id_str
dc.title.none.fl_str_mv Problemas de salud mental en niños con fisura labiopalatina
Mental Health Problems in Children with a Lip-Palatal Fissure
title Problemas de salud mental en niños con fisura labiopalatina
spellingShingle Problemas de salud mental en niños con fisura labiopalatina
Ortega, Javiera
Mental health
Cleft palate
Psychological assessment
Child behavior checklist
Salud mental
Paladar hendido
Evaluación psicológica
Child behavior checklist
Psicología
Discapacidad
Niñez
Saúde mental
Fenda palatina
Avaliacao psicologica
Lista de verificación de comportamiento infantil
title_short Problemas de salud mental en niños con fisura labiopalatina
title_full Problemas de salud mental en niños con fisura labiopalatina
title_fullStr Problemas de salud mental en niños con fisura labiopalatina
title_full_unstemmed Problemas de salud mental en niños con fisura labiopalatina
title_sort Problemas de salud mental en niños con fisura labiopalatina
dc.creator.none.fl_str_mv Ortega, Javiera
Vázquez, Natalia
author Ortega, Javiera
author_facet Ortega, Javiera
Vázquez, Natalia
author_role author
author2 Vázquez, Natalia
author2_role author
dc.subject.none.fl_str_mv Mental health
Cleft palate
Psychological assessment
Child behavior checklist
Salud mental
Paladar hendido
Evaluación psicológica
Child behavior checklist
Psicología
Discapacidad
Niñez
Saúde mental
Fenda palatina
Avaliacao psicologica
Lista de verificación de comportamiento infantil
topic Mental health
Cleft palate
Psychological assessment
Child behavior checklist
Salud mental
Paladar hendido
Evaluación psicológica
Child behavior checklist
Psicología
Discapacidad
Niñez
Saúde mental
Fenda palatina
Avaliacao psicologica
Lista de verificación de comportamiento infantil
publishDate 2020
dc.date.none.fl_str_mv 2020-05-19 00:00:00
2020-05-19 00:00:00
2020-05-19
2022-06-14T21:01:51Z
2022-06-14T21:01:51Z
dc.type.none.fl_str_mv Artículo de revista
http://purl.org/coar/resource_type/c_6501
http://purl.org/coar/resource_type/c_6501
http://purl.org/coar/version/c_970fb48d4fbd8a85
Text
info:eu-repo/semantics/article
Artículo de revista
Journal article
http://purl.org/redcol/resource_type/ARTREF
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv 10.33881/2027-1786.rip.13112
2500-6517
2027-1786
https://repositorio.ibero.edu.co/handle/001/3837
https://doi.org/10.33881/2027-1786.rip.13112
identifier_str_mv 10.33881/2027-1786.rip.13112
2500-6517
2027-1786
url https://repositorio.ibero.edu.co/handle/001/3837
https://doi.org/10.33881/2027-1786.rip.13112
dc.language.none.fl_str_mv spa
language spa
dc.relation.none.fl_str_mv https://reviberopsicologia.ibero.edu.co/article/download/rip.13112/1573
Núm. 1 , Año 2020 : Psicología del Desarrollo: Investigaciones en torno al estudio del ciclo vital humano
139
1
127
13
Revista Iberoamericana de Psicología
Abbott, J., Havermans, T., Jarvholm, S., Landau, E., Prins, Y., Smrekar, U., ... & ECFS Mental Health Working Group. (2019). Mental Health screening in cystic fibrosis centres across Europe. Journal of Cystic Fibrosis, 18(2), 299-303. https://doi.org/10.1016/j.psym.2017.08.010
Achenbach, T. M., & Rescorla, L. A. (2000). Child behavior checklist for ages 1 1/2-5. ASEBA. Burlington: University of Vermont, Dept. of Psychiatry.
Aguilar, M. J., López, M., Agulla, L., Lopez Morales, H., & Urquijo, S. (2019). Genómica Social: Relaciones entre teoría de la mente y cariotipo en mujeres con diagnóstico de Síndrome de Turner. Revista Iberoamericana De Psicología, 12(2), 69-78. https://doi.org/10.33881/2027-1786.rip.12207
Anderson, M., Elliott, E. J., & Zurynski, Y. A. (2013). Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support. Orphanet journal of rare diseases, 8(1), 1. https://doi.org/10.1186/1750-1172-8-22
Ashtiani, S., Makela, N., Carrion, P., & Austin, J. (2014). Parents' experiences of receiving their child's genetic diagnosis: A qualitative study to inform clinical genetics practice. Am. J. Med. Genet., 164(6), 1496-1502. https://doi.org/10.1002/ajmg.a.36525
Barlow, J. H., & Ellard, D. R. (2006). The psychosocial well‐being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child: care, health and development, 32(1), 19-31. https://doi.org/10.1111/j.1365-2214.2006.00591.x
Benderly, M., Kalter-Leibovici, O., Weitzman, D., Blieden, L., Buber, J., Dadashev, A., ... & Yalonetsky, S. (2018). P2605 Depression and anxiety are associated with high healthcare resource utilization among adults with congenital heart disease. European Heart Journal, 39(suppl_1), ehy565-P2605.
Bilboul, M. J., Pope, A. W., & Snyder, H. T. (2006). Adolescents with craniofacial anomalies: psychosocial adjustment as a function of self-concept. TheCleftpalate-craniofacialjournal, 43(4), 392-400. https://doi.org/10.1597/05-084.1
Crerand, C. E., M. Kapa, H., & Litteral, J. (2017). A review of psychosocial risks and management for children with cleft lip and/or palate. Perspectives of the ASHA Special Interest Groups, 2(5), 23-34. https://doi.org/10.1044/persp2.SIG5.23
Corbo Rodríguez, M. T., & Marimón Torres, M. E. (2001). Labio y paladar fisurados: Aspectos generales que se deben conocer en la atención primaria de salud. Revista cubana de medicina general integral, 17(4), 379-385. URL: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S0864-21252001000400011&lng=es&tlng=en
Garcia Escudero, M. P., Ricaurte Jaramillo, M. C., & Suarez Montes, V. (2016). Afectaciones de comportamiento en el individuo afectado por labio y paladar hendido (LPH) y en su familia. Tesis doctoral. URL: http://www.bdigital.ces.edu.co:8080/repositorio/bitstream/10946/4082/2/Afectaciones_Labio_Paladar_Hendido.pdf
Ha, P., Zhuge, X. Q., Zheng, Q., Shi, B., Gong, C. X., & Wang, Y. (2013). Behavioral pattern in Chinese school-aged children with cleft lip and palate. Asian Pacific journal of tropical medicine, 6(2), 162-166. https://doi.org/10.1016/S1995-7645(13)60016-4
Hall, H. R., Neely-Barnes, S. L., Graff, J. C., Krcek, T. E., Roberts, R. J., &Hankins, J. S. (2012). Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation. Issues in comprehensive pediatric nursing, 35(1), 24-44. https://doi.org/10.3109/01460862.2012.646479
Hunt, O., Burden, D., Hepper, P., & Johnston, C. (2005). The psychosocial effects of cleft lip and palate: a systematic review. European journal of orthodontics, 27(3), 274-285. https://doi.org/10.1093/ejo/cji004
Ivanova, M. Y., Achenbach, T. M., Rescorla, L. A., Harder, V. S., Ang, R. P., Bilenberg, N., & Dobrean, A. (2010). Preschool psychopathology reported by parents in 23 societies: testing the seven-syndrome model of the child behavior checklist for ages 1.5–5. Journal of the American Academy of Child & Adolescent Psychiatry, 49(12), 1215-1224. https://doi.org/10.1016/j.jaac.2010.08.019
Klein, T. P., Pope, A., & Abbott, R. (2014). Social interactions of school-aged children with CFA: mothers' perspectives and advice. The Cleft Palate-Craniofacial Journal, 51(3), 300-307. https://doi.org/10.1597/12-178
Kumar, K., Kumar, S., Mehrotra, D., Gupta, S., Khandpur, S., & Mishra, R. K. (2020). A Psychologic Assessment of the Parents of Patients With Cleft Lip and Palate. Journal of Craniofacial Surgery, 31(1), 58-61. http://dx.doi.org/10.1037/fsh0000198
Lewis, C. W., Jacob, L. S., & Lehmann, C. U. (2017). The primary care pediatrician and the care of children with cleft lip and/or cleft palate. Pediatrics, 139(5), e20170628. https://doi.org/10.1542/peds.2017-0628
Ministerio de Salud Presidencia de la Nación (2015). Más de 600 niños fueron incorporados a la Red Federal de Atención de Anomalías Congénitas. Información pública y comunicación. URL: http://www.msal.gob.ar/prensa/index.php?option=com_content&view=article&id=2974:mas-de-600-ninos-fueron-incorporados-a-la-red-federal-de-atencion-de-anomalias-congenitas&catid=1:noticias2974
Ministerio de Salud Presidencia de la Nación. (s.f.). Material para equipos de salud. Reporte anual 2015. Análisis epidemiológico sobre las anomalías congénitas en recién nacidos, registradas durante el 2014 en la República Argentina. URL: http:/www.msal.gob.ar/images/stories/bes/graficos/000000711cnt-Reporte%20Renac%202015-web_2016.pdf
Monasterio, L., Ford, A., & Tastets, M. E. (2016). Fisuras labio palatinas. Tratamiento multidisciplinario. Revista Médica Clínica Las Condes, 27(1), 14-21. https://doi.org/10.1016/j.rmclc.2016.01.003
Muñoz, L., Suárez, F., & Zarante, I. (2006). Calidad de vida en familias con niños menores de dos años afectados por malformaciones congénitas perspectiva del cuidador principal. Univ. Psychol. 5(3), 457-473. URL: http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S1657-92672006000300003&lng=pt&tlng=es.
Nguyen, V. T., & Jagomägi, T. (2018). Maternal Experiences of Having a Child with a Cleft. J Otol Rhinol, 7:5. https://doi.org/ 10.4172/2324-8785.1000361
Ortega, J., & Vázquez, N. (2018). Diagnóstico de fisura labio palatina en niños pequeños de Nicaragua: impacto del diagnóstico a nivel familiar. Revista de la Facultad de Ciencias Médicas de Córdoba, 75(4), 270-278.
Pelentsov, L. J., Fielder, A. L., Laws, T. A., & Esterman, A. J. (2016) 1 . The supportive careneeds of parents with a child with a rare disease: results of an online survey. BMC Family Practice, 17(1), 88. https://doi.org/10.1016/j.pedn.2015.10.022
Pelentsov, L. J., Fielder, A. L., & Esterman, A. J. (2016) 2 . The supportive careneeds of parents with a child with a rare disease: a qualitative descriptive study. Journal of pediatric nursing, 31(3), e207-e218. https://doi.org/10.1016/j.pedn.2015.10.022
Pope, A. W., & Snyder, H. T. (2005). Psychosocial adjustment in children and adolescents with a craniofacial anomaly: age and sex patterns. The Cleft palate-craniofacial journal, 42(4), 349-354. https://doi.org/10.1597/04-043r.1
Pope, A. W., Tillman, K., & Snyder, H. T. (2005). Parenting stress in infancy and psychosocial adjustment in toddlerhood: a longitudinal study of children with craniofacial anomalies. The Cleft palate-craniofacial journal, 42(5), 556-559. https://doi.org/10.1597/04-066r.1
Razera, A. P. R., Trettene, A. D. S., Tabaquim, M. D. L. M., & Niquerito, A. V. (2017). Study of burden among caregivers of children with cleft lip and palate. Paidéia (Ribeirão Preto), 27(68), 247-254.
Registro Nacional de Anomalías Congénitas [RENAC] (2019). Reporte anual 2019. URL: http://www.anlis.gov.ar/cenagem/wp-content/uploads/2017/07/Reporte-RENAC-2019.pdf.
Rescorla, L. A., Achenbach, T. M., Ivanova, M. Y., Harder, V. S., Otten, L., Bilenberg, N., ...&Dobrean, A. (2011). International comparisons of behavioral and emotional problems in preschool children: parents' reports from 24 societies. Journal of Clinical Child & Adolescent Psychology, 40(3), 456-467. https://doi.org/10.1080/15374416.2011.563472
Robles-Bello, M., & Sánchez-Teruel, D. (2020). Intervención temprana en Síndrome de Down: Una revisión sistemática. Revista Iberoamericana De Psicología, 12(3), 55-70. https://doi.org/10.33881/2027-1786.rip.12306
Scallan, S., Senior, J., & Reilly, C. (2011). Williams syndrome: Daily challenges and positive impact on the family. Journal of Applied Research in Intellectual Disabilities, 24(2), 181-188. https://doi.org/10.1111/j.1468-3148.2010.00575.x
Stiernman, M., Österlind, K., Rumsey, N., Becker, M., & Persson, M. (2019). Parental and health care professional views on psychosocial and educational outcomes in patients with cleft lip and/or cleft palate. European Journal of Plastic Surgery, 42(4), 325-336. https://doi.org/10.1007/s00238-019-01530-0
Snyder, H. T., Bilboul, M. J., & Pope, A. W. (2005). Psychosocial adjustment in adolescents with craniofacial anomalies: a comparison of parent and self-reports. TheCleftpalate-craniofacialjournal, 42(5), 548-555. https://doi.org/10.1597/04-078r.1
Vázquez, N. (2015) Problemas comportamentales y emocionales en niños preescolares, su relación con la calidad del vínculo parental. Comparación entre niños que padecen enfermedades genéticas, trastornos psíquicos y población general. (Tesis Doctoral Psicología) URL: https://repositorio.uca.edu.ar/handle/123456789/509
Vázquez, N., & Samaniego, V. C. (2017). Estandarización del Child Behaviour Checklist para preescolares de población urbana de Argentina. Evaluar, 17(1): 65-79. https://doi.org/10.35670/1667-4545.v17.n1.17075
Zeytinoğlu, S., Davey, M. P., Crerand, C., & Fisher, K. (2016). Fathers of children born with cleft lip and palate: Impact of the timing of diagnosis. Families, Systems, & Health, 34(2), 150. https://doi.org/10.1037/fsh0000198
Zhang, X., Zhou, J., Meng, T., Yuelin, W. U., & Shi, B. (2016). Comparative study on the mental health status of urban and rural mothers of children with cleft lip and palate. Journal of Practical Stomatology, 32(1), 112-114.
dc.rights.none.fl_str_mv Corporación Universitaria Iberoamericana - 2020
info:eu-repo/semantics/openAccess
http://purl.org/coar/access_right/c_abf2
https://creativecommons.org/licenses/by-nc-sa/4.0/
rights_invalid_str_mv Corporación Universitaria Iberoamericana - 2020
http://purl.org/coar/access_right/c_abf2
https://creativecommons.org/licenses/by-nc-sa/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv ĬbērAM
publisher.none.fl_str_mv ĬbērAM
dc.source.none.fl_str_mv https://reviberopsicologia.ibero.edu.co/article/view/rip.13112
reponame:Repositorio Ibero
instname:Corporación Universitaria Iberoamericana
instacron:Corporación Universitaria Iberoamericana
instname_str Corporación Universitaria Iberoamericana
instacron_str Corporación Universitaria Iberoamericana
institution Corporación Universitaria Iberoamericana
reponame_str Repositorio Ibero
collection Repositorio Ibero
_version_ 1781207080843083776
spelling Problemas de salud mental en niños con fisura labiopalatinaMental Health Problems in Children with a Lip-Palatal FissureOrtega, JavieraVázquez, NataliaMental healthCleft palatePsychological assessmentChild behavior checklistSalud mentalPaladar hendidoEvaluación psicológicaChild behavior checklistPsicologíaDiscapacidadNiñezSaúde mentalFenda palatinaAvaliacao psicologicaLista de verificación de comportamiento infantilĬbērAM2020-05-19 00:00:002022-06-14T21:01:51Z2020-05-19 00:00:002022-06-14T21:01:51Z2020-05-19Artículo de revistahttp://purl.org/coar/resource_type/c_6501http://purl.org/coar/resource_type/c_6501http://purl.org/coar/version/c_970fb48d4fbd8a85Textinfo:eu-repo/semantics/articleArtículo de revistaJournal articlehttp://purl.org/redcol/resource_type/ARTREFinfo:eu-repo/semantics/publishedVersionapplication/pdf10.33881/2027-1786.rip.131122500-65172027-1786https://repositorio.ibero.edu.co/handle/001/3837https://doi.org/10.33881/2027-1786.rip.13112https://reviberopsicologia.ibero.edu.co/article/view/rip.13112reponame:Repositorio Iberoinstname:Corporación Universitaria Iberoamericanainstacron:Corporación Universitaria Iberoamericanaspahttps://reviberopsicologia.ibero.edu.co/article/download/rip.13112/1573Núm. 1 , Año 2020 : Psicología del Desarrollo: Investigaciones en torno al estudio del ciclo vital humano139112713Revista Iberoamericana de PsicologíaAbbott, J., Havermans, T., Jarvholm, S., Landau, E., Prins, Y., Smrekar, U., ... & ECFS Mental Health Working Group. (2019). Mental Health screening in cystic fibrosis centres across Europe. Journal of Cystic Fibrosis, 18(2), 299-303. https://doi.org/10.1016/j.psym.2017.08.010Achenbach, T. M., & Rescorla, L. A. (2000). Child behavior checklist for ages 1 1/2-5. ASEBA. Burlington: University of Vermont, Dept. of Psychiatry.Aguilar, M. J., López, M., Agulla, L., Lopez Morales, H., & Urquijo, S. (2019). Genómica Social: Relaciones entre teoría de la mente y cariotipo en mujeres con diagnóstico de Síndrome de Turner. Revista Iberoamericana De Psicología, 12(2), 69-78. https://doi.org/10.33881/2027-1786.rip.12207Anderson, M., Elliott, E. J., & Zurynski, Y. A. (2013). Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support. Orphanet journal of rare diseases, 8(1), 1. https://doi.org/10.1186/1750-1172-8-22Ashtiani, S., Makela, N., Carrion, P., & Austin, J. (2014). Parents' experiences of receiving their child's genetic diagnosis: A qualitative study to inform clinical genetics practice. Am. J. Med. Genet., 164(6), 1496-1502. https://doi.org/10.1002/ajmg.a.36525Barlow, J. H., & Ellard, D. R. (2006). The psychosocial well‐being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child: care, health and development, 32(1), 19-31. https://doi.org/10.1111/j.1365-2214.2006.00591.xBenderly, M., Kalter-Leibovici, O., Weitzman, D., Blieden, L., Buber, J., Dadashev, A., ... & Yalonetsky, S. (2018). P2605 Depression and anxiety are associated with high healthcare resource utilization among adults with congenital heart disease. European Heart Journal, 39(suppl_1), ehy565-P2605.Bilboul, M. J., Pope, A. W., & Snyder, H. T. (2006). Adolescents with craniofacial anomalies: psychosocial adjustment as a function of self-concept. TheCleftpalate-craniofacialjournal, 43(4), 392-400. https://doi.org/10.1597/05-084.1Crerand, C. E., M. Kapa, H., & Litteral, J. (2017). A review of psychosocial risks and management for children with cleft lip and/or palate. Perspectives of the ASHA Special Interest Groups, 2(5), 23-34. https://doi.org/10.1044/persp2.SIG5.23Corbo Rodríguez, M. T., & Marimón Torres, M. E. (2001). Labio y paladar fisurados: Aspectos generales que se deben conocer en la atención primaria de salud. Revista cubana de medicina general integral, 17(4), 379-385. URL: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S0864-21252001000400011&lng=es&tlng=enGarcia Escudero, M. P., Ricaurte Jaramillo, M. C., & Suarez Montes, V. (2016). Afectaciones de comportamiento en el individuo afectado por labio y paladar hendido (LPH) y en su familia. Tesis doctoral. URL: http://www.bdigital.ces.edu.co:8080/repositorio/bitstream/10946/4082/2/Afectaciones_Labio_Paladar_Hendido.pdfHa, P., Zhuge, X. Q., Zheng, Q., Shi, B., Gong, C. X., & Wang, Y. (2013). Behavioral pattern in Chinese school-aged children with cleft lip and palate. Asian Pacific journal of tropical medicine, 6(2), 162-166. https://doi.org/10.1016/S1995-7645(13)60016-4Hall, H. R., Neely-Barnes, S. L., Graff, J. C., Krcek, T. E., Roberts, R. J., &Hankins, J. S. (2012). Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation. Issues in comprehensive pediatric nursing, 35(1), 24-44. https://doi.org/10.3109/01460862.2012.646479Hunt, O., Burden, D., Hepper, P., & Johnston, C. (2005). The psychosocial effects of cleft lip and palate: a systematic review. European journal of orthodontics, 27(3), 274-285. https://doi.org/10.1093/ejo/cji004Ivanova, M. Y., Achenbach, T. M., Rescorla, L. A., Harder, V. S., Ang, R. P., Bilenberg, N., & Dobrean, A. (2010). Preschool psychopathology reported by parents in 23 societies: testing the seven-syndrome model of the child behavior checklist for ages 1.5–5. Journal of the American Academy of Child & Adolescent Psychiatry, 49(12), 1215-1224. https://doi.org/10.1016/j.jaac.2010.08.019Klein, T. P., Pope, A., & Abbott, R. (2014). Social interactions of school-aged children with CFA: mothers' perspectives and advice. The Cleft Palate-Craniofacial Journal, 51(3), 300-307. https://doi.org/10.1597/12-178Kumar, K., Kumar, S., Mehrotra, D., Gupta, S., Khandpur, S., & Mishra, R. K. (2020). A Psychologic Assessment of the Parents of Patients With Cleft Lip and Palate. Journal of Craniofacial Surgery, 31(1), 58-61. http://dx.doi.org/10.1037/fsh0000198Lewis, C. W., Jacob, L. S., & Lehmann, C. U. (2017). The primary care pediatrician and the care of children with cleft lip and/or cleft palate. Pediatrics, 139(5), e20170628. https://doi.org/10.1542/peds.2017-0628Ministerio de Salud Presidencia de la Nación (2015). Más de 600 niños fueron incorporados a la Red Federal de Atención de Anomalías Congénitas. Información pública y comunicación. URL: http://www.msal.gob.ar/prensa/index.php?option=com_content&view=article&id=2974:mas-de-600-ninos-fueron-incorporados-a-la-red-federal-de-atencion-de-anomalias-congenitas&catid=1:noticias2974Ministerio de Salud Presidencia de la Nación. (s.f.). Material para equipos de salud. Reporte anual 2015. Análisis epidemiológico sobre las anomalías congénitas en recién nacidos, registradas durante el 2014 en la República Argentina. URL: http:/www.msal.gob.ar/images/stories/bes/graficos/000000711cnt-Reporte%20Renac%202015-web_2016.pdfMonasterio, L., Ford, A., & Tastets, M. E. (2016). Fisuras labio palatinas. Tratamiento multidisciplinario. Revista Médica Clínica Las Condes, 27(1), 14-21. https://doi.org/10.1016/j.rmclc.2016.01.003Muñoz, L., Suárez, F., & Zarante, I. (2006). Calidad de vida en familias con niños menores de dos años afectados por malformaciones congénitas perspectiva del cuidador principal. Univ. Psychol. 5(3), 457-473. URL: http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S1657-92672006000300003&lng=pt&tlng=es.Nguyen, V. T., & Jagomägi, T. (2018). Maternal Experiences of Having a Child with a Cleft. J Otol Rhinol, 7:5. https://doi.org/ 10.4172/2324-8785.1000361Ortega, J., & Vázquez, N. (2018). Diagnóstico de fisura labio palatina en niños pequeños de Nicaragua: impacto del diagnóstico a nivel familiar. Revista de la Facultad de Ciencias Médicas de Córdoba, 75(4), 270-278.Pelentsov, L. J., Fielder, A. L., Laws, T. A., & Esterman, A. J. (2016) 1 . The supportive careneeds of parents with a child with a rare disease: results of an online survey. BMC Family Practice, 17(1), 88. https://doi.org/10.1016/j.pedn.2015.10.022Pelentsov, L. J., Fielder, A. L., & Esterman, A. J. (2016) 2 . The supportive careneeds of parents with a child with a rare disease: a qualitative descriptive study. Journal of pediatric nursing, 31(3), e207-e218. https://doi.org/10.1016/j.pedn.2015.10.022Pope, A. W., & Snyder, H. T. (2005). Psychosocial adjustment in children and adolescents with a craniofacial anomaly: age and sex patterns. The Cleft palate-craniofacial journal, 42(4), 349-354. https://doi.org/10.1597/04-043r.1Pope, A. W., Tillman, K., & Snyder, H. T. (2005). Parenting stress in infancy and psychosocial adjustment in toddlerhood: a longitudinal study of children with craniofacial anomalies. The Cleft palate-craniofacial journal, 42(5), 556-559. https://doi.org/10.1597/04-066r.1Razera, A. P. R., Trettene, A. D. S., Tabaquim, M. D. L. M., & Niquerito, A. V. (2017). Study of burden among caregivers of children with cleft lip and palate. Paidéia (Ribeirão Preto), 27(68), 247-254.Registro Nacional de Anomalías Congénitas [RENAC] (2019). Reporte anual 2019. URL: http://www.anlis.gov.ar/cenagem/wp-content/uploads/2017/07/Reporte-RENAC-2019.pdf.Rescorla, L. A., Achenbach, T. M., Ivanova, M. Y., Harder, V. S., Otten, L., Bilenberg, N., ...&Dobrean, A. (2011). International comparisons of behavioral and emotional problems in preschool children: parents' reports from 24 societies. Journal of Clinical Child & Adolescent Psychology, 40(3), 456-467. https://doi.org/10.1080/15374416.2011.563472Robles-Bello, M., & Sánchez-Teruel, D. (2020). Intervención temprana en Síndrome de Down: Una revisión sistemática. Revista Iberoamericana De Psicología, 12(3), 55-70. https://doi.org/10.33881/2027-1786.rip.12306Scallan, S., Senior, J., & Reilly, C. (2011). Williams syndrome: Daily challenges and positive impact on the family. Journal of Applied Research in Intellectual Disabilities, 24(2), 181-188. https://doi.org/10.1111/j.1468-3148.2010.00575.xStiernman, M., Österlind, K., Rumsey, N., Becker, M., & Persson, M. (2019). Parental and health care professional views on psychosocial and educational outcomes in patients with cleft lip and/or cleft palate. European Journal of Plastic Surgery, 42(4), 325-336. https://doi.org/10.1007/s00238-019-01530-0Snyder, H. T., Bilboul, M. J., & Pope, A. W. (2005). Psychosocial adjustment in adolescents with craniofacial anomalies: a comparison of parent and self-reports. TheCleftpalate-craniofacialjournal, 42(5), 548-555. https://doi.org/10.1597/04-078r.1Vázquez, N. (2015) Problemas comportamentales y emocionales en niños preescolares, su relación con la calidad del vínculo parental. Comparación entre niños que padecen enfermedades genéticas, trastornos psíquicos y población general. (Tesis Doctoral Psicología) URL: https://repositorio.uca.edu.ar/handle/123456789/509Vázquez, N., & Samaniego, V. C. (2017). Estandarización del Child Behaviour Checklist para preescolares de población urbana de Argentina. Evaluar, 17(1): 65-79. https://doi.org/10.35670/1667-4545.v17.n1.17075Zeytinoğlu, S., Davey, M. P., Crerand, C., & Fisher, K. (2016). Fathers of children born with cleft lip and palate: Impact of the timing of diagnosis. Families, Systems, & Health, 34(2), 150. https://doi.org/10.1037/fsh0000198Zhang, X., Zhou, J., Meng, T., Yuelin, W. U., & Shi, B. (2016). Comparative study on the mental health status of urban and rural mothers of children with cleft lip and palate. Journal of Practical Stomatology, 32(1), 112-114.Corporación Universitaria Iberoamericana - 2020info:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2https://creativecommons.org/licenses/by-nc-sa/4.0/2023-03-12T21:45:44Z