Informed consent for genetic information management in Colombian law.

Deciphering the human genome has allowed the development of new health care ways which have been generically referred to as genomic medicine. However, this new knowledge is not devoid of risks related to the access and use of genetic information, involving not only the individual, but also the biolo...

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Autores:
Tipo de recurso:
Fecha de publicación:
2011
Institución:
Universidad del Rosario
Repositorio:
Repositorio EdocUR - U. Rosario
Idioma:
eng
OAI Identifier:
oai:repository.urosario.edu.co:10336/23106
Acceso en línea:
https://repository.urosario.edu.co/handle/10336/23106
Palabra clave:
Article
Colombia
Genetic privacy
Genetic screening
Human
Informed consent
Legal aspect
Colombia
Genetic privacy
Genetic testing
Humans
Informed consent
Rights
License
Abierto (Texto Completo)
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oai_identifier_str oai:repository.urosario.edu.co:10336/23106
network_acronym_str EDOCUR2
network_name_str Repositorio EdocUR - U. Rosario
repository_id_str
spelling 396641966002020-05-25T23:59:47Z2020-05-25T23:59:47Z2011Deciphering the human genome has allowed the development of new health care ways which have been generically referred to as genomic medicine. However, this new knowledge is not devoid of risks related to the access and use of genetic information, involving not only the individual, but also the biological family, ethnic group and community to which he/she belong to. This affects both individual and collective rights, which must be protected by law. This manuscript reviews the Colombian law, specifically in terms of the access and use of genetic information for diagnostic and treatment purposes, focusing on the informed consent process. The concept of genetic information, the risks and benefits associated with genetic data management and the description and critical analysis of the present Colombian regulations were thus reviewed. As a conclusion, the juridical framework of Colombia shows deficiencies regarding the protection of both individual and collective rights linked to the access and use of genetic information.application/pdfhttps://repository.urosario.edu.co/handle/10336/23106eng223No. 35183Revista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de BizkaiaRevista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia,No.35 (2011); pp. 183-223https://www.scopus.com/inward/record.uri?eid=2-s2.0-84867852657&partnerID=40&md5=dbc424e16a77a054549eea39ecdedbf9Abierto (Texto Completo)http://purl.org/coar/access_right/c_abf2instname:Universidad del Rosarioreponame:Repositorio Institucional EdocURArticleColombiaGenetic privacyGenetic screeningHumanInformed consentLegal aspectColombiaGenetic privacyGenetic testingHumansInformed consentInformed consent for genetic information management in Colombian law.Consentimiento informado para el tratamiento de la información genética en el derecho colombiano.articleArtículohttp://purl.org/coar/version/c_970fb48d4fbd8a85http://purl.org/coar/resource_type/c_6501Gómez, Ana Isabel10336/23106oai:repository.urosario.edu.co:10336/231062022-05-02 07:37:17.866856https://repository.urosario.edu.coRepositorio institucional EdocURedocur@urosario.edu.co
dc.title.spa.fl_str_mv Informed consent for genetic information management in Colombian law.
dc.title.TranslatedTitle.spa.fl_str_mv Consentimiento informado para el tratamiento de la información genética en el derecho colombiano.
title Informed consent for genetic information management in Colombian law.
spellingShingle Informed consent for genetic information management in Colombian law.
Article
Colombia
Genetic privacy
Genetic screening
Human
Informed consent
Legal aspect
Colombia
Genetic privacy
Genetic testing
Humans
Informed consent
title_short Informed consent for genetic information management in Colombian law.
title_full Informed consent for genetic information management in Colombian law.
title_fullStr Informed consent for genetic information management in Colombian law.
title_full_unstemmed Informed consent for genetic information management in Colombian law.
title_sort Informed consent for genetic information management in Colombian law.
dc.subject.keyword.spa.fl_str_mv Article
Colombia
Genetic privacy
Genetic screening
Human
Informed consent
Legal aspect
Colombia
Genetic privacy
Genetic testing
Humans
Informed consent
topic Article
Colombia
Genetic privacy
Genetic screening
Human
Informed consent
Legal aspect
Colombia
Genetic privacy
Genetic testing
Humans
Informed consent
description Deciphering the human genome has allowed the development of new health care ways which have been generically referred to as genomic medicine. However, this new knowledge is not devoid of risks related to the access and use of genetic information, involving not only the individual, but also the biological family, ethnic group and community to which he/she belong to. This affects both individual and collective rights, which must be protected by law. This manuscript reviews the Colombian law, specifically in terms of the access and use of genetic information for diagnostic and treatment purposes, focusing on the informed consent process. The concept of genetic information, the risks and benefits associated with genetic data management and the description and critical analysis of the present Colombian regulations were thus reviewed. As a conclusion, the juridical framework of Colombia shows deficiencies regarding the protection of both individual and collective rights linked to the access and use of genetic information.
publishDate 2011
dc.date.created.spa.fl_str_mv 2011
dc.date.accessioned.none.fl_str_mv 2020-05-25T23:59:47Z
dc.date.available.none.fl_str_mv 2020-05-25T23:59:47Z
dc.type.eng.fl_str_mv article
dc.type.coarversion.fl_str_mv http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.coar.fl_str_mv http://purl.org/coar/resource_type/c_6501
dc.type.spa.spa.fl_str_mv Artículo
dc.identifier.uri.none.fl_str_mv https://repository.urosario.edu.co/handle/10336/23106
url https://repository.urosario.edu.co/handle/10336/23106
dc.language.iso.spa.fl_str_mv eng
language eng
dc.relation.citationEndPage.none.fl_str_mv 223
dc.relation.citationIssue.none.fl_str_mv No. 35
dc.relation.citationStartPage.none.fl_str_mv 183
dc.relation.citationTitle.none.fl_str_mv Revista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia
dc.relation.ispartof.spa.fl_str_mv Revista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia,No.35 (2011); pp. 183-223
dc.relation.uri.spa.fl_str_mv https://www.scopus.com/inward/record.uri?eid=2-s2.0-84867852657&partnerID=40&md5=dbc424e16a77a054549eea39ecdedbf9
dc.rights.coar.fl_str_mv http://purl.org/coar/access_right/c_abf2
dc.rights.acceso.spa.fl_str_mv Abierto (Texto Completo)
rights_invalid_str_mv Abierto (Texto Completo)
http://purl.org/coar/access_right/c_abf2
dc.format.mimetype.none.fl_str_mv application/pdf
institution Universidad del Rosario
dc.source.instname.spa.fl_str_mv instname:Universidad del Rosario
dc.source.reponame.spa.fl_str_mv reponame:Repositorio Institucional EdocUR
repository.name.fl_str_mv Repositorio institucional EdocUR
repository.mail.fl_str_mv edocur@urosario.edu.co
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