Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad

El rol de cuidador familiar es crucial en la atención de seres queridos, sin embargo, conlleva una sobrecarga que puede impactar diversas áreas en la vida, con afectaciones físicas, emocionales, sociales y económicas. Los cuidadores tienen estrategias de afrontamiento las cuales varían y permiten en...

Full description

Autores:: Bastidas Fernández, Karol Marcela
López Motta, Juan Pablo
Ruiz Silva, Juana Valentina

Tipo de recurso:: Trabajo de grado de pregrado

Fecha de publicación:: 2024

Institución:: Universidad Cooperativa de Colombia

Repositorio:: Repositorio UCC

Idioma:: spa

id	COOPER2_38769302c4bde6847210ffb396ac160d
oai_identifier_str	oai:repository.ucc.edu.co:20.500.12494/56925
network_acronym_str	COOPER2
network_name_str	Repositorio UCC
repository_id_str
dc.title.none.fl_str_mv	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad
dc.title.translated.none.fl_str_mv	Overload and coping strategies in family caregivers of students with neurodiversity
title	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad
spellingShingle	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad Cuidadores familiares Sobrecarga Estrategias de afrontamiento Neurodiversidad Primary caregivers Overload Coping strategies Neurodiversity
title_short	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad
title_full	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad
title_fullStr	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad
title_full_unstemmed	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad
title_sort	Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad
dc.creator.fl_str_mv	Bastidas Fernández, Karol Marcela López Motta, Juan Pablo Ruiz Silva, Juana Valentina
dc.contributor.advisor.none.fl_str_mv	Ojeda Lopeda, Pablo César Pérez Arizabaleta, María del Mar
dc.contributor.author.none.fl_str_mv	Bastidas Fernández, Karol Marcela López Motta, Juan Pablo Ruiz Silva, Juana Valentina
dc.subject.proposal.spa.fl_str_mv	Cuidadores familiares Sobrecarga Estrategias de afrontamiento Neurodiversidad
topic	Cuidadores familiares Sobrecarga Estrategias de afrontamiento Neurodiversidad Primary caregivers Overload Coping strategies Neurodiversity
dc.subject.proposal.eng.fl_str_mv	Primary caregivers Overload Coping strategies Neurodiversity
description	El rol de cuidador familiar es crucial en la atención de seres queridos, sin embargo, conlleva una sobrecarga que puede impactar diversas áreas en la vida, con afectaciones físicas, emocionales, sociales y económicas. Los cuidadores tienen estrategias de afrontamiento las cuales varían y permiten enfrentar sucesos tensionantes según los recursos personales que tiene cada uno. Este estudio tuvo como objetivo identificar los niveles de sobrecarga y las estrategias de afrontamiento utilizadas por los cuidadores familiares de niños estudiantes con neurodiversidad. La investigación se realizó con un diseño cuantitativo descriptivo, no experimental y contó con una muestra no probabilística de 15 cuidadores familiares. Para la recolección de datos, se aplicó una encuesta sociodemográfica y los instrumentos Escala de Sobrecarga del Cuidador de Zarit (ZCBI) y la Escala de Modos de Afrontamiento. Los resultados revelaron que la estrategia “Autocontrol” es la más comúnmente empleada, mientras que existe una tendencia mínima a utilizar la estrategia “Aceptación de la responsabilidad”, independiente del nivel de sobrecarga percibido por cada sujeto de la muestra. Se concluyó que para propiciar el bienestar de los cuidadores familiares es fundamental priorizar su participación en programas y/o grupos que atiendan las necesidades de apoyo social, emocional y de formación acorde al rol del cuidador
publishDate	2024
dc.date.accessioned.none.fl_str_mv	2024-08-15T20:32:14Z
dc.date.available.none.fl_str_mv	2024-08-15T20:32:14Z
dc.date.issued.none.fl_str_mv	2024-07
dc.type.none.fl_str_mv	Trabajo de grado - Pregrado
dc.type.coar.none.fl_str_mv	http://purl.org/coar/resource_type/c_7a1f
dc.type.content.none.fl_str_mv	Text
dc.type.driver.none.fl_str_mv	info:eu-repo/semantics/bachelorThesis
dc.type.redcol.none.fl_str_mv	http://purl.org/redcol/resource_type/TP
dc.type.version.none.fl_str_mv	info:eu-repo/semantics/acceptedVersion
format	http://purl.org/coar/resource_type/c_7a1f
status_str	acceptedVersion
dc.identifier.citation.none.fl_str_mv	Bastidas Fernández, K. M., López Motta. J. P. y Ruiz Silva, J. V. (2024). Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad [Tesis de pregrado, Universidad Cooperativa de Colombia]. Repositorio Institucional Universidad Cooperativa de Colombia. https://hdl.handle.net/20.500.12494/56925
dc.identifier.uri.none.fl_str_mv	https://hdl.handle.net/20.500.12494/56925
identifier_str_mv	Bastidas Fernández, K. M., López Motta. J. P. y Ruiz Silva, J. V. (2024). Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad [Tesis de pregrado, Universidad Cooperativa de Colombia]. Repositorio Institucional Universidad Cooperativa de Colombia. https://hdl.handle.net/20.500.12494/56925
url	https://hdl.handle.net/20.500.12494/56925
dc.language.iso.none.fl_str_mv	spa
language	spa
dc.relation.references.none.fl_str_mv	Adashek, J. J., & Subbiah, I. M. (2020). Caring for the caregiver: a systematic review characterising the experience of caregivers of older adults with advanced cancers. ESMO open. doi:10.1136/esmoopen-2020-000862 Ahn, S., & Logan, J. G. (2022). Perceived role overload and physical symptom experience among caregivers of older adults: The moderating effect of social support. Geriatric nursing, 197–205. doi:https://doi.org/10.1016/j.gerinurse.2021.11.021 Alonso Cortés, B., González Cabanach, R., & Seco Calvo, J. (2021). Involvement in self-care and psychological well-being of Spanish family caregivers of relatives with dementia. Health & social care in the community, 1308–1316. doi:https://doi.org/10.1111/hsc.13171 Alzheimer's Association. (2013). 2013 Alzheimer's disease facts and figures. Alzheimer's & dementia : the journal of the Alzheimer's Association, 208–245. doi:https://doi.org/10.1016/j.jalz.2013.02.003 Baptista, B. O., Beuter, M., Girardon-Perlini, N. M., Brondanid, C. M., Budó, M. L., & Santos, N. O. (2012). A sobrecarga do familiar cuidador no âmbito domiciliar: uma revisão integrativa da literatura [Overload of family caregiver at home: an integrative literature review]. Revista gaucha de enfermagem, 147–156. Bar, S., Stephens, S. B., Mathew, M. S., Messiah, S. E., & Edgar, V. B. (2023). Quality of Life Among Caregivers of Children with Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder: A Cross Sectional Study. Journal of Autism and Developmental Disorders. doi:https://doi.org/10.1007/s10803-023-06129-w Brantley, P., O'Hea, E., Jones, G., & Mehan, D. (2002). The Influence of Income Level and Ethnicity on Coping Strategies. Journal of Psychopathology and Behavioral Assessment, 39–45. doi:https://doi.org/10.1023/A:1014001208005 Bressan, V., Visintini, C., & Palese, A. (2020). What do family caregivers of people with dementia need? A mixed-method systematic review. Health & social care in the community, 1942–1960. doi:https://doi.org/10.1111/hsc.13048 Brien-Bérard, M., & des Rivières-Pigeon, C. (2023). Coping Strategies and the Marital Relationship Among Parents Raising Children with ASD. Journal of Child and Family Studies, 908–925. doi:https://doi.org/10.1007/s10826-022-02332-y Brotman, S., Sussman, T., Pacheco, L., Dickson, D., Lach, L., Raymond, E., . . . Milot, E. (2021). The Crisis Facing Older People Living with Neurodiversity and Their Aging Family Carers: A Social Work Perspective. Journal of Gerontological Social Work, 547–556. doi:https://doi.org/10.1080/01634372.2021.1920537 Cantillo Medina, C. P., Perdomo Romero, A. Y., & Ramírez Perdomo, C. A. (2022). Characteristics and experiences of family caregivers in the mental health setting. Revista Peruana De Medicina Experimental Y Salud Pública. doi:https://doi.org/10.17843/rpmesp.2022.392.11111 Cardoso AL, S.-J. G., Bastos, L., Cesar, A., Serrano, L., Dziedzic, A., & Picciani, B. (2023). Preliminary Assessment of the Quality of Lifeand Daily Burden of Caregivers of Persons with Special Needs: A Questionnaire-Based, Cross-Sectional Survey. International Journal of Environmental Research and Public Health. doi:https://doi.org/10.3390/ijerph20032012 Colombo-Dougovito, A., Rocco Dillon, S., & Mpofu, E. (2020). The Wellbeing of People with Neurodiverse Conditions. Sustainable Community Health. doi:https://doi.org/10.1007/978-3-030-59687- 3_15 Congreso de la República. (2006, 6 de septiembre). Ley 1090 de 2006. Obtenido de https://www.colpsic.org.co/wp- content/uploads/2021/03/Ley-1090-de-2006-anotacionesjurisprudencia.pdf Dardas, L., & Ahmad, M. (2013). Coping Strategies as Mediators and Moderators between Stress and Quality of Life among Parents of Children with Autistic Disorder. Stress & Health, 5-12. doi:https://doi.org/10.1002/smi.2513 den Houting, J. (2019). Neurodiversity: An insider’s perspective. 271-273. doi:https://doi.org/10.1177/1362361318820762 Fairfax, A., Bréhaut, J., Colman, I., Sikora, L., Kazakova, A., Chakraborty, P., & Potter, B. K. (2019). A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability. BMC Pediatr. doi:https://doi.org/10.1186/s12887-019-1587-3 Folkman, S., & Lazarus, R. (1984). Stress, appraisal and coping. Springer Publishing Company. Folkman, S., Lazarus, R., Dunkel-Schetter, C., DeLongis, A., & Gruen, R. ((1986).). Dynamics of a stressful encounter: Cognitive appraisal, coping, and encounter outcomes. Journal of Personality and Social Psychology, 992–1003. Obtenido de https://delongis- psych.sites.olt.ubc.ca/files/2018/03/Dynamics-of-a-stressful- encounter.pdf Grau Valdés, Y., Rodriguez Umpierre, R., & Martínez Rodríguez, L. (2019). Sentido personal del rol y estrategias de afrontamiento en cuidadores de pacientes en hemodiálisis. International Journal of Developmental and Educational Psychology., 269-282. doi:https://doi.org/10.17060/ijodaep.2019.n1.v2.1440 Gray, D. (2003). Gender and coping: the parents of children with high functioning autism. Social Science & Medicine, 631-642. doi:https://doi.org/10.1016/s0277-9536(02)00059-x Hastings, R., Kovshoff, H., Brown, T., Ward, N., Espinosa, F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism : the international journal of research and practice, 377–391. doi:https://doi.org/10.1177/1362361305056078 Hawken, T., Turner-Cobb, J., & Barnett., J. (2018). Coping and adjustment in caregivers: A systematic review. Health Psychology Open. doi:https://doi.org/10.1177/2055102918810659 Hernández Padilla, J. M., Ruiz Fernández, M. D., Granero Molina, J., Ortíz Amo, R., López Rodríguez, M. M., & Fernández-Sola, C. (2021). Perceived health, caregiver overload and perceived social support in family caregivers of patients with Alzheimer's: Gender differences. Health & social care in the community, 1001–1009. doi:https://doi.org/10.1111/hsc.13134 Hernández Sampieri, R., Fernández Collado, C., & Batipsta Lucio, P. (2006). Metodología de la investigación. Obtenido de https://www.uv.mx/personal/cbustamante/files/2011/06/Metodolog ia-de-la-Investigaci%C3%83%C2%B3n_Sampieri.pdf Jaarsma, P., & Welin, S. (2012). Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement. Health Care Anal, 20–30. doi:https://doi.org/10.1007/s10728-011-0169-9 Kim, K. S. (2021). Caregivers’ Information Overload and Their Personal Health Literacy. Western Journal of Nursing Research, 431-441. doi:doi:10.1177/0193945920959086 Lai, W., Goh, T., Oei, T., & Sung, M. (2015). Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD). Journal of Autism and Developmental Disorders, 2582–2593. doi:https://doi.org/10.1007/s10803-015-2430-9 León, Á. G. (2023). Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol. International journal of environmental research and public health. doi:https://doi.org/10.3390/ijerph20065081 Lindt, N., Berkel, J. v., & Mulder, B. C. (2020). Determinants of overburdening among informal carers: a systematic review. BMC Geriatr. doi:https://doi.org/10.1186/s12877-020-01708-3695X2020000100013&lng=es&tlng=es. Martinez, S. (2020). Síndrome del cuidador quemado. Revista Clínica de Medicina de Familia. Obtenido de http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1699- Ministerio de Salud. (1993, 4 de octubre ). Resolución 8430 de 1993. Obtenido de https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RID E/DE/DIJ/RESOLUCION-8430-DE-1993.pdf O. Jack-Ide, I., Uys, L. R., & Middleton, L. E. (2013). Caregiving experiences of families of persons with serious mental health problems in the Niger Delta region of Nigeria. International journal of mental health nursing, 170–179. doi:https://doi.org/10.1111/j.1447-0349.2012.00853.x Oleas, D., Yong, C., Garza, X., Teixeira, F., Lucero, J., & Salas, A. (2024). Emotional Coping Strategies for Informal Caregivers of Hospitalized Patients: A Study of Distress and Overload. Psychology Research and Behavior Management, 725—734. doi:https://doi.org/10.2147/PRBM.S443200 Pahlavanzadeh, S., Mousavi, S., & Maghsoudi, J. (2018). Exploring the Needs of Family Caregivers of Children with Attention Deficit Hyperactivity Disorder: A Qualitative Study. Iranian journal of nursing and midwifery research, 149–154. doi:https://doi.org/10.4103/ijnmr.IJNMR_16_17 Palacio, C., Krikorian, A., Gómez-Romero, M. J., & Limonero, ,. J. (2020). Resilience in Caregivers: A Systematic Review. American Journal of Hospice and Palliative Medicine, 648-658. doi:10.1177/1049909119893977 Peng, M. M., Xing, J., Tang, X., Wu, Q., Wei, D., & Ran, M. S. (2022). Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia: A Systematic Review and Meta-Analysis. International Journal of Environmental Research and Public Health. doi:https://doi.org/10.3390/ijerph19031862 Pisula, E., & Kossakowska, Z. (2010). Sense of Coherence and Coping with Stress Among Mothers and Fathers of Children with Autism. Journal of Autism and Developmental Disorders, 1485–1494. doi: https://doi.org/10.1007/s10803-010-1001-3 Provencher, H., Fournier, J.-P., Perreault, M., & Vezina, J. (2000). The Caregiver's Perception of Behavioral Disturbance in Relatives with Schizophrenia: A Stress-Coping Approach. Community Ment Health, 293–306. doi:https://doi.org/10.1023/A:1001961331890 Roig, M. V., Abengózar Torres, M. C., & Serra Desfilis, E. (1998). La sobrecarga en los cuidadores principales de Enfermos de Alzheimer. Anales de Psicología / Annals of Psychology, 215–227. Obtenido de https://revistas.um.es/analesps/article/view/31561 Romaniuk, A., Ward, M., Henrikson, B., Cochrane, K., & Theule, J. (2022). Family Quality of Life Perceived by Mothers of Children with ASD and ADHD. Child Psychiatry & Human Development, 510–519. doi:https://doi.org/10.1007/s10578-022-01422-8 Sanches, S. M., Pipek, L. Z., Mesquita, G. H., Nii, F. M., Carvalho, B. J., D'Albuquerque, L. A., & Meyer, A. &. (2022). The impact of stressors and overload on informal caregivers of patients with cirrhosis: The first use of the Burden Scale for Family Caregivers in Brazil. Journal of health psychology, 408–421. doi:https://doi.org/10.1177/1359105320953464 Schuck, R., Tagavi, D., Baiden, K., Dwyer, P., Williams, Z., Osuna, A., Vernon, T. (2022). . Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework. Journal of Autism and Developmental Disorders, 4625–4645. doi:https://doi.org/10.1007/s10803-021-05316-x Silva, A. R., Fhon, J. R., Rodrigues, R. A., & Leite, M. T. (2021). Caregiver overload and factors associated with care provided to patients under palliative care. Investigacion y educacion en enfermeria. doi: https://doi.org/10.17533/udea.iee.v39n1e10 Silva, J., Gonzales, J., Mas, T., Marques, S., & Partezani, R. (2016). Sobrecarga y calidad de vida del cuidador principal del adulto mayor. Avances en Enfermería. doi:https://doi.org/10.15446/av.enferm.v34n3.58704 Solaiman, M., Morshed, A., Morshed, A., Mullick, M., Rahman, M., & Ahmed, S. (2023). Psychological distress and perceived burden among Bangladeshi parents of children with autism spectrum disorder: A cross-sectional study. Psychological Studies, 319–325. doi:https://doi.org/10.1007/s12646-023-00720-y Song, J., Shin, D., Choi, J., Kang, J., Baik, Y., Mo, H., . . . Kim, E. (2011). Quality of life and mental health in family caregivers of patients with terminal cancer. Support Care Cancer, 1519–1526. doi:https://doi.org/10.1007/s00520-010-0977-8 Souza, A., Guimarães, R., de Araújo, D., Machado de Assis, R., Cavalcante, L., Rezende, M., . . . Barbosa, M. (2017). Factors associated with the burden of family caregivers of patients with mental disorders: a cross-sectional study. BMC Psychiatry. doi:https://doi.org/10.1186/s12888-017-1501-1 Van Den Wijngaart, M., Vernooij-Dassen, M., & Felling, A. (2007). The influence of stressors, appraisal and personal conditions on the burden of spousal caregivers of persons with dementia. Aging & Mental Health, 626-636. doi:https://doi.org/10.1080/13607860701368463 van Roij, J., Brom, L., Sommeijer, D., van de Poll-Franse, L., & Raijmakers, N. (2021). Self-care, resilience, and caregiver burden in relatives of patients with advanced cancer: results from the eQuiPe study. Support Care Cancer, 7975–7984. doi:https://doi.org/10.1007/s00520-021-06365-9 Vanderburg, J., Pagán, A., & Pearson, D. (2024). Neurodiversity Framework: Model, Tenets, and Critiques. The Palgrave Encyclopedia of Disability. doi:https://doi.org/10.1007/978-3-031- 40858-8_65-1 Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities. Journal of Autism and Developmental Disorders, 783–795. doi:https://doi.org/10.1007/s10803-010-1099-3 Whitford, K. J., Ulrich, A. M., Larsen, B. E., Phelps, C. M., Siska, M. J., Bigelow, M. L., . . . Lapid, M. I. (2023). Music Therapy Intervention to Reduce Caregiver Distress at End of Life: A Feasibility Study. Journal of pain and symptom management, 417–423. doi:https://doi.org/10.1016/j.jpainsymman.2023.01.009 Xavier, F., & Esperandio, M. (2023). Spirituality and Caregiver Burden of People with Intellectual Disabilities: an Empirical Study. International Journal of Latin American Religions, 17–35. doi:https://doi.org/10.1007/s41603-023-00196-8 Zambrano, E. M., & Guerra, M. D. (2012). Formación del cuidador informal: relación con el tiempo de cuidado a personas dependientes mayores de 65 años. Aquichan. Obtenido de http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S1657 -59972012000300004&lng=en&tlng=es
dc.rights.accessrights.none.fl_str_mv	info:eu-repo/semantics/openAccess
dc.rights.coar.none.fl_str_mv	http://purl.org/coar/access_right/c_abf2
eu_rights_str_mv	openAccess
rights_invalid_str_mv	http://purl.org/coar/access_right/c_abf2
dc.format.extent.none.fl_str_mv	52 p.
dc.format.mimetype.none.fl_str_mv	application/pdf
dc.publisher.none.fl_str_mv	Universidad Cooperativa de Colombia, Facultad de Ciencias Sociales, Psicología, Cali
dc.publisher.program.none.fl_str_mv	Psicología
dc.publisher.faculty.none.fl_str_mv	Ciencias Sociales
dc.publisher.place.none.fl_str_mv	Cali
dc.publisher.branch.none.fl_str_mv	Cali
publisher.none.fl_str_mv	Universidad Cooperativa de Colombia, Facultad de Ciencias Sociales, Psicología, Cali
institution	Universidad Cooperativa de Colombia
bitstream.url.fl_str_mv	https://repository.ucc.edu.co/bitstreams/565fc11f-0884-4cd3-9ac8-66e63aa858b9/download https://repository.ucc.edu.co/bitstreams/bcaafb6e-0bb8-40e5-8cc6-d574d7fe8201/download https://repository.ucc.edu.co/bitstreams/e64a639f-59d7-4f0a-a8d2-ba12e5865b77/download https://repository.ucc.edu.co/bitstreams/5fa82f13-e20f-4470-a7a4-4730751d7891/download https://repository.ucc.edu.co/bitstreams/967c0fe4-53f3-4a03-8f20-975fdb2b1b29/download https://repository.ucc.edu.co/bitstreams/4ee79ac7-0606-43a5-ae42-68bebc4a6912/download https://repository.ucc.edu.co/bitstreams/ff22bde5-9d0f-4d2f-8869-703753115f5a/download https://repository.ucc.edu.co/bitstreams/8a966309-8048-4dc3-baf6-c88c5a31522a/download https://repository.ucc.edu.co/bitstreams/c7feb290-2471-4045-9c6b-68f09f81f093/download https://repository.ucc.edu.co/bitstreams/5f96daaa-ae51-41f4-80a7-6fa49fa1c744/download https://repository.ucc.edu.co/bitstreams/8aecbaf6-dd05-4879-90a6-2dca9feedc15/download https://repository.ucc.edu.co/bitstreams/fc857274-e1a9-4fc2-b789-bc769349cc2d/download
bitstream.checksum.fl_str_mv	b1f12f9319abd88880d95cf9a8ac0269 01ef21722b075f5190aa4d1e92a3827c ade48ce90f23281613b2e8ec9dfb6be7 5c87518177a42456ae0f7eeda762ee16 2c4e7c8464b251f1167069e430e8a276 3bce4f7ab09dfc588f126e1e36e98a45 c9b32be1c2bba29fc7036377c295c79f d0ea5e8c0fbd7393200d66c8f4836ad7 e1c06d85ae7b8b032bef47e42e4c08f9 0790e56d0950ab796b6ba1d12483e27b 6edb650a92e88c0b99658a6a69645686 3dd02dcec3ec5a406e7ba803a5dcb748
bitstream.checksumAlgorithm.fl_str_mv	MD5 MD5 MD5 MD5 MD5 MD5 MD5 MD5 MD5 MD5 MD5 MD5
repository.name.fl_str_mv	Repositorio Institucional Universidad Cooperativa de Colombia
repository.mail.fl_str_mv	bdigital@metabiblioteca.com
_version_	1814246942461394944
spelling	Ojeda Lopeda, Pablo CésarPérez Arizabaleta, María del MarBastidas Fernández, Karol MarcelaLópez Motta, Juan PabloRuiz Silva, Juana Valentina2024-08-15T20:32:14Z2024-08-15T20:32:14Z2024-07Bastidas Fernández, K. M., López Motta. J. P. y Ruiz Silva, J. V. (2024). Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad [Tesis de pregrado, Universidad Cooperativa de Colombia]. Repositorio Institucional Universidad Cooperativa de Colombia. https://hdl.handle.net/20.500.12494/56925https://hdl.handle.net/20.500.12494/56925El rol de cuidador familiar es crucial en la atención de seres queridos, sin embargo, conlleva una sobrecarga que puede impactar diversas áreas en la vida, con afectaciones físicas, emocionales, sociales y económicas. Los cuidadores tienen estrategias de afrontamiento las cuales varían y permiten enfrentar sucesos tensionantes según los recursos personales que tiene cada uno. Este estudio tuvo como objetivo identificar los niveles de sobrecarga y las estrategias de afrontamiento utilizadas por los cuidadores familiares de niños estudiantes con neurodiversidad. La investigación se realizó con un diseño cuantitativo descriptivo, no experimental y contó con una muestra no probabilística de 15 cuidadores familiares. Para la recolección de datos, se aplicó una encuesta sociodemográfica y los instrumentos Escala de Sobrecarga del Cuidador de Zarit (ZCBI) y la Escala de Modos de Afrontamiento. Los resultados revelaron que la estrategia “Autocontrol” es la más comúnmente empleada, mientras que existe una tendencia mínima a utilizar la estrategia “Aceptación de la responsabilidad”, independiente del nivel de sobrecarga percibido por cada sujeto de la muestra. Se concluyó que para propiciar el bienestar de los cuidadores familiares es fundamental priorizar su participación en programas y/o grupos que atiendan las necesidades de apoyo social, emocional y de formación acorde al rol del cuidadorThe role of family caregiver is crucial in caring for loved ones, however, it entails an overload that can impact various areas of life, with physical, emotional, social and economic effects. Caregivers have coping strategies which vary and allow them to face stressful events depending on the personal resources that each one has. This study aimed to identify the levels of overload and coping strategies used by family caregivers of student children with neurodiversity. The research was carried out with a descriptive, non-experimental quantitative design and included a non-probabilistic sample of 15 family caregivers. For data collection, a sociodemographic survey and the instruments Zarit Caregiver Burden Scale (ZCBI) and the Coping Modes Scale were applied. The results revealed that the “Self-control” strategy is the most commonly used, while there is a minimal tendency to use the “Acceptance of responsibility” strategy, regardless of the level of overload perceived by each subject in the sample. It was concluded that to promote the well-being of family caregivers, it is essential to prioritize their participation in programs and/or groups that address the social, emotional support and training needs according to the role of the caregiverPregrado52 p.application/pdfspaUniversidad Cooperativa de Colombia, Facultad de Ciencias Sociales, Psicología, CaliPsicologíaCiencias SocialesCaliCaliSobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidadOverload and coping strategies in family caregivers of students with neurodiversityTrabajo de grado - Pregradohttp://purl.org/coar/resource_type/c_7a1fTextinfo:eu-repo/semantics/bachelorThesishttp://purl.org/redcol/resource_type/TPinfo:eu-repo/semantics/acceptedVersionAdashek, J. J., & Subbiah, I. M. (2020). Caring for the caregiver: a systematic review characterising the experience of caregivers of older adults with advanced cancers. ESMO open. doi:10.1136/esmoopen-2020-000862Ahn, S., & Logan, J. G. (2022). Perceived role overload and physical symptom experience among caregivers of older adults: The moderating effect of social support. Geriatric nursing, 197–205. doi:https://doi.org/10.1016/j.gerinurse.2021.11.021Alonso Cortés, B., González Cabanach, R., & Seco Calvo, J. (2021). Involvement in self-care and psychological well-being of Spanish family caregivers of relatives with dementia. Health & social care in the community, 1308–1316. doi:https://doi.org/10.1111/hsc.13171Alzheimer's Association. (2013). 2013 Alzheimer's disease facts and figures. Alzheimer's & dementia : the journal of the Alzheimer's Association, 208–245. doi:https://doi.org/10.1016/j.jalz.2013.02.003Baptista, B. O., Beuter, M., Girardon-Perlini, N. M., Brondanid, C. M., Budó, M. L., & Santos, N. O. (2012). A sobrecarga do familiar cuidador no âmbito domiciliar: uma revisão integrativa da literatura [Overload of family caregiver at home: an integrative literature review]. Revista gaucha de enfermagem, 147–156.Bar, S., Stephens, S. B., Mathew, M. S., Messiah, S. E., & Edgar, V. B. (2023). Quality of Life Among Caregivers of Children with Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder: A Cross Sectional Study. Journal of Autism and Developmental Disorders. doi:https://doi.org/10.1007/s10803-023-06129-wBrantley, P., O'Hea, E., Jones, G., & Mehan, D. (2002). The Influence of Income Level and Ethnicity on Coping Strategies. Journal of Psychopathology and Behavioral Assessment, 39–45. doi:https://doi.org/10.1023/A:1014001208005Bressan, V., Visintini, C., & Palese, A. (2020). What do family caregivers of people with dementia need? A mixed-method systematic review. Health & social care in the community, 1942–1960. doi:https://doi.org/10.1111/hsc.13048Brien-Bérard, M., & des Rivières-Pigeon, C. (2023). Coping Strategies and the Marital Relationship Among Parents Raising Children with ASD. Journal of Child and Family Studies, 908–925. doi:https://doi.org/10.1007/s10826-022-02332-yBrotman, S., Sussman, T., Pacheco, L., Dickson, D., Lach, L., Raymond, E., . . . Milot, E. (2021). The Crisis Facing Older People Living with Neurodiversity and Their Aging Family Carers: A Social Work Perspective. Journal of Gerontological Social Work, 547–556. doi:https://doi.org/10.1080/01634372.2021.1920537Cantillo Medina, C. P., Perdomo Romero, A. Y., & Ramírez Perdomo, C. A. (2022). Characteristics and experiences of family caregivers in the mental health setting. Revista Peruana De Medicina Experimental Y Salud Pública. doi:https://doi.org/10.17843/rpmesp.2022.392.11111Cardoso AL, S.-J. G., Bastos, L., Cesar, A., Serrano, L., Dziedzic, A., & Picciani, B. (2023). Preliminary Assessment of the Quality of Lifeand Daily Burden of Caregivers of Persons with Special Needs: A Questionnaire-Based, Cross-Sectional Survey. International Journal of Environmental Research and Public Health. doi:https://doi.org/10.3390/ijerph20032012Colombo-Dougovito, A., Rocco Dillon, S., & Mpofu, E. (2020). The Wellbeing of People with Neurodiverse Conditions. Sustainable Community Health. doi:https://doi.org/10.1007/978-3-030-59687- 3_15Congreso de la República. (2006, 6 de septiembre). Ley 1090 de 2006. Obtenido de https://www.colpsic.org.co/wp- content/uploads/2021/03/Ley-1090-de-2006-anotacionesjurisprudencia.pdf Dardas, L., & Ahmad, M. (2013). Coping Strategies as Mediators and Moderators between Stress and Quality of Life among Parents of Children with Autistic Disorder. Stress & Health, 5-12. doi:https://doi.org/10.1002/smi.2513den Houting, J. (2019). Neurodiversity: An insider’s perspective. 271-273. doi:https://doi.org/10.1177/1362361318820762 Fairfax, A., Bréhaut, J., Colman, I., Sikora, L., Kazakova, A., Chakraborty, P., & Potter, B. K. (2019). A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability. BMC Pediatr. doi:https://doi.org/10.1186/s12887-019-1587-3Folkman, S., & Lazarus, R. (1984). Stress, appraisal and coping. Springer Publishing Company.Folkman, S., Lazarus, R., Dunkel-Schetter, C., DeLongis, A., & Gruen, R. ((1986).). Dynamics of a stressful encounter: Cognitive appraisal, coping, and encounter outcomes. Journal of Personality and Social Psychology, 992–1003. Obtenido de https://delongis- psych.sites.olt.ubc.ca/files/2018/03/Dynamics-of-a-stressful- encounter.pdfGrau Valdés, Y., Rodriguez Umpierre, R., & Martínez Rodríguez, L. (2019). Sentido personal del rol y estrategias de afrontamiento en cuidadores de pacientes en hemodiálisis. International Journal of Developmental and Educational Psychology., 269-282. doi:https://doi.org/10.17060/ijodaep.2019.n1.v2.1440Gray, D. (2003). Gender and coping: the parents of children with high functioning autism. Social Science & Medicine, 631-642. doi:https://doi.org/10.1016/s0277-9536(02)00059-xHastings, R., Kovshoff, H., Brown, T., Ward, N., Espinosa, F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism : the international journal of research and practice, 377–391. doi:https://doi.org/10.1177/1362361305056078Hawken, T., Turner-Cobb, J., & Barnett., J. (2018). Coping and adjustment in caregivers: A systematic review. Health Psychology Open. doi:https://doi.org/10.1177/2055102918810659Hernández Padilla, J. M., Ruiz Fernández, M. D., Granero Molina, J., Ortíz Amo, R., López Rodríguez, M. M., & Fernández-Sola, C. (2021). Perceived health, caregiver overload and perceived social support in family caregivers of patients with Alzheimer's: Gender differences. Health & social care in the community, 1001–1009. doi:https://doi.org/10.1111/hsc.13134Hernández Sampieri, R., Fernández Collado, C., & Batipsta Lucio, P. (2006). Metodología de la investigación. Obtenido de https://www.uv.mx/personal/cbustamante/files/2011/06/Metodolog ia-de-la-Investigaci%C3%83%C2%B3n_Sampieri.pdfJaarsma, P., & Welin, S. (2012). Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement. Health Care Anal, 20–30. doi:https://doi.org/10.1007/s10728-011-0169-9 Kim, K. S. (2021). Caregivers’ Information Overload and Their Personal Health Literacy. Western Journal of Nursing Research, 431-441. doi:doi:10.1177/0193945920959086Lai, W., Goh, T., Oei, T., & Sung, M. (2015). Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD). Journal of Autism and Developmental Disorders, 2582–2593. doi:https://doi.org/10.1007/s10803-015-2430-9León, Á. G. (2023). Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol. International journal of environmental research and public health. doi:https://doi.org/10.3390/ijerph20065081Lindt, N., Berkel, J. v., & Mulder, B. C. (2020). Determinants of overburdening among informal carers: a systematic review. BMC Geriatr. doi:https://doi.org/10.1186/s12877-020-01708-3695X2020000100013&lng=es&tlng=es.Martinez, S. (2020). Síndrome del cuidador quemado. Revista Clínica de Medicina de Familia. Obtenido de http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1699-Ministerio de Salud. (1993, 4 de octubre ). Resolución 8430 de 1993. Obtenido de https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RID E/DE/DIJ/RESOLUCION-8430-DE-1993.pdfO. Jack-Ide, I., Uys, L. R., & Middleton, L. E. (2013). Caregiving experiences of families of persons with serious mental health problems in the Niger Delta region of Nigeria. International journal of mental health nursing, 170–179. doi:https://doi.org/10.1111/j.1447-0349.2012.00853.xOleas, D., Yong, C., Garza, X., Teixeira, F., Lucero, J., & Salas, A. (2024). Emotional Coping Strategies for Informal Caregivers of Hospitalized Patients: A Study of Distress and Overload. Psychology Research and Behavior Management, 725—734. doi:https://doi.org/10.2147/PRBM.S443200Pahlavanzadeh, S., Mousavi, S., & Maghsoudi, J. (2018). Exploring the Needs of Family Caregivers of Children with Attention Deficit Hyperactivity Disorder: A Qualitative Study. Iranian journal of nursing and midwifery research, 149–154. doi:https://doi.org/10.4103/ijnmr.IJNMR_16_17Palacio, C., Krikorian, A., Gómez-Romero, M. J., & Limonero, ,. J. (2020). Resilience in Caregivers: A Systematic Review. American Journal of Hospice and Palliative Medicine, 648-658. doi:10.1177/1049909119893977Peng, M. M., Xing, J., Tang, X., Wu, Q., Wei, D., & Ran, M. S. (2022). Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia: A Systematic Review and Meta-Analysis. International Journal of Environmental Research and Public Health. doi:https://doi.org/10.3390/ijerph19031862Pisula, E., & Kossakowska, Z. (2010). Sense of Coherence and Coping with Stress Among Mothers and Fathers of Children with Autism. Journal of Autism and Developmental Disorders, 1485–1494. doi: https://doi.org/10.1007/s10803-010-1001-3Provencher, H., Fournier, J.-P., Perreault, M., & Vezina, J. (2000). The Caregiver's Perception of Behavioral Disturbance in Relatives with Schizophrenia: A Stress-Coping Approach. Community Ment Health, 293–306. doi:https://doi.org/10.1023/A:1001961331890Roig, M. V., Abengózar Torres, M. C., & Serra Desfilis, E. (1998). La sobrecarga en los cuidadores principales de Enfermos de Alzheimer. Anales de Psicología / Annals of Psychology, 215–227. Obtenido de https://revistas.um.es/analesps/article/view/31561Romaniuk, A., Ward, M., Henrikson, B., Cochrane, K., & Theule, J. (2022). Family Quality of Life Perceived by Mothers of Children with ASD and ADHD. Child Psychiatry & Human Development, 510–519. doi:https://doi.org/10.1007/s10578-022-01422-8Sanches, S. M., Pipek, L. Z., Mesquita, G. H., Nii, F. M., Carvalho, B. J., D'Albuquerque, L. A., & Meyer, A. &. (2022). The impact of stressors and overload on informal caregivers of patients with cirrhosis: The first use of the Burden Scale for Family Caregivers in Brazil. Journal of health psychology, 408–421. doi:https://doi.org/10.1177/1359105320953464Schuck, R., Tagavi, D., Baiden, K., Dwyer, P., Williams, Z., Osuna, A., Vernon, T. (2022). . Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework. Journal of Autism and Developmental Disorders, 4625–4645. doi:https://doi.org/10.1007/s10803-021-05316-xSilva, A. R., Fhon, J. R., Rodrigues, R. A., & Leite, M. T. (2021). Caregiver overload and factors associated with care provided to patients under palliative care. Investigacion y educacion en enfermeria. doi: https://doi.org/10.17533/udea.iee.v39n1e10Silva, J., Gonzales, J., Mas, T., Marques, S., & Partezani, R. (2016). Sobrecarga y calidad de vida del cuidador principal del adulto mayor. Avances en Enfermería. doi:https://doi.org/10.15446/av.enferm.v34n3.58704Solaiman, M., Morshed, A., Morshed, A., Mullick, M., Rahman, M., & Ahmed, S. (2023). Psychological distress and perceived burden among Bangladeshi parents of children with autism spectrum disorder: A cross-sectional study. Psychological Studies, 319–325. doi:https://doi.org/10.1007/s12646-023-00720-ySong, J., Shin, D., Choi, J., Kang, J., Baik, Y., Mo, H., . . . Kim, E. (2011). Quality of life and mental health in family caregivers of patients with terminal cancer. Support Care Cancer, 1519–1526. doi:https://doi.org/10.1007/s00520-010-0977-8Souza, A., Guimarães, R., de Araújo, D., Machado de Assis, R., Cavalcante, L., Rezende, M., . . . Barbosa, M. (2017). Factors associated with the burden of family caregivers of patients with mental disorders: a cross-sectional study. BMC Psychiatry. doi:https://doi.org/10.1186/s12888-017-1501-1Van Den Wijngaart, M., Vernooij-Dassen, M., & Felling, A. (2007). The influence of stressors, appraisal and personal conditions on the burden of spousal caregivers of persons with dementia. Aging & Mental Health, 626-636. doi:https://doi.org/10.1080/13607860701368463van Roij, J., Brom, L., Sommeijer, D., van de Poll-Franse, L., & Raijmakers, N. (2021). Self-care, resilience, and caregiver burden in relatives of patients with advanced cancer: results from the eQuiPe study. Support Care Cancer, 7975–7984. doi:https://doi.org/10.1007/s00520-021-06365-9Vanderburg, J., Pagán, A., & Pearson, D. (2024). Neurodiversity Framework: Model, Tenets, and Critiques. The Palgrave Encyclopedia of Disability. doi:https://doi.org/10.1007/978-3-031- 40858-8_65-1Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities. Journal of Autism and Developmental Disorders, 783–795. doi:https://doi.org/10.1007/s10803-010-1099-3Whitford, K. J., Ulrich, A. M., Larsen, B. E., Phelps, C. M., Siska, M. J., Bigelow, M. L., . . . Lapid, M. I. (2023). Music Therapy Intervention to Reduce Caregiver Distress at End of Life: A Feasibility Study. Journal of pain and symptom management, 417–423. doi:https://doi.org/10.1016/j.jpainsymman.2023.01.009Xavier, F., & Esperandio, M. (2023). Spirituality and Caregiver Burden of People with Intellectual Disabilities: an Empirical Study. International Journal of Latin American Religions, 17–35. doi:https://doi.org/10.1007/s41603-023-00196-8Zambrano, E. M., & Guerra, M. D. (2012). Formación del cuidador informal: relación con el tiempo de cuidado a personas dependientes mayores de 65 años. Aquichan. Obtenido de http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S1657 -59972012000300004&lng=en&tlng=esinfo:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2Cuidadores familiaresSobrecargaEstrategias de afrontamientoNeurodiversidadPrimary caregiversOverloadCoping strategiesNeurodiversityPublicationORIGINAL2024_Trabajo_Grado2024_Trabajo_Gradoapplication/pdf4267668https://repository.ucc.edu.co/bitstreams/565fc11f-0884-4cd3-9ac8-66e63aa858b9/downloadb1f12f9319abd88880d95cf9a8ac0269MD512024_Licencia_Uso2024_Licencia_Usoapplication/pdf216591https://repository.ucc.edu.co/bitstreams/bcaafb6e-0bb8-40e5-8cc6-d574d7fe8201/download01ef21722b075f5190aa4d1e92a3827cMD522024_Acta_Sustentacion2024_Acta_Sustentacionapplication/pdf25511https://repository.ucc.edu.co/bitstreams/e64a639f-59d7-4f0a-a8d2-ba12e5865b77/downloadade48ce90f23281613b2e8ec9dfb6be7MD532024_Acta_Sustentacion2024_Acta_Sustentacionapplication/pdf24705https://repository.ucc.edu.co/bitstreams/5fa82f13-e20f-4470-a7a4-4730751d7891/download5c87518177a42456ae0f7eeda762ee16MD542024_Acta_Sustentacion2024_Acta_Sustentacionapplication/pdf26008https://repository.ucc.edu.co/bitstreams/967c0fe4-53f3-4a03-8f20-975fdb2b1b29/download2c4e7c8464b251f1167069e430e8a276MD55LICENSElicense.txtlicense.txttext/plain; charset=utf-84334https://repository.ucc.edu.co/bitstreams/4ee79ac7-0606-43a5-ae42-68bebc4a6912/download3bce4f7ab09dfc588f126e1e36e98a45MD56TEXT2024_Trabajo_Grado.txt2024_Trabajo_Grado.txtExtracted texttext/plain72743https://repository.ucc.edu.co/bitstreams/ff22bde5-9d0f-4d2f-8869-703753115f5a/downloadc9b32be1c2bba29fc7036377c295c79fMD572024_Licencia_Uso.txt2024_Licencia_Uso.txtExtracted texttext/plain5990https://repository.ucc.edu.co/bitstreams/8a966309-8048-4dc3-baf6-c88c5a31522a/downloadd0ea5e8c0fbd7393200d66c8f4836ad7MD592024_Acta_Sustentacion.txt2024_Acta_Sustentacion.txtExtracted texttext/plain2https://repository.ucc.edu.co/bitstreams/c7feb290-2471-4045-9c6b-68f09f81f093/downloade1c06d85ae7b8b032bef47e42e4c08f9MD511THUMBNAIL2024_Trabajo_Grado.jpg2024_Trabajo_Grado.jpgGenerated Thumbnailimage/jpeg7544https://repository.ucc.edu.co/bitstreams/5f96daaa-ae51-41f4-80a7-6fa49fa1c744/download0790e56d0950ab796b6ba1d12483e27bMD582024_Licencia_Uso.jpg2024_Licencia_Uso.jpgGenerated Thumbnailimage/jpeg12743https://repository.ucc.edu.co/bitstreams/8aecbaf6-dd05-4879-90a6-2dca9feedc15/download6edb650a92e88c0b99658a6a69645686MD5102024_Acta_Sustentacion.jpg2024_Acta_Sustentacion.jpgGenerated Thumbnailimage/jpeg9318https://repository.ucc.edu.co/bitstreams/fc857274-e1a9-4fc2-b789-bc769349cc2d/download3dd02dcec3ec5a406e7ba803a5dcb748MD51220.500.12494/56925oai:repository.ucc.edu.co:20.500.12494/569252024-08-16 03:07:15.949open.accesshttps://repository.ucc.edu.coRepositorio Institucional Universidad Cooperativa de Colombiabdigital@metabiblioteca.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

Sobrecarga y estrategias de afrontamiento en cuidadores familiares de estudiantes con neurodiversidad

Publicaciones similares